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Still Water Birth

Hydrotherapy is gaining increasing recognition as a homeopathic ingredient in birth planning.

Water can be included in labor and birth in a number of ways:

  • showering, allowing the water to splash onto your breasts and down your belly, to help stimulate labor
  • showering with your spouse to help increase oxytocin, to help stimulate labor
  • foot soak to ease tension and swelling
  • waterbirth

Waterbirth can take place at home, at a birth center, or in many hospitals.  Contrary to its name, waterbirth not only means giving birth to your baby while you are emerged in water, it is also lesser understood to simply mean spending time soaking while in labor, whether or not the actual birth takes place while still emerged in the water.

Related: at home early pregnancy birth    and    at home stillbirth

Additionally, having a warm bath immediately after the birth can be soothing.

So, can a mother giving birth to her beloved miscarried or stillborn baby still enjoy the benefits of a waterbirth?

The answer?  It depends on a number of very individualized and important factors, but YES, waterbirth may indeed still be a valid option.

If you have read through our birth planning materials, have consulted with your care provider, and desire to plan a waterbirth of your miscarried or stillborn baby, here are a few things to consider:

  • Including Epsom Salt at the measured amount directed on the carton can be particularly advantageous, for the following reasons:
  • Magnesium Sulfate is an FDA category A (good to know for mothers experiencing a threatened miscarriage).
  • Magnesium Sulfate can help reduce the risk of postpartum hemorrhage, a very serious danger which can be heightened for mothers giving birth via natural miscarriage.
  • Because hemorrhage is such a very serious and potentially life threatening issue for mothers experiencing pregnancy & infant loss, it is wise for you to consider that most generally during any water birth, blood released into the water can give an alarming appearance.  Additionally, when you first stand up from your bath, you should do so carefully.  Mothers giving birth in any trimester should never do so alone.  Water and blood that has pooled in your vagina can also give an alarming appearance when you emerge from the water.  Please be sure to read our information about hemorrhage because it is such a critical aspect of your experience.
  • Magnesium Sulfate has been used intravenously to stall preterm labor, but its actual ability to stall labor is inconclusive.  In miscarriage labor, it is already possible for labor to start and stop over a timeframe up to weeks.  Knowing this is helpful in your decision making.
  • Magnesium Sulfate can help fight infection because of its vasodilatation.
  • Soaking for 10 minutes at a time, in warm, fresh clean water, is recommended versus prolonged time submerged in water, when using Epsom Salt or not.  This also helps to prevent reabsorption of your toxins flushed during the soak, and can allow for some of the resensation to integrate into your labor.
  • When you have high levels of stress, your body can deplete its source of Magnesium Sulfate, resulting in higher amounts of adrenaline production.  These higher amounts of adrenaline can add to the already emotionally overwhelming experience of pregnancy and infant loss, and can even pose additional health risks.  Soaking in a warm bath with Magnesium Sulfate can counter these dangers.
  • The saline water of your soak may aid in preserving the very delicate physical form of your miscarried baby.  Using a small fish net to remove fragments of your baby’s placenta from your bath may be helpful.  Please see our at home birth planning for more information.
  • You might also add essential oils to your bath.
  • As with all birthing options, it is best to consider the ideas you might present to your trusted healthcare provider, and use this page simply as reference for conversation to gain their counsel, advanced knowledge of any contraindications and final recommendation.

 

 

Prenatal Testing & Diagnosis

While stillbirthday is not a medical website, this is a general list of information and resources related to the journey of prenatal testing. If you have been given information that there is a possibility of your baby having a particular diagnosis, even a non-fatal one compatible with life outside of the womb, it is still important to give yourself space for the authentic reactions you are facing.  These can include:

  • total overwhelm.  The big questions of the definition of life in utero or elective abortion (TMFR – termination for medical reasons) can seem absolutely thrust upon you, and convictions or beliefs you might generally hold in regard to these questions can all seem absolutely uncertain now.
  • anger.  Because even if you hold to particular convictions regarding the duration of life in utero, having to even be presented with this in the first person, during a season that is intended to be full of life and joy, can seem like an abandonment or betrayal or some kind of cosmic trickery, no matter your spiritual or philosophical views.
  • isolation.  Isolation spiritually as mentioned above, but isolation socially as well.  Who can you trust to share with that you are facing such an overwhelming and personal time?  Please know you are not alone.
  • shame.  Shame can storm in big and fast.  You might have heard that chromosomal differences are specifically due to the mother’s egg, for example.  Shame for not having an idyllic pregnancy can haunt you at a time that you’re already so perplexed by what you’re facing.
  • grief.  The only healthy way to move forward with what you’re facing is if those who love and support you give you the space to your authentic reactions to what you are facing.  You need to know, to really know, that you have permission to explore the meaning, purpose and path of your journey, surrounded by validation and support for your healing.  You can learn more at our Living Grief article.

~~Please visit our next support page for pregnancy, which includes carrying to term and further information.~~

 

The diagnosis – or, the possibility of a diagnosis – can be a very confusing time.  Different tests might be offered, and these might be looking for different things.  Here are some tests that might be offered.

 Screenings & Diagnostic Testing

Screening tests reveal a probability of a diagnosis simply based on markers.  This does not give a conclusive answer, only a probability.  Diagnostic tests look specifically for certain diagnoses and can often give a more definitive answer, although mothers can attest to false outcomes with either form of testing.

Screening

A blood serum screening looks for alpha-fetoprotein, inhibin A, plasma protein A,estriol, and human chorionic gonadotropin.  This combined with the mother’s age and an ultrasound looking for specific “markers”, or, indications of a particular diagnosis, can offer some information for you.

Secondary Complications

Higher Level Ultrasounds may not discover but do try to determine possible secondary diagnoses that may be more possible given a first diagnosis.  Once an initial diagnosis is established, you may be overwhelmed to discover that secondary complications may present themselves, which you may learn about prenatally or may become more prominent later in your baby’s life.  These secondary medical issues may compound an already overwhelming, weary, isolating and shaming time.  Please, please be gentle on yourself, and please, please, go slow.  Get support around you to unpack any and everything you’re facing.

For example, in a diagnosis of Down Syndrome, you may learn that there is an increased possibility of medical conditions such as heart defects or Leukemia.  As you look for answers and for support, please consider that one person’s journey with a diagnosis may include more, or more severe, medical conditions than you might be facing with your baby.

Diagnostic Testing

This can include chorionic villus sampling (CVS), amniocentesis, or the newer, MaterniT21 testing.

 

 

Here are some resources for encouragement for your journey.

 

From Stillbirthday

 

 

From Other Mothers & Fathers

 

NICU Massachusetts

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ADA Center

        1 – State Agencies
State: Massachusetts
New England ADA Center 180-200 Portland Street, Suite 1 Boston , MA , 02114
(800) 949-4232 V/TTY)
(617) 695-1225 (V/TTY)
http://www.newenglandada.org

Blind/ Visual Impairments/ Deaf-Blind

        1 – State Agencies
State: Massachusetts
Children’s Services Massachusetts Commission for the Blind 48 Boylston Street Boston , MA , 02116
(800) 392-6450
(617) 626-7480
(617) 626-7650 (TTY)
http://www.mass.gov/mcb

Career and Tech Ed

        1 – State Agencies
State: Massachusetts
Career and Technical Education Department of Education 350 Main Street Malden , MA , 02148-5023
(781) 338-3910
http://www.doe.mass.edu

CHIP

        1 – State Agencies
State: Massachusetts
(health care for low-income uninsured children) MassHealth Enrollment Center Central Processing Unit P.O. Box 129124 Boston , MA , 02112-9124
(888) 665-9993
(888) 665-9997 (TTY)
http://www.mass.gov/dma

D D Council

        1 – State Agencies
State: Massachusetts
Massachusetts Developmental Disabilities Council 1150 Hancock Street, Suite 300 Quincy , MA , 02169
(617) 770-7676, ext. 100
(617) 770-9499 (TTY)
http://www.mass.gov/mddc

Deaf/Hard of Hearing

        1 – State Agencies
State: Massachusetts
Massachusetts Commission for the Deaf and Hard of Hearing 150 Mt. Vernon Street, Suite 550 Dorchester , MA , 02125
(617) 740-1600
(617) 740-1700 (TTY)
http://www.mass.gov/mcdhh

Developmental Disabilities

1 – State Agencies
State: Massachusetts
Department of Mental Retardation 500 Harrison Avenue Boston , MA , 02118
(617) 727-5608
http://www.mass.gov/dmr

Early Intervention

        1 – State Agencies
State: Massachusetts
Division for Perinatal, Early Childhood and Special Health Needs Department of Public Health 250 Washington Street, 4th Floor Boston , MA , 02108
(617) 624-5901
(800) 905-8437 (Early Intervention Programs)
http://www.mass.gov/dph/

Mediation

        1 – State Agencies
State: Massachusetts
Bureau of Special Education Appeals Department of Education 350 Main Street Malden , MA , 02148
(781) 338-6443
http://www.doe.mass.edu/bsea

Mental Health

        1 – State Agencies
State: Massachusetts
Department of Mental Health 25 Staniford Street Boston , MA , 02114
(617) 626-8123
http://www.mass.gov/dmh

Mental Health – Youth

        1 – State Agencies
State: Massachusetts
Child and Adolescent Services Department of Mental Health 25 Staniford Street Boston , MA , 02114
(617) 626-8086
http://www.mass.gov/dmh

Preschool, Disabilities

        1 – State Agencies
State: Massachusetts
Early Education and Care 51 Sleeper Street Boston , MA , 02210
(617) 988-6600
http://www.eec.state.ma.us

Protection & Advocacy

        1 – State Agencies
State: Massachusetts
Disability Law Center, Inc. 11 Beacon Street, Suite 925 Boston , MA , 02108
(800) 872-9992 (V)
(617) 723-8455
(800) 381-0577 (TTY)
(617) 227-9464 (TTY)
http://www.dlc-ma.org/

Relay Services

        1 – State Agencies
State: Massachusetts
(800) 439-0183 (V)
(800) 439-2370 (TTY); 711 (TTY)
(800) 439-0183 (Speech to Speech)

Special Education

        1 – State Agencies
State: Massachusetts
Special Education Planning and Policy Development Office Department of Education 350 Main Street Malden , MA , 02148-5023
(781) 338-3000
(781) 338-3388
http://www.doe.mass.edu/sped

Special Format Library

        1 – State Agencies
State: Massachusetts
Braille and Talking Book Library Perkins School for the Blind 175 N. Beacon Street Watertown , MA , 02472
(800) 852-3133
(617) 972-7240
http://www.perkinslibrary.org

State Web Site

        1 – State Agencies
State: Massachusetts
Connect with your state’s official website to find all manner of state agencies and information, including how to contact your governor and/or your representatives in the Senate and House:
http://www.mass.gov

Transition Services

        1 – State Agencies
State: Massachusetts
Special Education Planning and Policy Development Office Massachusetts Department of Education 350 Main Street Malden , MA , 02148
(781) 338-3375
http://www.doe.mass.edu/sped/

UCEDD

        1 – State Agencies
State: Massachusetts
Institute for Community Inclusion/UCEDD University of Massachusetts Boston 100 Morrissey Blvd. Boston , MA , 02125
(617) 287-4300
(617) 287-4350 (TTY)
http://www.communityinclusion.org

UCEDD

        1 – State Agencies
State: Massachusetts
Eunice Kennedy Shriver Center University of Massachusetts Medical School 200 Trapelo Rd Waltham , MA , 02452-6319
(800) 764-0200 (TTY)
(781) 642-0001
http://www.umassmed.edu/shriver

Vocational Rehabilitation

        1 – State Agencies
State: Massachusetts
Massachusetts Rehabilitation Commission Fort Point Place 27 Wormwood Street Boston , MA , 02210-1616
(800) 245-6543 (in MA only)
(617) 204-3600
http://www.mass.gov/mrc/

Attention Deficit Disorder

        2 – Disability-Specific Organizations
State: Massachusetts
To identify an ADD group in your state or locality, contact either: 

Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD) 8181 Professional Place, Suite 150 Landover , MD , 20785

(800) 233-4050 (Voice mail to request information packet)
(301) 306-7070
http://www.chadd.org

Attention Deficit Disorder

        2 – Disability-Specific Organizations
State: Massachusetts
Attention Deficit Disorder Association (ADDA) P.O. Box 543 Pottstown , PA , 19464-0543
(484) 945-2101
http://www.add.org

Autism

        2 – Disability-Specific Organizations
State: Massachusetts
Autism Society of Massachusetts 47 Walnut Street Wellesley Hills , MA , 02481
(781) 237-0272, ext. 17
http://www.massautism.org

Autism

        2 – Disability-Specific Organizations
State: Massachusetts
Community Resources for People with Autism 116 Pleasant Street, Suite 366 Easthampton , MA , 01027
(413) 529-2428
(800) 892-7003
http://www.communityresourcesforautism.org/matriarch

Autism

        2 – Disability-Specific Organizations
State: Massachusetts
The Doug Flutie, Jr. Foundation for Autism, Inc PO Box 767 Framingham , MA , 01701
1-866-3-AUTISM
(508) 270-8855
http://www.dougflutiejrfoundation.org

Autism

        2 – Disability-Specific Organizations
State: Massachusetts
Asperger’s Association of New England (AANE) 85 Main Street, Suite 101 Watertown , MA , 02472
(617) 393-3824
http://www.aane.org

Blind/Visual Impairments

        2 – Disability-Specific Organizations
State: Massachusetts
American Foundation for the Blind 11 Penn Plaza, Suite 300 New York , NY , 10001
(800) 232-5463
(212) 502-7600
http://www.afb.org

Blind/Visual Impairments

        2 – Disability-Specific Organizations
State: Massachusetts
Massachusetts Association of Parents of the Visually Impaired Children (MAPVI) 22 Old Marlboro Road Maynard , MA , 01754
(978) 897-3005

Brain Injury

        2 – Disability-Specific Organizations
State: Massachusetts
Brain Injury Association of Massachusetts 30 Lyman Street, Suite 10 Westborough , MA , 01581
(800) 242-0030 (in MA)
(508) 475-0032
http://www.biama.org

Cerebral Palsy

        2 – Disability-Specific Organizations
State: Massachusetts
United Cerebral Palsy of MetroBoston, Inc. 71 Arsenal Street Watertown, MA 02472 Watertown , MA , 02472
(617) 926-5480
http:// www.ucpboston.org

Down Syndrome

        2 – Disability-Specific Organizations
State: Massachusetts
Massachusetts Down Syndrome Congress 20 Burlington Mall Road Suite 261 Burlington , MA , 01803
(800) 664-6372
(781) 221-0024
http://www.MDSC.org

Epilepsy

        2 – Disability-Specific Organizations
State: Massachusetts
Epilepsy Foundation Massachusetts, Rhode Island, New Hampshire & Maine 540 Gallivan Blvd., 2nd Floor Boston , MA , 02124
(888) 576-9996
(617) 506-6041
http://www.efmarinhme.org

Intellectual & Developmental Disabilities

        2 – Disability-Specific Organizations
State: Massachusetts
Greater Boston Arc 221 N. Beacon Street, 2nd Floor Boston , MA , 02135
(617) 783-3900, ext. 20
http://www.arcgb.org

Intellectual & Developmental Disabilities

        2 – Disability-Specific Organizations
State: Massachusetts
The Arc of Massachusetts 217 South Street Waltham , MA , 02453
(781) 891-6270
http://www.arcmass.org

Intellectual & Developmental Disabilities

        2 – Disability-Specific Organizations
State: Massachusetts
The Arc of Northern Bristol County 141 Park Street Attleboro , MA , 02703
(888) 343-3301
(508) 226-1445
http://www.arcnbc.org

Learning Disabilities

        2 – Disability-Specific Organizations
State: Massachusetts
Learning Disabilities Worldwide P.O. Box 142 Weston , MA , 02493
(978) 897-5399
http://www.ldworldwide.org

Mental Health

        2 – Disability-Specific Organizations
State: Massachusetts
NAMI Massachusetts 400 W. Cummings Park, Suite 6650 Woburn , MA , 01801
(800) 370-9085
(781) 938-4048
http:// www.namimass.org

Mental Health

        2 – Disability-Specific Organizations
State: Massachusetts
Parent/Professional Advocacy League (PAL) 45 Bromfield Street, 10th Floor Boston , MA , 02108
(866) 815-8122
(617) 542-7860
http://www.ppal.net

Speech, Language, and Hearing

        2 – Disability-Specific Organizations
State: Massachusetts
Massachusetts Speech-Language-Hearing Association 77 Rumford Avenue, Suite 3B Waltham , MA , 02453
(800) 898-8177
(781) 647-7031
http://www.MSHAHearSay.org

Spina Bifida

        2 – Disability-Specific Organizations
State: Massachusetts
Spina Bifida Association of Massachusetts 733 Turnpike Street, #282 North Andover , MA , 01845
(888) 479-1900
http://www.sbaMass.org

Tourette Syndrome

        2 – Disability-Specific Organizations
State: Massachusetts
Tourette Syndrome Association Massachusetts Chapter P.O. Box 653 Marston’s Mills , MA , 02648
(617) 277-7589
http://www.tsa-ma.org/

Community Parent Resource Center

        3 – Organizations for Parents
State: Massachusetts
(Serving the city of Boston) Urban PRIDE One Westinghouse Plaza Building D, Suite 11 Hyde Park , MA , 02136
(617) 206-4570 ext. 301
http://www.urbanpride.org

Parent Advisory Council

        3 – Organizations for Parents
State: Massachusetts
Massachusetts Association of Special Education Parent Advisory Councils (MASSPAC) P.O. Box 167 Sharon , MA , 02067
(617) 962-4558
http://www.masspac.org

Parent Teacher Association (PTA)

        3 – Organizations for Parents
State: Massachusetts
Massachusetts PTA P.O. Box 421 Rehobeth , MA , 02769
(508) 347-7055
http://www.masspta.org

Parent Training and Information Center (PTI)

        3 – Organizations for Parents
State: Massachusetts
Federation for Children with Special Needs The Schrafft Center 529 Main Street, Suite 1102 Boston , MA , 02129
(800) 331-0688 (in MA only)
(617) 236-7210 (V/TTY)
http://fcsn.org/

Parent-to-Parent

        3 – Organizations for Parents
State: Massachusetts
Family TIES of Massachusetts Massachusetts Department of Public Health Donovan Health Building, 3rd Floor 5 Randolph Street Canton , MA , 02021
(800) 905-TIES
(781) 774-6736
http://www.massfamilyties.org

Independent Living

        4 – Other Disability Organizations
State: Massachusetts
To find out the contact information for the Statewide Independent Living Council (SILC) in your state, contact: Independent Living Research Utilization Project The Institute for Rehabilitation and Research 2323 South Sheppard, Suite 1000 Houston , TX , 77019
(713) 520-0232 (V)
(713) 520-5136 (TTY)
http://www.ilru.org

Independent Living

        4 – Other Disability Organizations
State: Massachusetts
To find out the contact information for centers for independent living (CILs) in your state, contact: National Council on Independent Living 1710 Rhode Island Avenue, NW, 5th Floor Washington , DC , 20036
(202) 207-0334 (V)
(202) 207-0340 (TTY)
http://www.ncil.org

Other

        4 – Other Disability Organizations
State: Massachusetts
Associated Advocacy Center Visions for the Future, Inc. 24 Widow Coombs Walk Sandwich , MA , 02563
(888) 420-4356
(508) 420-4356
http://www.aacvisions.org

Other

        4 – Other Disability Organizations
State: Massachusetts
Easter Seals Massachusetts (School transition services, assistive technology and augmentative communication assessments, therapy services, summer Camp, and low interest rate loans for assistive technology.) 484 Main Street Worcester , MA , 01608
(800) 244-2756
(508) 757-2756
http://www.eastersealsma.org

Other

        4 – Other Disability Organizations
State: Massachusetts
New England INDEX Shriver Center UMASS Medical School (Information & Referral for people with Disabilities) 200 Trapelo Road Waltham , MA , 02452-6319
(800) 642-0249
(781) 642-0248
(800) 764-0200 TTY (in MA)
http://www.disabilityinfo.org

Other

        4 – Other Disability Organizations
State: Massachusetts
Statewide Head Injury Program Massachusetts Rehabilitation Commission 27 Wormwood Street, Fort Point Place, Suite 600 Boston , MA , 02210
(800) 223-2559 (MA only)
(617) 204-3852 (V)
(617) 204-3817 (TTY)
http://www.mass.gov/mrc/ship/ship.htm

Other

        4 – Other Disability Organizations
State: Massachusetts
Home Modifications Loan Program for People with Disabilities Massachusetts Rehabilitation Commission 27 Wormwood Street Boston , MA , 02210-1616
(800) 245-6543
(617) 204-3600
http://www.mass.gov/mrc/agency/homemods.htm

Other

        4 – Other Disability Organizations
State: Massachusetts
VSA arts of Massachusetts China Trade Center 2 Boylston Street, 2nd Floor Boston , MA , 02116-9856
(617) 350-7713
(617) 350-6836 (TTY)

NICU Virginia

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ADA Center

        1 – State Agencies
State: Virginia
Mid-Atlantic ADA Center 401 North Washington Street, Suite 450 Rockville , MD , 20805
(800) 949-4232 (V/TTY)
(301) 217-0124 (V/TTY)
http://www.adainfo.org

Assistive Technology

        1 – State Agencies
State: Virginia
Virginia Assistive Technology System 8004 Franklin Farms Drive Richmond , VA , 23229
(800) 552-5019
(804) 662-9995 (V/TTY)
http://www.vats.org

Blind/ Visual Impairments/ Deaf-Blind

        1 – State Agencies
State: Virginia
Education Services Virginia Department for the Blind and Vision Impaired 397 Azalea Avenue Richmond , VA , 23227-3600
(804) 371-3140
http://www.vdbvi.org

Career & Technical Education

        1 – State Agencies
State: Virginia
Office of Career and Technical Education Services Virginia Department of Education P.O. Box 2120 Richmond , VA , 23218-2120
(804) 225-2847
http://www.pen.k12.va.us/VDOE/Instruction/CTE

CHIP

        1 – State Agencies
State: Virginia
(health care for low-income uninsured children) FAMIS P.O. Box 1820 Richmond , VA , 23218-1820
(866) 873-2647
http://www.famis.org

D D Council

        1 – State Agencies
State: Virginia
Virginia Board for People with Disabilities Ninth Street Office Building 202 N. Ninth Street, 9th Floor Richmond , VA , 23219
(800) 846-4464 (In VA)
(804) 786-0016 (V/TTY);
http://www.vaboard.org

Deaf-Blind

        1 – State Agencies
State: Virginia
Together We Can: Virginia’s Deaf-Blind Project Partnership for People with Disabilities Virginia Commonwealth University 700 E. Franklin Street, 10th Floor P.O. Box 843020 Richmond , VA , 23284-3020
(804) 828-8252
http://www.twc-deafblind.state.va.us

Deaf/Hard of Hearing

        1 – State Agencies
State: Virginia
Virginia Department for the Deaf and Hard of Hearing 1602 Rolling Hills Drive, Suite 203 Richmond , VA , 23229-5012
(800) 552-7917 (V/TTY)
(804) 662-9502 (V/TTY)
http://www.vddhh.org

Developmental Disabilities

1 – State Agencies
State: Virginia
Office of Mental Retardation Services Department of Mental Health, Mental Retardation and Substance Abuse Services P.O. Box 1797 Richmond , VA , 23219
(804) 786-5850
http://www.dmhmrsas.virginia.gov

Dispute Resolution

        1 – State Agencies
State: Virginia
Virginia Department of Education Complaints, Mediation, Due Process P.O. Box 2120 Richmond , VA , 23218-2120
(804) 225-2013
http://www.doe.virginia.gov/VDOE/dueproc/

Dispute Resolution

        1 – State Agencies
State: Virginia
Mediation Coordinator Virginia Department of Education P.O. Box 2120  Richmond , VA , 23218-2120
(804) 786-0711
http://www.doe.virginia.gov/

Early Intervention

        1 – State Agencies
State: Virginia
Infant & Toddler Connection of Virginia Virginia Department of Behavioral Health and Developmental Services 1220 Bank Street, 9th Floor P.O. Box 1797 Richmond , VA , 23219-1797
(800) 234-1448 (Central Directory for Early Intervention Services)
(804) 786-3710
http://www.infantva.org

Health

        1 – State Agencies
State: Virginia
 Division of Child and Adolescent Health Virginia Department of Health 109 Governor Street, Eighth Floor Richmond , VA , 23219
(804) 864-7685
http://www.vahealth.org/childadolescenthealth/index.htm

Mental Health

        1 – State Agencies
State: Virginia
Department of Mental Health, Mental Retardation and Substance Abuse Services P.O. Box 1797 Richmond , VA , 23218
(804) 786-3921
http://www.dmhmrsas.virginia.gov

Mental Health – Youth

        1 – State Agencies
State: Virginia
Child and Family Services Department of Mental Health, Mental Retardation and Substance Abuse Services P.O. Box 1797 Richmond , VA , 23218
(804) 786-3710
http://www.dmhmrsas.virginia.gov

Preschool, Disabilities

        1 – State Agencies
State: Virginia
Special Education Instructional Services Virginia Department of Education P.O. Box 2120 Richmond , VA , 23218-2120
(800) 292-3820
(804) 225-2675
http://www.doe.virginia.gov

Protection & Advocacy

        1 – State Agencies
State: Virginia
disAbility Law Center for Virginia 1910 Byrd Avenue, Suite 5 Richmond , VA , 23230
(800) 552-3962 (In VA)
(804) 225-2042 (V/TTY)
http://www.dlcv.org

Relay Services

        1 – State Agencies
State: Virginia
(800) 828-1140 (V)
(800) 828-1120 (TTY); 711 (TTY)
(800) 229-5746 (Speech to Speech – English)
(866) 260-9470 (Speech to Speech – Spanish)

Special Education

        1 – State Agencies
State: Virginia
Division of Special Education and Student Services Department of Education P.O. Box 2120 Richmond , VA , 23218-2120
(804) 225-3252
http://www.doe.virginia.gov/special_ed/

Special Format Library

        1 – State Agencies
State: Virginia
Virginia Library and Resource Center Virginia Department for the Blind and Vision Impaired 395 Azalea Avenue Richmond , VA , 23227
(800) 552-7015 (V/TTY)
(804) 371-3661 (V/TTY);
http://www.vdbvi.org/

Special Health Care Needs

        1 – State Agencies
State: Virginia
Children with Special Health Care Needs Program Division of Child and Adolescent Health Virginia Department of Health 109 Governor Street, 8th Floor Richmond , VA , 23219
(804) 864-7706
http://www.vahealth.org/specialchildren/

State Web Site

        1 – State Agencies
State: Virginia
Connect with your state’s official website to find all manner of state agencies and information, including how to contact your governor and/or your representatives in the Senate and House:
http://www.virginia.gov/cmsportal2/

UCEDD

        1 – State Agencies
State: Virginia
Partnership for People with Disabilities Virginia University Center for Excellence Virginia Commonwealth University PO Box 843020 700 E. Franklin Street Richmond , VA , 23284-3020
(804) 828-3876
(800) 828-1120 (TDD)
http://www.vcu.edu/partnership

Vocational Rehabilitation

        1 – State Agencies
State: Virginia
Education Services Manager Virginia Department of Rehabilitative Services 8004 Franklin Farms Drive Richmond , VA , 23229
(800) 552-5019
(804) 662-7081
(804) 662-7000
(800) 464-9950 (TTY)
http://www.vadrs.org

Attention Deficit Disorder

        2 – Disability-Specific Organizations
State: Virginia
To identify an ADD group in your state or locality, contact either: 

Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD) 8181 Professional Place, Suite 150 Landover , MD , 20785

(800) 233-4050
(301) 306-7070
http://www.chadd.org

Attention Deficit Disorder

        2 – Disability-Specific Organizations
State: Virginia
Attention Deficit Disorder Association (ADDA) P.O. Box 7557 Wilmington , DE , 19803-9997
(800) 939-1019 (V/Fax)
http://www.add.org

Autism

        2 – Disability-Specific Organizations
State: Virginia
Autism Society of Central Virginia PO Box 29364 Richmond , VA , 23242-0364
(804) 257-0192
http://www.asacv.org

Brain Injury

        2 – Disability-Specific Organizations
State: Virginia
Brain Injury Association of Virginia 1506 Willow Lawn Drive, Suite 212 Richmond , VA , 23230
(804) 355-5748
(800) 444-6443 (in VA)
http://www.biav.net

Cerebral Palsy

        2 – Disability-Specific Organizations
State: Virginia
Cerebral Palsy of Virginia 5825 Arrowhead Drive, Suite 201 Virginia Beach , VA , 23462
(757) 497-7474
http://www.cerebralpalsyofvirginia.org/

Epilepsy

        2 – Disability-Specific Organizations
State: Virginia
Epilepsy Foundation of Virginia UVA Medical Center P.O. Box 800659 Charlottesville , VA , 22908
(800) 332-1000 (National Answer Place line)
(804) 796-9935 (Richmond)
(757) 438-2398 (Tidewater)
(434) 924-8669 (Charlottesville)
http://www.efva.org

Intellectual & Developmental Disabilities

        2 – Disability-Specific Organizations
State: Virginia
The Arc of Virginia 2025 E. Main Street, Suite 107 Richmond , VA , 23223
(888) 604-2677
(804) 649-8481
http://www.arcofva.org 

Learning Disabilities

        2 – Disability-Specific Organizations
State: Virginia
Learning Disabilities Association of Virginia 3914 Monument Avenue Richmond , VA , 23230-3902
(804) 358-5474
http://www.ldavirginia.org

Mental Health

        2 – Disability-Specific Organizations
State: Virginia
Mental Health America of Virginia 3212 Cutshaw Avenue, Suite 315 Richmond , VA , 23230
(866) 400-6428
(804) 225-5591
http://www.mhav.org

Mental Health

        2 – Disability-Specific Organizations
State: Virginia
NAMI Virginia P.O. Box 8260 Richmond , VA , 23226
(804) 285-8264
http://www.namiva.org 

Speech, Language, and Hearing

        2 – Disability-Specific Organizations
State: Virginia
Speech-Language-Hearing Association of Virginia, Inc. 3126 W. Cary Street, #436 Richmond , VA , 23221
(888) 729-7428
http://www.shav.org

Tourette Syndrome

        2 – Disability-Specific Organizations
State: Virginia
Tourette Syndrome Association of Greater Washington 33 University Boulevard East Silver Spring , MD , 20901-2485
(877) 295-2148
(301) 681-4133
http://www.TSAGW.org

Visual Impairment

        2 – Disability-Specific Organizations
State: Virginia
American Foundation for the Blind Information Center 11 Penn Plaza, Suite 300 New York , NY , 10001
(212) 502-7600
(800) 232-5463
http://www.afb.org

Community Parent Resource Center

        3 – Organizations for Parents
State: Virginia
(Serving Arlington, Fairfax, Loudon, and Prince William Counties, and city of Alexandria) Formed Families Together 4031 University Drive, Suite 100 Fairfax , VA , 22030
(703) 282-3408
http://www.formedfamiliesforward.org

Other Parent Organization

        3 – Organizations for Parents
State: Virginia
The Arc of Virginia Family Involvement Project 2025 E. Main Street, Suite 107 Richmond , VA , 23223
(888) 604-2677        ext. 103
(804) 649-8481        ext. 103
http://www.arcfip.org

Parent Ombudsman

        3 – Organizations for Parents
State: Virginia
Ombudsman Division of Special Education and Student Services Virginia Department of Education P.O. Box 2120 Richmond , VA , 23218-2120
(800) 422-2083
(804) 371-7420
http://www.doe.virginia.gov/VDOE/sess

Parent Resource Center

        3 – Organizations for Parents
State: Virginia
Division of Special Education and Student Services Virginia Department of Education P.O. Box 2120 Richmond , VA , 23218-2120
(804) 371-7421
(800) 422-2083
http://www.doe.virginia.gov/VDOE/sess

Parent Teacher Association (PTA)

        3 – Organizations for Parents
State: Virginia
Virginia PTA 1027 Wilmer Avenue Richmond , VA , 23227
(804) 264-1234
http://www.vapta.org

Parent Training and Information Center (PTI)

        3 – Organizations for Parents
State: Virginia
Parent Educational Advocacy Training Center (PEATC) 100 N. Washington Street, Suite 234 Falls Church , VA , 22046
(703) 923-0010
(800) 869-6782
http://www.peatc.org/

Parent-To-Parent

        3 – Organizations for Parents
State: Virginia
Parent to Parent of Virginia P.O. Box 38341 Richmond , VA , 23231
(804) 795-1481
http://www.ptpofva.com

Virginia Federation of Families (a program of the Arc of VA)

        3 – Organizations for Parents
State: Virginia
2025 E. Main Street, Suite 107 Richmond , VA , 23223
(804) 649-8481, ext. 102
(888) 604-2677
http://www.medicalhomeplus.org

Independent Living

        4 – Other Disability Organizations
State: Virginia
To find out the contact information for the Statewide Independent Living Council (SILC) in your state, contact: Independent Living Research Utilization Project The Institute for Rehabilitation and Research 2323 South Sheppard, Suite 1000  Houston , TX , 77019
(713) 520-0232        (V)
(713) 520-5136        (TTY)
http://www.ilru.org

Independent Living

        4 – Other Disability Organizations
State: Virginia
To find out the contact information for centers for independent living (CILs) in your state, contact: National Council on Independent Living 1710 Rhode Island Avenue, NW, 5th Floor Washington , DC , 20036
(202) 207-0334        (V)
(202) 207-0340        (TTY)
http://www.ncil.org

Other

        4 – Other Disability Organizations
State: Virginia
Easter Seals Virginia 8003 Franklin Farms Drive, Suite 100 Richmond , VA , 23229
(866) 874-4153
(804) 287-1007
http://www.va.easterseals.com

Other

        4 – Other Disability Organizations
State: Virginia
VSA arts of Virginia Plant Zero Building Zero E. 4th Street, Studio 50 Richmond , VA , 23224

NICU Virgin Islands

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ADA Center

        1 – State Agencies
State: Virgin Islands
Northeast ADA Center Employment and Disability Institute Cornell University 201 Dolgen Hall Ithaca , NY , 14853-3901
(800) 949-4232 (V/TTY/Spanish)
(607) 255-6686 (V/TTY/Spanish)
http://www.northeastada.org

D D Council

        1 – State Agencies
State: Virgin Islands
Contact Vocational Rehabilitation Agency.

Deaf/Hard of Hearing

        1 – State Agencies
State: Virgin Islands
Contact Department of Education: Special Education.

Early Intervention

        1 – State Agencies
State: Virgin Islands
Infant and Toddlers Program Department of Health Elaine Co. Complex, Lower Level Est. Contant #78-1, 2, 3 Lower Level St. Thomas , VI , 00802
(340) 777-8804, ext. 2623
(340) 774-9290 (TDD)
http://www.healthvi.org/index.php?page_id=98

Mediation

        1 – State Agencies
State: Virgin Islands
Contact Department of Education: Special Education.

Mental Health

        1 – State Agencies
State: Virgin Islands
Division of Mental Health, Alcoholism and Drug Dependency Services Barbel Plaza South, 1st Floor St. Thomas , VI , 00801
(340) 774-4888, ext. 2610

Mental Health – Youth

        1 – State Agencies
State: Virgin Islands
Contact Mental Health Agency.

Monitoring and Improvement Planning

        1 – State Agencies
State: Virgin Islands
Office of Special Education Department of Education 1834 Kongens Gade Charlotte Amalie St. Thomas , VI , 00802
(340) 719-7682
http://www.usviosep.org/

Preschool, Disabilities

        1 – State Agencies
State: Virgin Islands
Contact Department of Education: Special Education.

Protection & Advocacy

        1 – State Agencies
State: Virgin Islands
Disability Rights Center of the Virgin Islands 63 Estate Cane Carlton Fredericksted, St. Croix , VI , 00840
(340) 772-1200
(340) 776-4303
(340) 772-4641 (TTY)
http://www.drcvi.org

Relay Services

        1 – State Agencies
State: Virgin Islands
711 (TTY)
(800) 229-5746 (Speech to Speech – English)
(866) 260-9470 (Speech to Speech – Spanish)

Special Education

        1 – State Agencies
State: Virgin Islands
Department of Education State Office of Special Education 1834 Kongens Gade Charlotte Amalie St. Thomas , VI , 00802-6746
(340) 776-5802
(340) 718-7682 (St. Croix Office)
http://sose.vide.vi/

Special Health Care Needs

        1 – State Agencies
State: Virgin Islands
Maternal Child Health and Children with Special Health Care Needs Program Virgin Islands Department of Health 2C Estate Contant, AQ Building, 2nd Floor Charlotte Amalie St. Thomas , VI , 00802
(340) 776-3580
http://www.healthvi.org/index.php

State Web Site

        1 – State Agencies
State: Virgin Islands
Connect with your state’s official website to find all manner of state agencies and information, including how to contact your governor and/or your representatives in the Senate and House:
http://www.usvitourism.vi/official_business#government

UCEDD

        1 – State Agencies
State: Virgin Islands
Virgin Islands University Center for Excellence in Developmental Disabilities University of the Virgin Islands Office of the Provost and Senior Vice President #2 John Brewers Bay St. Thomas , VI , 00803
(340)693-1201
http://viucedd.org/

Vocational Education, Disabilities

        1 – State Agencies
State: Virgin Islands
Career, Technical and Adult Education Department of Education 1834 Kongens Gade Charlotte Amalie St. Thomas , VI , 00802-6746
(340) 776-3484
(340) 776-3488 (Fax)
http://www.doe.vi/11.html

Vocational Rehabilitation

        1 – State Agencies
State: Virgin Islands
Division Disabilities and Vocational Rehabilitation Services Department of Human Services Knud Hansen Complex, Building A 1303 Hospital Ground Charlotte Amalie St. Thomas , VI , 00802
(340) 774-0930
http://www.dhs.gov.vi/disabilities/index.html

Parent Training and Information Center (PTI)

        3 – Organizations for Parents
State: Virgin Islands
Virgin Islands Family Information Network on Disabilities (V.I.FIND) Inter Island Parent Coalition for Change, Inc. 9500 Wheatley Shopping Center II, Unit 8 P.O. Box 11670 St. Thomas , VI , 00802
(340) 774-1662
(340) 692-2323  (St. Croix)
(340) 513-8884 (Parent Hotline)
http://www.taalliance.org/ptis/vifind/

Independent Living

        4 – Other Disability Organizations
State: Virgin Islands
To find out the contact information for the Statewide Independent Living Council (SILC) in the Virgin Islands, contact: Independent Living Research Utilization Project The Institute for Rehabilitation and Research 2323 South Sheppard, Suite 1000 Houston , TX , 77019
(713) 520-0232 (V)
(713) 520-5136 (TTY)
http://www.ilru.org 

Independent Living

        4 – Other Disability Organizations
State: Virgin Islands
To find out the contact information for centers for independent living (CILs) in the Virgin Islands, contact: National Council on Independent Living 1710 Rhode Island Avenue, NW, 5th Floor Washington , DC  , 20036
(202) 207-0334 (V)
(202) 207-0340 (TTY)

NICU Maryland

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ADA Center

        1 – State Agencies
State: Maryland
Mid-Atlantic ADA Center 401 North Washington Street, Suite 450 Rockville , MD , 20805
(800) 949-4232 (V/TTY)
(301) 217-0124 (V/TTY)
http://www.adainfo.org

Assistive Technology

        1 – State Agencies
State: Maryland
Maryland Technology Assistance Program 2301 Argonne Drive, Room T-17 Baltimore , MD , 21218
(800) TECH-TAP (832-4827)
(866) 881-7488 (TTY)
h

Blind/ Visual Impairments/ Deaf-Blind


        1 – State Agencies
State: Maryland
Maryland School for the Blind 3501 Taylor Avenue Baltimore , MD , 21236
(410) 444-5000
ttp://www.mdod.state.md.us/MTAP Home.aspx

Career & Technical Education

        1 – State Agencies
State: Maryland
Division of Career Technology and Adult Learning 200 W. Baltimore Street Baltimore , MD , 21201
(410) 767-0158
http://www.marylandpublicschools.org

CHIP

        1 – State Agencies
State: Maryland
(health care for low-income uninsured children) Maryland Children’s Health Program For referral to your local program call:
(800) 456-8900
(800) 735-2258 (TTY)
http://www.dhmh.state.md.us/mma/mchp/

Deaf/Hard of Hearing

        1 – State Agencies
State: Maryland
Governor’s Office of the Deaf and Hard of Hearing 217 E. Redwood Street, Suite 1300 Baltimore , MD , 21202
(410) 767-6290 (V)
(410) 767-7756 (TTY)
http://www.odhh.md.gov/

Deaf/Hard of Hearing

        1 – State Agencies
State: Maryland
Maryland School for the Deaf 101 Clarke Place P.O. Box 250 Frederick , MD , 21705-0250
(301) 360-2005 (V/TTY)
http://www.msd.edu/

Department of Disabilities

1 – State Agencies
State: Maryland
Department of Disabilities 217 E. Redwood Street, Suite 1300 Baltimore , MD , 21202
(800) 637-4113
(410) 767-3660
http://www.mdod.maryland.gov

Developmental Disabilities

1 – State Agencies
State: Maryland
Developmental Disabilities Administration Department of Health and Mental Hygiene 201 W. Preston Street, Room 422C Baltimore , MD , 21201
(410) 767-5600
http://www.ddamaryland.org

Developmental Disabilities Council

        1 – State Agencies
State: Maryland
Maryland Developmental Disabilities Council 217 E. Redwood Street, Suite 1300 Baltimore , MD , 21202
(800) 305-6441 (in MD only)
(410) 767-3670 (V/TTY)
http://www.md-council.org

Early Intervention & Preschool, Disabilities

        1 – State Agencies
State: Maryland
Early Childhood Intervention and Education Division of Special Education/Early Intervention Services Maryland State Department of Education 200 W. Baltimore Street, 9th Floor Baltimore , MD , 21201
(410) 767-0261
(800) 535-0182 (in MD)
http://www.marylandpublicschools.org/MSDE/divisions/earlyinterv/

Mediation

        1 – State Agencies
State: Maryland
Office of Administrative Hearings 11101 Gilroy Road Hunt Valley , MD , 21031
(800) 388-8805
(410) 229-4210

Mental Health

        1 – State Agencies
State: Maryland
Mental Hygiene Administration Department of Health and Mental Hygiene Spring Grove Hospital Center 55 Wade Avenue, Dix Building Catonsville , MD , 21228
(800) 735-2258 (TTY)
(410) 402-8452
http://www.dhmh.state.md.us/mha/

Mental Health – Youth

        1 – State Agencies
State: Maryland
Mental Hygiene Administration Office of Child and Adolescent Services Department of Health and Mental Hygiene Spring Grove Hospital Center 55 Wade Avenue, Mitchell Building Catonsville , MD , 21228
(410) 402-8487

Protection & Advocacy

        1 – State Agencies
State: Maryland
Maryland Disability Law Center 1500 Union Avenue, Suite 2000 Baltimore , MD , 21211
(800) 233-7201
(410) 727-6352
(410) 727-6387 (TTY)
http://www.mdlcbalto.org

Relay Services

        1 – State Agencies
State: Maryland
(800) 201-7165 (V/TTY) (800) 735-2258 (TTY/HCO); 711 (TTY) (888) 826-9673 (VCO) (800) 785-5630 (Speech to Speech) (877) 735-5151 (ASCII) (877) 258-9854 (2-Line VCO) (800) 877-1264 (Spanish) (900) 344-3323 (pay per call, English) (900) 344-4889 (pay per call, Spanish)

Special Education

        1 – State Agencies
State: Maryland
Maryland State Department of Education Division of Special Education/Early Intervention Services 200 W. Baltimore Street, 9th Floor Baltimore , MD , 21201-2595
(410) 767-0238
http://www.marylandpublicschools.org/MSDE/divisions/earlyinterv/

Special Education: Ages 6 through 21

        1 – State Agencies
State: Maryland
Student Achievement and Professional Development Division of Special Education/Early Intervention Services 200 W. Baltimore Street, 9th Floor Baltimore , MD , 21201
(410) 767-0249
http://www.marylandpublicschools.org/MSDE/divisions/earlyinterv/

Special Format Books for Children and Youth

        1 – State Agencies
State: Maryland
Maryland State Library for the Blind and Physically Handicapped 415 Park Avenue Baltimore , MD , 21201-3603
(800) 964-9209
(800) 934-2541 (TTY outside Metro area)
(410) 230-2424
(410) 230-8679 (TTY)
http:// www.lbph.lib.md.us

Special Health Care Needs

        1 – State Agencies
State: Maryland
Parent Resource Coordinator Office for Genetics & People With Special Health Care Needs 201 W. Preston, #423 Baltimore , MD , 21201
(800) 638-8864
(410) 767-1063
http://fha.dhmh.maryland.gov/genetics/SitePages/contact.aspx

State Web Site

        1 – State Agencies
State: Maryland
Connect with your state’s official website to find all manner of state agencies and information, including how to contact your governor and/or your representatives in the Senate and House:
http://www.maryland.gov/

Transition Services

        1 – State Agencies
State: Maryland
Division of Special Education Maryland State Department of Education 200 W. Baltimore Street, 9th Floor Baltimore , MD , 21201
(410) 767-0231
http://www.msde.state.md.us/SpecialEducation/

UCEDD

        1 – State Agencies
State: Maryland
Maryland Center for Developmental Disabilities Kennedy Krieger Institute 7000 Tudsbury Road Gwynn Oak , MD , 21244
(443) 923-9555
(888) 554-2080
(443) 923-2645 (TTY)
http://mcdd.kennedykrieger.org/

Vocational Rehabilitation

        1 – State Agencies
State: Maryland
Maryland Division of Rehabilitation Services Workforce and Technology Center Maryland State Department of Education 2301 Argonne Drive Baltimore , MD , 21218-1696
(410) 554-9385
http://www.dors.state.md.us/

Attention Deficit Disorder

        2 – Disability-Specific Organizations
State: Maryland
To identify an ADD group in your state or locality, contact either: 

Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD) 8181 Professional Place, Suite 150 Landover , MD , 20785

(800) 233-4050 (Voice mail to request information packet)
(301) 306-7070
http://www.chadd.org

Attention Deficit Disorder

        2 – Disability-Specific Organizations
State: Maryland
Attention Deficit Disorder Association (ADDA) P.O. Box 543 Pottstown , PA , 19464-0543
(484) 945-2101
http://www.add.org

Autism

        2 – Disability-Specific Organizations
State: Maryland
Autism Society of Baltimore-Chesapeake Chapter PO Box 10822 Baltimore , MD , 21234
(410) 655-7933
http://www.bcc-asa.org

Autism

        2 – Disability-Specific Organizations
State: Maryland
Pathfinders for Autism P.O. Box 10501 Baltimore , MD , 21285
(866) 806-8400
(410) 769-9500
http://www.pathfindersforautism.org

Blind/Visual Impairments

        2 – Disability-Specific Organizations
State: Maryland
American Foundation for the Blind 11 Penn Plaza, Suite 300 New York , NY , 10001
(800) 232-5463
(212) 502-7600
http://www.afb.org

Blind/Visual Impairments

        2 – Disability-Specific Organizations
State: Maryland
Low Vision Center 7701 Woodmont Avenue, Suite 604 Bethesda , MD , 20814
(301) 951-4444
http://www.lowvisioninfo.org/

Brain Injury

        2 – Disability-Specific Organizations
State: Maryland
Brain Injury Association of Maryland 2200 Kernan Drive Baltimore , MD , 21207
(800) 221-6443 (in MD)
(410) 448-2924
http://www.biamd.org

Cerebral Palsy

        2 – Disability-Specific Organizations
State: Maryland
United Cerebral Palsy of Southern Maryland 1919A West Street Annapolis , MD , 21401
(410) 224-4205
http://www.ucpsm.org

Cerebral Palsy

        2 – Disability-Specific Organizations
State: Maryland
United Cerebral Palsy of Central Maryland 1700 Reisterstown Road, Suite 226 Baltimore , MD , 21208
(800) 451-2452
(410) 484-4540
http://www.ucp-cm.org

Cerebral Palsy

        2 – Disability-Specific Organizations
State: Maryland
United Cerebral Palsy of Prince George’s and Montgomery Counties, Inc. William Irwin Buck Center 4409 Forbes Boulevard Lanham , MD , 20706
(301) 459-0566
http://www.ucppgmc.com www.high-school-high-tech.com www.netathon.org

Epilepsy

        2 – Disability-Specific Organizations
State: Maryland
Abilities Network Epilepsy Foundation of the Chesapeake Region 8503 LaSalle Road Towson , MD , 21286
(800) 492-2523 (in MD only)
(410) 828-7700
http://www.abilitiesnetwork.org

Intellectual & Developmental Disabilities

        2 – Disability-Specific Organizations
State: Maryland
The Arc of Maryland, Inc. 49 Old Solomons Island Road, Suite 205 Annapolis , MD , 21401
(410) 571-9320
(410) 974-6139 (In Balt.)
http://www.thearcmd.org

Learning Disabilities

        2 – Disability-Specific Organizations
State: Maryland
LDA Maryland P.O. Box 744 Dunkirk , MD , 20754
(888) 265-6459
http://www.ldamd.org

Mental Health

        2 – Disability-Specific Organizations
State: Maryland
Mental Health Association of Maryland 711 W. 40th Street, Suite 460 Baltimore , MD , 21211
(800) 572-6426
(410) 235-1178
http://www.mhamd.org

Mental Health

        2 – Disability-Specific Organizations
State: Maryland
NAMI MD, National Alliance on Mental Illness of Maryland 10630 Little Patuxent Parkway Columbia , MD , 21044
(877) 878-2371
(410) 884-8691
http://namimd.org/

Speech, Language, and Hearing

        2 – Disability-Specific Organizations
State: Maryland
Maryland Speech-Language-Hearing Association P.O. Box 31 Manchester , MD , 21102
(410) 239-7770
http://www.mdslha.org

Spina Bifida

        2 – Disability-Specific Organizations
State: Maryland
Spina Bifida Association of Maryland 2416 Lamp Post Lane Baltimore , MD , 21234
(410) 665-1543

Tourette Syndrome

        2 – Disability-Specific Organizations
State: Maryland
Tourette Syndrome Association of Greater Washington 33 University Boulevard East Silver Spring , MD , 20901-2485
(877) 295-2148
(301) 681-4133
http://www.TSAGW.org

Other Parent Organization

        3 – Organizations for Parents
State: Maryland
Maryland Coalition of Families for Children’s Mental Health 10632 Little Patuxent Parkway, Suite 119 Columbia , MD , 21044
(888) 607-3637
(410) 730-8267
http://www.mdcoalition.org

Parent Teacher Association (PTA)

        3 – Organizations for Parents
State: Maryland
Maryland PTA 5 Central Avenue Glen Burnie , MD , 21061
(410) 760-6221
http://www.mdpta.org

Parent Training and Information Center (PTI)

        3 – Organizations for Parents
State: Maryland
Parents’ Place of Maryland, Inc. 801 Cromwell Park Drive, Suite 103 Glen Burnie , MD , 21061
(800) 394-5694
(410) 768-9100
http://www.ppmd.org

Parent-To-Parent

        3 – Organizations for Parents
State: Maryland
Family Support Services, Division of Special Education Early Intervention Services Maryland State Department of Education 200 W. Baltimore Street, 9th Floor Baltimore , MD , 21201
(800) 535-0182 (in MD only)
(410) 767-1019
http://www.msde.state.md.us

Independent Living

        4 – Other Disability Organizations
State: Maryland
To find out the contact information for the Statewide Independent Living Council (SILC) in your state, contact: Independent Living Research Utilization Project The Institute for Rehabilitation and Research 2323 South Sheppard, Suite 1000 Houston , TX , 77019
(713) 520-0232 (V)
(713) 520-5136 (TTY)
http://www.ilru.org

Independent Living

        4 – Other Disability Organizations
State: Maryland
To find out the contact information for centers for independent living (CILs) in your state, contact: National Council on Independent Living 1710 Rhode Island Avenue, NW, 5th Floor Washington , DC , 20036
(202) 207-0334 (V)
(202) 207-0340 (TTY)
http://www.ncil.org

Other

        4 – Other Disability Organizations
State: Maryland
Easter Seals Greater Washington-Baltimore Region, Inc. 4041 Powder Mill Road, Suite 100 Calverton , MD , 20705
(301) 931-8700
http://www.gwbr.easterseals.com

Other

        4 – Other Disability Organizations
State: Maryland
Family Net Works Program 217 E. Redwood Street, Suite 1300 Baltimore , MD , 21202
(301) 642-2277
http://www.family-networks.org

Other

        4 – Other Disability Organizations
State: Maryland
The Coordinating Center (for individuals with complex medical needs and disabilities) 8258 Veterans Highway, Suite 113 Millersville , MD , 21108
(410) 987-1048
(301) 621-7830
http://www.coordinatingcenter.org

Other

        4 – Other Disability Organizations
State: Maryland
Resource Finder (information on developmental disability resources) A project of Kennedy Krieger Institute 707 N. Broadway Baltimore , MD , 21205
(800) 390-3372
(443) 923-2795 (TTY)
http://www.resourcefinder.kennedykrieger.org

Other

        4 – Other Disability Organizations
State: Maryland
Easter Seals Delaware and Maryland’s Eastern Shore 1336 Belmont Ave Suite 502 Salisbury , MD , 21804
(800) 677-3800
(410) 546-2894

NICU Maine

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ADA Center

        1 – State Agencies
State: Maine
New England ADA Center 180-200 Portland Street, Suite 1 Boston , MA , 02114
(800) 949-4232 V/TTY)
(617) 695-1225 (V/TTY)
http://www.newenglandada.org 

Assistive Technology

        1 – State Agencies
State: Maine
ALLTech @ Spurwink 400 Riverside Street, Suite A4 Portland , ME , 04103
(207) 321-6080, Ext. 3314
http://www.alltech-tsi.org

Assistive Technology

        1 – State Agencies
State: Maine
Maine Consumer Information and Technology Training Exchange (Maine CITE) Maine CITE Coordinating Center University of Maine System, University College 46 University Drive Augusta , ME , 04330
(207) 621-3195 (V)
(207) 621-3482 (TTY)
http://www.mainecite.org

Blind/ Visual Impairments/ Deaf-Blind

        1 – State Agencies
State: Maine
Division for the Blind and Visually Impaired Bureau of Rehabilitation Services 150 State House Station Augusta , ME , 04333-0150
(207) 623-7956
http://www.maine.gov/rehab/

Blind/ Visual Impairments/ Deaf-Blind

        1 – State Agencies
State: Maine
Education Services for Blind and Visually Impaired Children Catholic Charities Maine 1066 Kenduskeag Avenue  Bangor , ME , 04401
(207) 941-2855
http://www.catholiccharitiesmaine.org/ 

Career & Technical Education

        1 – State Agencies
State: Maine
Career and Technical Education Team Department of Education 23 State House Station Augusta , ME , 04333-0023
(207) 624-6747
http://www.maine.gov/education/

CHIP

        1 – State Agencies
State: Maine
(health care for low-income uninsured children) MaineCare 442 Civic Center Drive Augusta , ME , 04333
(800) 321-5557 (option 1)
(207) 624-7539
http://www.maine.gov/dhs/bfi/cubcare/CubCare.htm

D D Council

        1 – State Agencies
State: Maine
Maine Developmental Disabilities Council 139 State House Station 225 Western Avenue Augusta , ME , 04333
(800) 244-3990 (in ME only)
(207) 287-4213
http://www.maineddc.org

Deaf/Hard of Hearing

        1 – State Agencies
State: Maine
Governor Baxter School for the Deaf Mackworth Island Falmouth , ME , 04105
(207) 781-6215 (Newborn to age 5)
(207) 781-6244 (Grades K – 12)

Developmental Disabilities, Adults

        1 – State Agencies
State: Maine
Office of Adults with Cognitive and Physical Disability Department of Health and Human Services #11 State House Station Marquardt Building, 2nd Floor Augusta , ME , 04333
(207) 287-4242
(207) 287-2000 (TTY)
http://www.maine.gov/dhhs/OACPDS/

Early Intervention

        1 – State Agencies
State: Maine
Contact Programs for Children with Disabilities: Ages 3 Through 5.

Mediation

        1 – State Agencies
State: Maine
Office of Special Services, Due Process 23 State House Station Augusta , ME , 04333-0023
(207) 624-6644
http://www.maine.gov/education/speced/specserv.htm

Mental Health

        1 – State Agencies
State: Maine
Department of Health and Human Services 11 State House Station 221 State Street  Augusta , ME , 04333
(207) 287-3707
http://www.maine.gov/dhhs

Mental Health – Youth

        1 – State Agencies
State: Maine
Children’s Behavioral Health Services Department of Health and Human Services 11 State House Station Augusta , ME , 04333
(207) 287-8769
http://www.maine.gov/dhhs/ocfs/cbhs/

Preschool, Disabilities

        1 – State Agencies
State: Maine
Child Development Services 146 State House Station Augusta , ME , 04333
(800) 355-8611
(207) 624-6660
http://www.maine.gov/education/

Protection & Advocacy

        1 – State Agencies
State: Maine
Disability Rights Center 24 Stone Street, Suite 204 Augusta , ME , 04330
(800) 452-1948 (V/TTY in ME)
(207) 626-2774 (V/TTY)
http://www.drcme.org

Relay Services

        1 – State Agencies
State: Maine
(800) 457-1220 (V)
(800) 437-1220 (TTY); 711 (TTY)
(800) 229-5746 (Speech to Speech-English)
(866) 260-9470 (Speech to Speech-Spanish)

Special Education

        1 – State Agencies
State: Maine
Department of Education Office of Special Services 23 State House Station Augusta , ME , 04333-0023
(207) 624-6650
(207) 624-6800 (TTY)
http://www.maine.gov/education/speced/specserv.htm

Special Format Library

        1 – State Agencies
State: Maine
Library Services for the Blind and Physically Handicapped Maine State Library 64 State House Station Augusta , ME , 04333-0064
(800) 762-7106
(207) 287-5650
http://www.maine.gov/msl/outreach 

Special Health Care Needs

        1 – State Agencies
State: Maine
Children with Special Health Needs Program Department of Health and Human Services Key Bank Plaza, 7th Floor 11 State House Station Augusta , ME , 04333-0011
(800) 698-3624
(207) 287-5139, ext. 5350
(207) 287-8015 (TTY)

State Web Site

        1 – State Agencies
State: Maine
Connect with your state’s official website to find all manner of state agencies and information, including how to contact your governor and/or your representatives in the Senate and House:
http://www.maine.gov

Transition Services

        1 – State Agencies
State: Maine
Office of Special Services Maine Department of Education 23 State House Station Augusta , ME , 04333
(207) 624-6648
http://www.maine.gov/education/speced/specserv.htm

UCEDD

        1 – State Agencies
State: Maine
University Center for Excellence in Developmental Disabilities The University of Maine Center for Community Inclusion and Disability Studies 5717 Corbett Hall Orono , ME , 04469-5717
(800) 203-6957
(207) 581-1084
http://www.ccids.umaine.edu

Vocational Rehabilitation

        1 – State Agencies
State: Maine
Bureau of Rehabilitation Services Department of Labor 150 State House Station Augusta , ME , 04333-0150
(207) 623-7944
http://www.maine.gov/rehab/

Attention Deficit Disorder

        2 – Disability-Specific Organizations
State: Maine
To identify an ADD group in your state or locality, contact either: 

Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD) 8181 Professional Place, Suite 150 Landover , MD , 20785

(800) 233-4050 (Voice mail to request information packet)
(301) 306-7070
http://www.chadd.org 

Attention Deficit Disorder

        2 – Disability-Specific Organizations
State: Maine
Attention Deficit Disorder Association (ADDA) P.O. Box 543  Pottstown , PA , 19464-0543
(484) 945-2101
http://www.add.org

Autism

        2 – Disability-Specific Organizations
State: Maine
Autism Society of Maine 72B Main Street Winthrop , ME , 04364
(800) 273-5200
http://www.asmonline.org

Blind/Visual Impairments

        2 – Disability-Specific Organizations
State: Maine
American Foundation for the Blind 11 Penn Plaza, Suite 300  New York , NY , 10001
(800) 232-5463
(212) 502-7600
http://www.afb.org

Brain Injury

        2 – Disability-Specific Organizations
State: Maine
Brain Injury Association of Maine 325 Main Street Waterville , ME , 04901
(800) 275-1233 (in ME)
(207) 861-9900
http://www.biame.org 

Cerebral Palsy

        2 – Disability-Specific Organizations
State: Maine
United Cerebral Palsy of Northeastern Maine 700 Mt. Hope Avenue, Suite 320  Bangor , ME , 04401
(207) 941-2885
(207) 941-2952 (V/TTY)
http://www.ucpofmaine.org

Deaf/Hard of Hearing

        2 – Disability-Specific Organizations
State: Maine
Maine Center on Deafness (MCD) 68 Bishop Street, Suite 3 Portland , ME , 04103
(800) 639-3884 (V/TTY)
(207) 797-7656 (V/TTY);
http://www.mcdmaine.org 

Epilepsy

        2 – Disability-Specific Organizations
State: Maine
Epilepsy Foundation Massachusetts, Rhode Island, New Hampshire & Maine 540 Gallivan Blvd, 2nd Floor Boston , MA , 02124
(888) 576-9996
(617) 506-6041
http://www.efmarinhme.org

Learning Disabilities

        2 – Disability-Specific Organizations
State: Maine
Learning Disabilities Association of Maine P.O. Box 67  Oakland , ME , 04963
(877) 208-4029
(207) 465-7700
http://www.ldame.org

Learning Disabilities

        2 – Disability-Specific Organizations
State: Maine
New Hampshire Branch of the International Dyslexia Association (also serving Vermont and Maine) P.O. Box 3724 Concord , NH , 03302
(603) 229-7355
http://www.nhida.org 

Mental Health

        2 – Disability-Specific Organizations
State: Maine
NAMI Maine, National Alliance on Mental Illness 1 Bangor Street Augusta , ME , 04330
(800) 464-5767 (in ME only)
(207) 622-5767
http://www.namimaine.org

Speech, Language, and Hearing

        2 – Disability-Specific Organizations
State: Maine
Maine Speech-Language-Hearing Association Strong Elementary School 110 N. Main Street
Strong , ME , 04983
(207) 491-5219
http://www.mslha.org/ 

Spina Bifida

        2 – Disability-Specific Organizations
State: Maine
Spina Bifida Association of Maine P.O. Box 11166 Portland , ME , 04104
(207) 675-3589

Tourette Syndrome

        2 – Disability-Specific Organizations
State: Maine
Maine/New Hampshire Chapter of the Tourette Syndrome Association
(877) 368-9800
(207) 428-3040
http://www.tsa-maine.org 

Other Parent Organization

        3 – Organizations for Parents
State: Maine
Mainely Parents 188 State Street, Suite 400 Portland , ME , 04101
(800) 249-5506
(207) 842-2984
http://www.mainelyparents.org

Parent Teacher Association (PTA)

        3 – Organizations for Parents
State: Maine
Maine PTA Zone Corporation P.O. Box 1929  Bangor , ME , 04402
(207) 852-6683
http://www.mainepta.org 

Parent Training and Information Center (PTI)

        3 – Organizations for Parents
State: Maine
Maine Parent Federation P.O. Box 2067 Augusta , ME , 04338-2067
(800) 870-7746 (in ME)
(207) 623-2144
http://www.mpf.org 

Parent-To-Parent

        3 – Organizations for Parents
State: Maine
Contact Parent Training and Information Center.

Independent Living

        4 – Other Disability Organizations
State: Maine
To find out the contact information for the Statewide Independent Living Council (SILC) in your state, contact: Independent Living Research Utilization Project The Institute for Rehabilitation and Research 2323 South Sheppard, Suite 1000 Houston , TX , 77019
(713) 520-0232 (V)
(713) 520-5136 (TTY)
http://www.ilru.org

Independent Living

        4 – Other Disability Organizations
State: Maine
To find out the contact information for centers for independent living (CILs) in your state, contact: National Council on Independent Living 1710 Rhode Island Avenue, NW, 5th Floor  Washington , DC , 20036
(202) 207-0334 (V)
(202) 207-0340 (TTY)
http://www.ncil.org

Other

        4 – Other Disability Organizations
State: Maine
Pine Tree Society Discovering abilities together 149 Front Street Bath , ME , 04530
(207) 443-3341 (V/TTY)
http://www.pinetreesociety.org

Other

        4 – Other Disability Organizations
State: Maine
VSA Arts of Maine (Statewide art opportunities for children and adults with disabilities) P.O. Box 4002 Portland , ME , 04101
(207) 761-3861 (V/TTY)

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