NICU Washington

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ADA Center

        1 – State Agencies
State: Washington
Northwest ADA Center Center for Continuing Education in Rehabilitation University of Washington 6912 220th St SW, #105 Mountlake Terrace , WA , 98043
(425) 248-2480 (V/TTY)
(800) 949-4232 (V/TTY)
http://www.nwadacenter.org

Assistive Technology

        1 – State Agencies
State: Washington
Washington Assistive Technology Act Program University of Washington Center for Technology & Disability Studies UW Mailbox 357920 Seattle , WA , 98195-7920
(206) 685-4181
(800) 214-8731 (I&R)
(206) 616-1396 (TTY)
http://wata.org

Blind/Visual Impairments

        1 – State Agencies
State: Washington
Department of Services for the Blind P.O. Box 40933 Olympia , WA , 98504-0933
(360) 725-3835
(800) 552-7103
http://www.dsb.wa.gov

CHIP

        1 – State Agencies
State: Washington
(health care for low-income uninsured children) The CHIP Program Washington State Department of Social and Health Services
(877) 543-7669
http://fortress.wa.gov/dshs/maa/CHIP/Index.html

D D Council

        1 – State Agencies
State: Washington
Washington Developmental Disabilities Council 2600 Martin Way E, Suite F Olympia , WA , 98504
(360) 586-3566
(800) 634-4473
http://www.ddc.wa.gov

Deaf-Blind

        1 – State Agencies
State: Washington
Washington State Services for Children with Deaf-Blindness 800 Oakesdale Avenue, S.W. Renton , WA , 98057-5221
(425) 917-7827 (V/TTY)
(800) 572-7000 (in WA)
http://www.wsdsonline.org

Deaf/Hard of Hearing

        1 – State Agencies
State: Washington
Office of Deaf and Hard of Hearing Dept. of Social & Health Services P.O. Box 45301 Olympia , WA , 98504-5301
(360) 902-8000 V/TTY
(800) 422-7930 (V/TTY)
(360) 902-0855 (Fax)
(360) 339-7382 (Videophone)
http://odhh.dshs.wa.gov

Developmental Disabilities

1 – State Agencies
State: Washington
Division of Developmental Disabilities Department of Social and Health Services P.O. Box 45310 Olympia , WA , 98504-5310
(360) 725-3413
http://www.dshs.wa.gov/ddd

Early Intervention

        1 – State Agencies
State: Washington
Infant Toddler Early Intervention Program Division of Developmental Disabilities Department of Social and Health Services P.O. Box 45201 Olympia , WA , 98504-5201
(800) 322-2588
(360) 725-3500
http://del.wa.gov/development/esit/Default.aspx

Mediation

        1 – State Agencies
State: Washington
Sound Options Group, LLC 197 Parfitt Way, S.W., Suite 220 P.O. Box 11457 Bainbridge Island , WA , 98110
(206) 842-2298
(800) 692-2590
http://www.soundoptionsgroup.com

Mental Health

        1 – State Agencies
State: Washington
Mental Health Division Department of Social and Health Services P.O. Box 45320 Olympia , WA , 98504-5320
(360) 902-0790

Preschool, Disabilities

        1 – State Agencies
State: Washington
Early Childhood Services Special Education Learning Improvement Office of Superintendent of Public Instruction P.O. Box 47200 Olympia , WA , 98504-7200
(360) 725-6075
http://www.k12.wa.us

Protection & Advocacy

        1 – State Agencies
State: Washington
Disability Rights Washington 315 Fifth Avenue South, Suite 850 Seattle , WA , 98104
(206) 324-1521
(206) 957-0728 (TTY)
(800) 562-2702 (nationwide)
(800) 905-0209 (TTY)
http://www.disabilityrightswa.org

Relay Services

        1 – State Agencies
State: Washington
(800) 833-6384 (Voice)
(800) 833-6388 (TTY); 711 (Voice or TTY)
(800) 833-6385 (Telebraille)
(877) 833-6341 (Speech-to-Speech)
http://www.washingtonrelay.com/

Special Education

        1 – State Agencies
State: Washington
Special Education Operations Office of Superintendent of Public Instruction P.O. Box 47200 Olympia , WA , 98504-7200
(360) 725-6075
http://www.k12.wa.us/specialed

Special Format Library

        1 – State Agencies
State: Washington
Washington Talking Book and Braille Library 2021 9th Avenue Seattle , WA , 98121-2783
(206) 615-0400
(800) 542-0866
(206) 615-0418 (TTY)
http://www.wtbbl.org

Special Health Care Needs

        1 – State Agencies
State: Washington
Children with Special Health Care Needs Community and Family Health Department of Health P.O. Box 47880 Olympia , WA , 98504-7880
(360) 236-3573

State Web Site

        1 – State Agencies
State: Washington
Connect with your state’s official website to find all manner of state agencies and information, including how to contact your governor and/or your representatives in the Senate and House:
http://www.access.wa.gov/

Transition Services

        1 – State Agencies
State: Washington
Center for Change in Transition Services College of Education, Seattle University P.O. Box 222000 Seattle , WA , 98122-4340
(206) 296-5888
http://www.seattleu.edu/ccts

UCEDD

        1 – State Agencies
State: Washington
Center on Human Development and Disabilities University of Washington Center on Human Development and Disability PO Box 357920 Seattle , WA , 98195-7920
(206) 543-2832
http://www.depts.washington.edu/chdd

Vocational Education, Disabilities

        1 – State Agencies
State: Washington
Career and Technical Education Office of Superintendent of Public Instruction P.O. Box 47200 Olympia , WA , 98504-7200
(360) 725-6245
http://www.k12.wa.us/careerteched

Vocational Rehabilitation

        1 – State Agencies
State: Washington
Division of Vocational Rehabilitation Department of Social and Health Services P.O. Box 45340 Olympia , WA , 98504-5340
(360) 725-3610
(800) 637-5627 (V/TTY)
http://www1.dshs.wa.gov/dvr

Attention Deficit Disorder

        2 – Disability-Specific Organizations
State: Washington
To identify an ADD group in your state or locality, contact either: 

Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD) 8181 Professional Place, Suite 150 Landover , MD , 20785

(301) 306-7070
(800) 233-4050
http://www.chadd.org

Attention Deficit Disorder

        2 – Disability-Specific Organizations
State: Washington
Attention Deficit Disorder Resources 1818 Westlake Avenue N Suite 229 Seattle , WA , 98109
(206) 724-0599
http://www.addresources.org

Autism

        2 – Disability-Specific Organizations
State: Washington
Autism Outreach Project 1601 R Avenue Anacortes  , WA , 98221
(360) 299-4071
(888) 704-9633
http://www.nwesd.org/autism

Autism

        2 – Disability-Specific Organizations
State: Washington
Autism Society Washington Chapter PO Box 503 Olympia , WA , 98507-0503
(360) 515-8910
http://www.autismsocietyofwa.org

Blind/Visual Impairments

        2 – Disability-Specific Organizations
State: Washington
American Foundation for the Blind 11 Penn Plaza, Suite 300 New York , NY , 10001
(212) 502-7600
(800) 232-5463
http://www.afb.org

Blind/Visual Impairments

        2 – Disability-Specific Organizations
State: Washington
Community Services for the Blind & Partially Sighted 9709 Third Avenue N.E., Suite 100 Seattle , WA , 98115-2027
(206) 525-5556
http://www.csbps.com www.sightconnection.com (Adaptive Aids Store)

Brain Injury

        2 – Disability-Specific Organizations
State: Washington
Brain Injury Association of Washington 3516 S. 47th Street, Suite 100 Tacoma , WA , 98409
(253) 238-6085
(800) 523-5438 (in WA)
http://www.biawa.org

Brain Injury

        2 – Disability-Specific Organizations
State: Washington
Head Injury Support Group St. Peter Hospital 413 Lilly Road N.E.
Olympia , WA , 98506

Epilepsy

        2 – Disability-Specific Organizations
State: Washington
Epilepsy Foundation Northwest 2311 N. 45th Street, #134 Seattle , WA , 98103
(206) 547-4551
http://www.epilepsynw.org

Intellectual & Developmental Disabilities

        2 – Disability-Specific Organizations
State: Washington
The Arc of Washington State 2638 State Avenue N.E. Olympia , WA , 98506
(360) 357-5596, ext. 104
(888) 754-8798 (in WA)
http://www.arcwa.org

Learning Disabilities

        2 – Disability-Specific Organizations
State: Washington
Learning Disabilities Association of Washington 16315 NE 87th Street, Suite 11 Redmond , WA , 98052
(425) 882-0820
http://www.ldawa.org

Speech, Language, and Hearing

        2 – Disability-Specific Organizations
State: Washington
Washington Speech-Language-Hearing Association 2150 N. 107th Street, Suite 205 Seattle , WA , 98133-9009
(206) 367-8704
http://www.wslha.org
3 – Organizations for Parents
State: Washington
(Serving Seattle/Tacoma Area) Parent to Parent Power 2212 South 12th Tacoma , WA , 98405
(253) 777-1475
http://www.p2pp.org/

Community Parent Resource Center

        3 – Organizations for Parents
State: Washington
Open Doors for Multi Cultural Families 4327 S. 253rd Street Kent , WA , 98032
(206) 372-1072
http://www.multiculturalfamilies.org

Parent Teacher Association (PTA)

        3 – Organizations for Parents
State: Washington
Owen Atkins, Interim Executive Director Washington State PTA 2003 65th Avenue West Tacoma , WA , 98466-6215
(253) 565-2153
(800) 562-3804 (in WA only)
http://www.wastatepta.org

Parent Training and Information Center (PTI)

        3 – Organizations for Parents
State: Washington
PAVE Washington State Parent Information and Training Center 6316 S. 12th Street Tacoma , WA , 98465-1900
(253) 565-2266 (V/TTY)
(800) 572-7368 (V/TTY)
http://www.wapave.org

Parent Training and Information Center (PTI)

        3 – Organizations for Parents
State: Washington
(Serving military families nationwide who have children with special education or health needs) Specialized Training of Military Parents (STOMP) PAVE 6316 S. 12th Street, Suite B Tacoma , WA , 98465
(253) 565-2266 (V/TTY)
(800) 572-7368 (V/TTY)
http://www.stompproject.org

Parent-To-Parent

        3 – Organizations for Parents
State: Washington
Washington State P2P Programs State Coordinating Office 2638 State Avenue N.E. Olympia , WA , 98506
(425) 641-7504
(800) 821-5927
http://www.arcwa.org

Independent Living

        4 – Other Disability Organizations
State: Washington
To find out the contact information for the Statewide Independent Living Council (SILC) in your state, contact: Independent Living Research Utilization Project The Institute for Rehabilitation and Research 2323 South Sheppard, Suite 1000 Houston , TX , 77019
(713) 520-0232 (V)
(713) 520-5136 (TTY)
http://www.ilru.org

Independent Living

        4 – Other Disability Organizations
State: Washington
To find out the contact information for centers for independent living (CILs) in your state, contact: National Council on Independent Living 1710 Rhode Island Avenue, NW, 5th Floor Washington, DC 20036
(202) 207-0334 (V)
(202) 207-0340 (TTY)
http://www.ncil.org

Other

        4 – Other Disability Organizations
State: Washington
PROVAIL 3670 Stoneway North Seattle , WA , 98103
(206) 363-7303
(206) 440-2206 (TTY)
http://www.provail.org

Other

        4 – Other Disability Organizations
State: Washington
Easter Seals Washington 220 W. Mercer, Suite 120 West Seattle , WA , 98119
(206) 281-5700 (V/TTY)
(800) 678-5708
http://www.wa.easterseals.com

Other

        4 – Other Disability Organizations
State: Washington
PAVE Infant/Toddler Early Intervention Program 6316 S. 12th Street Tacoma , WA , 98465
(360) 701-7012 (V/TTY)
(800) 572-7368
(253) 565-2266 (V/TTY)
http://www.wapave.org

Other

        4 – Other Disability Organizations
State: Washington
Summit Assistance Dogs 7575 Chestnut Lane Anacortes , WA , 98221
(360) 293-5609
http://www.summitdogs.org

Other

        4 – Other Disability Organizations
State: Washington
VSA arts of Washington 305 Harrison Street, Suite 303 Seattle , WA , 98109
(206) 443-1843
http://www.vsaaw.org

Other

        4 – Other Disability Organizations
State: Washington
Washington State Fathers Network Kindering Center 16120 N.E. 8th Street Bellevue , WA , 98008-3937
(425) 747-4004, ext. 4286
http://www.fathersnetwork.org

Other

        4 – Other Disability Organizations
State: Washington
Families Together 213 Smith Gym 213 D Pullman , WA , 99164
(509) 335-2321
(866) 326-4864

Toddler to Teen Photos

These are photos shared by stillbirthday families, of their children who lived and who died.  You can click this link to return to photos main.

Newborn to Toddler Photos

The photos of babies held here have been shared by stillbirthday families.  They are our babies who died after birth, from the ages of newborn to toddlerhood.   (You can click here to return to photos main).

I praise you, for I am fearfully and wonderfully made; my soul knows it very well.”

Psalm 139:14 ESV

Selective Reduction

& TFMR Resources

This section includes facing the decision of termination for medical reasons in a singleton (TMFR) 
or in a multiples pregnancy (selective reduction).

.

Selective Reduction is a difficult decision families may face when pregnant with multiples.  If one or more multiple potentially pose a danger to the health or wellbeing of the mother and/or siblings, the pressure to face this difficult decision may be even greater. Because there are many different facets to such a difficult decision, we’ve divided them here to start with a general platform, simply to remind you that very fact – that there are many facets to such a difficult decision.

Regarding Loss after Medically Assisted Conception

Regarding Selective Reduction specifically Here are external links to resources that are specific to selective reduction:

  • In Embracing Laura , Martha Wegner-Hay tells her story of grief and joy after discovering she was pregnant with twins, that one twin would not survive, and giving birth to her healthy son, David. After being told that one of her twins had almost no chance of survival and that the sick baby could affect the chance of survival of the healthy twin, Wegner-Hay and her family made the difficult choice of selective reduction. Embracing Laura tells of the wrenching collision of sadness at Laura’s death, and the joyous experience of David’s healthy birth.
  • Outside the Circle of Grief

Regarding Decisions & Loss

  • Prenatal Testing support
  • In a deep desire to be sensitive, one of the facets of such a decision does include TFMR (termination for medical reasons), the intentional termination of life of one or more of the babies, and so with this introduction to this facet you might visit our starting place for elective abortion as it does hold information that may be applied into the very specific situation of TFMR such as selective reduction as well.

Regarding NICU

  • The NICU can be a difficult place to be in, emotionally, for any reason you may be there.  Our NICU support resources are here to help.

Regarding Multiples

  • Here is our start page regarding multiples, which links to additional outside resources for pregnancy challenges and support, birth plans and bereavement support.

43 Weeks Photos

(go back)

lloyd harper

“My sweet son who left the body during labor , I miss him with my every breath”

Before I formed you in the womb I knew you,” says the Lord.

Jeremiah 1:5

Living Grief

(go back to types of loss)

Whether your experience involves the NICU, surrogacy, fostering, adoption, divorce or birth trauma, if in any way your experience includes grieving your losses of a child who is still alive, we are honored to hold your story here at stillbirthday.  You are not alone.  I invite you, to share your story of what we call Living Grief – that is, grieving someone – or, aspects of your relationship with someone – who is still alive.  We also have a section of stories here  at stillbirthday called Stewarding Grief, a place to share about the difficult decision NOT to try to conceive.

Here is a list of helpful resources specific to the reality of NICU grief.

Our collection of resources and support for Child Death also speaks into numerous situations in which there is a combined parental role of both mourning and rearing children.

 

You can always simply share your story, and it will be added into the story places that it fits in best.

 

{   Please, visit our Child Death page of resources and support  }

 

 

Maternal Death

A staggering number of beloved babies die during pregnancy, birth and shortly after birth.  And, mothers die during these times, as well.  Some studies indicate that every 90 seconds a mother dies in childbirth.

In some pregnancy situations, it is known before the birth that childbirth is a potential danger to the mother’s life, as in most ectopic pregnancy and in some elective abortion situations.  And in other situations the death of the mother is sudden and unexpected.  Below are some resources and support.  You are also invited to share your story of losing a mother /spouse during pregnancy, childbirth or shortly after birth.  These stories are held in our Maternal Death collection of stories.

These sections below are always being filled in.  Please check back soon for more resources.

General Bereavement Support

While some of the aspects of loss can be universally incorporated, such as:

Below are resources and support specific to maternal death:

Needs of the Motherless Newborn

  • smells of mother, breastmilk, how to change a diaper, skin-to-skin with father, safety
  • long term needs of the motherless child

Needs of the Suddenly Single Parent

  • employment related concerns, FMLA, postpartum doula (guidance in caring for the newborn, sleep, rest, space for planning, permission to grieve), farewell planning support, bereavement support
  • challenges associated with identifying maternal support for children
  • when the time may be right in his life, to allow for an intimate relationship for himself

Prevention & Support Resources

Spiritual & Emotional Support

1reedsofhope

Honoring Uncertainty

Something happened.  Something was… different.

You came to stillbirthday, you looked through our list of losses that we support, read a few of their descriptions – in particular, Chemical Pregnancy.

You looked at some of the photos we hold here at stillbirthday.

But… you’re just not sure.

Everything seemed to happen so fast:

You felt pregnant, and then all of a sudden, you were met with blood.

Maybe lots of blood, and maybe with deeply painful cramping.

No real pregnancy test, there just wasn’t time.

This was… something different.

There are many reasons why your cycle might change, even abruptly.

Sudden stress, including financial, social, or marital stress might impact your menstrual cycle.

Deep and longstanding stress might also impact your menstrual cycle.

Nutrition and self care also might have an impact.

Some mothers report a change in menstrual cycle after a big move, and there is something to be said for large sorority-type events that have a strong emphasis on women or motherhood.  Examples might include women’s rape survivor rallies, sexual trafficking fundraising or women’s rights in childbirth conferences.

These things and more might have an otherwise unexplained change in your menstrual cycle.

Additionally, through our season of our menstruation, it is entirely possible, and even medically normal, to have an occasional menstrual cycle that is simply different.

And by different, any number of experiences might occur:

Your menstrual cycle might appear later, sooner, lighter or heavier than you usually experience.

If you have discussed these things with your doctor or midwife and still just feel unsure about what you experienced,

please know that here at stillbirthday, we honor your uncertainty.

The feeling of uncertainty isn’t easier and it surely isn’t simpler than bereavement.

Many mothers will resolve themselves to
“Well, I’ll never know this side of eternity.”

And that can be a lonely, painful place to be.

Please know, you aren’t alone.

And in a time that seems so very fast moving, with answers for most things readily available, even for early pregnancy tests, it can seem frustrating and disappointing not to have a certain answer.

If you believe you may have experienced loss but don’t have anything to “prove” it, we validate you.

You are invited to share your story here as well: please remember that sharing your story at stillbirthday is a way to express your feelings and share your experiences with other mothers – it is not to diagnose, treat or answer any medical questions.

You might visit our farewell celebrations for ideas to celebrate your “Maybe Baby”.

 

42 Weeks Gestation Baby

(go back)

Silas Bengt Hoffman, born into heaven September 13, 2014 at 42+2 weeks gestation. 8 lbs 8 oz, 21 3/4" long.

Silas Bengt Hoffman, born into heaven September 13, 2014 at 42+2 weeks gestation. 8 lbs 8 oz, 21 3/4″ long.

Let the little children come to me…for the Kingdom of God belongs to such as these.”

Mark 10:14

Photo 15 Gestation Weeks

aemon2

However you treated the least of my brothers or sisters, you treated me,” says the Lord.

Matthew 25:40 

The SBD® Doula provides support to families experiencing birth in any trimester and in any outcome.

Here at stillbirthday.info, you can learn about the SBD® Doula.