We Have to Fall Together

Told by: Rebecca

We met her last autumn in that tiny Goodwill, among the shelves of books that no one had a use for any longer. She began silently passing books to our girls that she thought they’d like. She noticed our nine year old’s current fascination with weather, and located a few on hurricanes. I left my husband with the girls as I browsed past the books and into the clothing racks. I found a few peasant skirts I fancied with elastic waistbands I could alter to fit. Within a few minutes he came over to me with eyes intense. “Come here. We need to pray for this woman, together.” She shared with us that just a few months earlier her only child, a son only a few months old, had died tragically in an accident. He had choked on something at day care while she was at work. Her tired face and eyes said that it felt like yesterday. Still so fresh and raw. We listened. We grieved with her. We encouraged. And we lifted her up. We prayed together, there in the private back corner of a Goodwill.

We exchanged information, that I regretfully lost pretty quickly, and we haven’t seen her again. Until tonight.

One week and four days since our fifth daughter, Jane Malise, was born to heaven. And on the very day that marked the one year anniversary of the death of her baby boy. This was beyond coincidence. This was Providence.

She started out the conversation in the cold grocery parking lot. “Aren’t you the woman from Goodwill?” I laughed yes. We hugged.

She smiled through tears and blurted out the significance of today. I said I was so glad to see her today then. I didn’t hesitate and vomited out more words to add to the grief pot. “We lost a baby less than two weeks ago. Her name was Jane.” We hugged again.

And this time she said how glad she was to see me today. Providence.

I explained that I couldn’t have looked at her today with the heart I have now if this hadn’t happened. She said she understood. Which was so dern good to hear and know that she meant it. She did understand.

I told her how angry and hurt I am today. Yes, terribly missing my baby. But more angry at ignorant people. I’m angry that people expect me to just move on. I’m angry that out of the true goodness of their hearts they say things so extremely ridiculous and unknowingly hurtful to mothers who have lost a child to miscarriage.

Things like this: “It was God’s plan… she obviously fulfilled her purpose… God was merciful to your family in protecting you from the burden of caring for a disabled child… at least you know she’s in heaven and you’ll see her again… at least you have kids already, you should be thankful for them… buck up, don’t worry, y’all got a good track record, you’ll have another… at least it wasn’t one of your other children… at least you weren’t much further along because that would have been harder… at least… at least… at least…”

I was shivering in the parking lot tonight as we talked, but neither one of us wanted our conversation to end. We needed each other. We needed each other TODAY.

She held me as I sobbed my first real good sob since the day I saw Jane’s precious little, lifeless body on the ultrasound screen. One week and four days ago since I lay there on the exam table bleeding my littlest one out on a sheet. One week and four days since no one thought to pass along that information to the lab tech in the next room who took my blood and asked happily, “Oh, you’re pregnant! How far along are you? Is this your first?”

I just looked at her a few seconds not knowing what to say, then said just louder than a whisper, “No mam, she’s our fifth daughter.” Because she was. “I’ll always wonder who she would have been!” I heard myself saying through broken sobs as this woman in the parking lot held me tighter. She said simply, “Me too.” “I know it would have been different if I held her alive and knew her like you did your son…” I apologized. “Grief is grief,” she said.

Grief. Is. Grief.

She, this woman who held her living son, who fed him, played with him, laughed with him, soothed his tears, wiped his nose, video taped his first crawl… She saw no difference in the devastation. She saw lives lost. She saw a mother’s grief.

“What if you held the hand of a grieving mom who miscarried at 4 weeks, 6 weeks, 18 weeks or more? What if you never compared the loss of a 4-weeker to a 20-weeker? What if you never said anything that started with, “At least . . . ” What if you didn’t try to stifle her tears? What if you welcomed them? And matched her tears with your own? What if you held back any trite, easy answers that promised God’s will and promised easy comfort? What if you just wrapped your arms around her the way Christ would?

What if you made that meal, bought those flowers and wrote that card? What if you went to the hospital and sat in the waiting room for her, even if you wouldn’t see her? Just because she is your friend. Just because that’s what you do when someone is sick in the hospital or their child is dying. What if you called her child by name? What if you went to the service if they planned one? What if you helped her find a support group? What if you offered to go with her? What if you prayed constantly for that hole in her heart that will one day scab, one day scar, but will never fully heal? What if all your actions when dealing with loss of any kind, affirmed that fact that all life — ALL LIFE — is good, worthy of recognition and worthy of grief. What if you didn’t just affirm to the world that all babies are valuable — but you also affirmed to a bereaved mom that HER baby was irreplaceable, and would forever be missed?

‘A person is a person, no matter how small.'” -Rachel Lewis @ The Lewis Note [dot[ blogspot [dot] com

“We have to fall together,” she said as she brought her hands toward one another, “or we’ll fall apart.”

Suffering transcends difference. The art of solidarity. Providence. “There is a support group that a woman leads that I go to sometimes,” she said. “She lost her 6 week old baby now 30 years ago, and she uses writing to heal; uses writing prompts to lead us, guide us, and help us through where we are at and so we can help others. Would you like to go with me?” This woman in the parking lot? The same one from Goodwill? Yeah, she didn’t know that I write. That I feel the most honest me when I write. That God pricks and heals my soul when I write. And that sometimes He graciously uses my writing to encourage others.

“I’d love to,” I said, and smiled a good smile. My husband had loaded all the groceries in the back of our van while we spoke. As we began to drive away she motioned for him to roll down his driver’s window. “Take care of her,” my new friend said smiling, but with eyes that ran it deep. He always does. Jane was his girl too. You, mama-friend, you who have this wound similar, Give yourself time.

Allow yourself the sobs, and if you have other children, let them see you cry. Pray with them in that moment together. You have nothing to explain to people that don’t understand. That’s not your job. They don’t have to understand or be okay with what you need.

It doesn’t matter if they seem irritated that you had to cancel that luncheon or lesson again. Or maybe they might. Maybe they’ll be tender and say things like my husband was told tonight on the phone when he made calls for me, “Tell her to take all the time she needs; we’ll be here.” But either way- Just. Take. Time.

And find someone or someones to “fall together” with. We must know we are not alone, that how we feel is not abnormal, and that there is hope in tomorrow. Dear mama-friend who needs a voice today to bring a light of validation to your grief after miscarriage, The truth of this life lost has been ascertained. Your story as that life’s mother has been corroborated. Your grief has been found as something substantial and authentic. Your soul and body has been given the stamp of approval, the go ahead, the green light… to rest. and to bear. this. out. You are not alone.

“An Invitation to all Who Suffer Loss” {a poem by Rebecca}

We’re all there, unknowingly together there. Spread out. Feeling alone.

Our wombs bare too soon like those trees whose limbs are stripped by a harsh, early winter.

We’re all there, unknowingly together there.

But the road tapers down, drawing us closer together as we search for solidarity.

We’re all cupped there, His hands cup us together there.

Because suffering transcends difference. The invitation chimes in the dark – to see a different reality.

We are not in the wallows, the crevices between pains that no one sees as they walk by in the market unaware of our wounds.

No, we are high and lifted up with You. You see us up close and lift us up high.

You call us there, You call us together there.

To under-gird one another …because suffering transcends difference.

The invitation chimes in the dark – to see a different reality.

We are not passed over.

Wear His favor on your head as a crown, sister friend.

We are His and the hope of life is in our wombs.

Art and life will continue to pour forth again.

{dedicated to all who have walked through miscarriage or any other kind of loss, and to our sweet Jane Malise, born to heaven 2/17/14}  With love, Rebecca FromMyMountainView.com

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He’d Be 17

Told by: Dawn

On March 7 it will be 17 years that I lost my stillborn son, Patrick Nicholas.

Not a day goes by that I don’t think about him or how he would be today.

I have four children and one beloved angel in heaven, and he is loved just as much as his siblings and although he never got to breath even a breadth of life, he did not die in vain.

His short life will always be remembered and his legacy will always follow. God Bless my little boy!!!!

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A Vow to Remember

Told by: Maria

I found out on August 26, 2013 that I was pregnant. I was so scared, but so happy at he same time. On October 7th, I found out that I was 8 weeks and two days. I grew bigger and bigger every day, looking as if I was six months at only four.

On January 16, 2014we found out we were having a beautiful little girl, we named her Avarie Justine.

At 22 weeks, we went for an ultrasound, there was signs that she may have problems, but all the tests came back negative. Two weeks later, we went for another and found that somehow over time, she had adapted to only having one artery in her umbilical cord, when before she had had both.

On February 3rd, we were informed that our daughter no longer had a heart beat, we were devastated. On February 5th I was induced, at 6:00 pm, I had her at 3:22 am on Feb 6, 2014.

She was beautiful, just like I knew she would be.

14 1/2 ounces and 11.5 inches long. I only had 13 weeks left when I gave birth to my sleeping child, no one knows what went wrong, except for God. Now I have a beautiful angel baby, and I will see her again some day. She’s our everything, and will always be our first born.

Her due date was May 15th, now we have decided that we will be getting married that date. It hurts, it hurts so bad, and I can’t help but blame myself, but I know that she was too perfect for this world, and the Lord had better plans. We love you sweet girl.

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The Beginning of Her Story

Told by: Kelly

I’m 37. I have four living children ages 10, 8, 6, and 3.

All of their pregnancies/deliveries were peaceful and uneventful for the most part. We had no reason to believe that our 5th baby would be any different. In fact, my 5th pregnancy was so normal, it drew no special attention at any point along the way.

I was 40 weeks and 6 days pregnant when I finally went into labor. I had been in labor for almost 7 hours when we started losing our baby’s heart beat, for no apparent reason. I was rushed to the OR for an emergency C-section, but was ultimately allowed to delivery her normally under enormous pressure to “get it done now!” I had her out in just minutes. But I wasn’t quick enough.

Our sweet, perfect Hazel was born February 4th 2014 at 3:49 am in the OR room, and handed directly to the neonatology team. I never heard her cry. I never got to look in her eyes. I never cradled her new, naked body next to my chest. I could only watch from my gurney where I was being stitched up as the team pumped her little chest and began to intubate.

My husband followed Hazel up to the NICU where they continued the process of trying to resuscitate her. I was taken to my room to deal with heavy bleeding and intense shaking. At this point I wasn’t terribly worried. I knew the doctors had it under control and it would just be a matter of time before I was nursing my baby and wrapping her in pink. Right? Two hours passed. The nurses finally agreed to let me be wheeled up to NICU to see my Hazel. I won’t go into all the details of what it was like to see my baby covered in tubes, wires, sensors. Nor will I bore you with all the medical details. But I was told that her brain was already very oxygen starved and she was experiencing brain malfunction. She would need to be transferred to another hospital to receive cold cap therapy.

The transfer team took hours to come.

She was finally moved about 8 am. I was told I could not go with her because of my heavy bleeding. But the doctor agreed that if my bleeding was under control by lunch time, I could be discharged at go see her then. In the mean time, I began to pump, hoping that I could at least take a little bottle to my baby and let her drink some of that liquid gold. Around 9:45 I received a visit from the neonatologist, letting me know that Hazel was “not responding well” to treatment.

Apparently that is code for “Your baby is dying and if you want to see her you better get going.” I made them yank the IVs out of my arm. I dressed, grabbed my bag and left the hospital with a trail of nurses waving paperwork at me and telling me to get in a wheel chair. The milk I had pumped was left in the fridge in my room.

I waited for what seemed ages out on the curb for my ride to come get me and take me to Hazel. All the while, I cried to Heaven “Save my baby! Save my baby. Only you can save my baby. Hear me, God! Save my baby!” The 25 minute drive to the hospital was eternal. I didn’t move a muscle or say a word. I sat tense, but still believing that my baby would be ok and I’d get to take her home before long. I was still confident that someday I’d look back on this day, with my sweet Hazel in arms, and tell her survival story.

Instead, I’m telling her death story.

When I got to the hospital, I raced as quickly as my aching stitches would allow down the maze of hallways to the little room where Hazel waited for me behind that tacky blue curtain. She was different. One eye was shut. The other was open just a slit. She was totally motionless except for the gentle rise and fall of her ventilated chest. I saw what I assumed to be the “cold cap” we had sent her here to receive. It sat next to her on the bed, unused. A doctor came near. I almost screamed, “where’s the cold cap!! Isn’t that why she’s here??”

Very bluntly he laid it all out: it wouldn’t help now. It was too late. She had no more neurological activity.

Her eyes were fixed and dilated. “I’m sorry,” he said. “So we’re just going to let her go?!” I demanded. Apparently, we were.

I saw it in my husband’s eyes. At that moment I had to accept what was happening, although I’m sure I was not really comprehending the full implications of Hazel’s condition. Her heart was barely beating, but she was still there. Wasn’t there a glimmer of hope? No. Not even a glimmer. I was going to lose her. So I decided that our last minutes together would be as peaceful as I could make them. I asked if I could put my arm under her tiny limp head. The nurses agreed, and actually moved her off the table, tubes and all, into my arms where I sat waiting in a large, stiff rocking chair. I nestled her as best I could around all of the tubes and wires. Soon a monitor started beeping. My husband and I ignored it. We were too locked on Hazel’s sweet face to care. But a nurse came in and noticed that the heart beat monitor had flat lined. She used her stethoscope to find a pulse. “I don’t hear one.” she said too calmly, too flatly, too coldly.

The doctor came in. He didn’t find one either. Time of death: 12:09 pm.

My baby died in my arms after just 8 hours and 21 minutes of physical agony in this world. Minutes after her passing, our children arrived. They had just missed seeing their little sister alive. As their mother, I had the duty of delivering the sad news as gently as I could, and with as much dignity as I could muster. I know that angels bore me up in that moment. I never dreamed I would have to deliver such devastating, soul crushing news to my own children.

They each got a turn to hold her, kiss her, and say a good bye. My oldest daughter brought a hat she had just finished knitting for Hazel. We put it on her. Our children left, and we continued to hold Hazel for hours. Funny, I had just delivered a baby, and we had not eaten anything all day long. Yet even as evening came on, I felt no hunger. Only emptiness.

Time wore on. If I could have, I would have stopped time so that I could spend endless hours holding my little one. But I knew I had to leave the dead to go care for the living. My children at home were hurting and they needed me. So we began the solemn, heart wrenching process of giving Hazel her first and only bath. When she was clean, I dressed her in a white gown that a social worker gave to us in a plastic bag marked “Bereavement kit: girl”. So now I was a case for social workers. I was angry at myself for leaving my hospital bag in my ride’s car. It contained all the things I wanted to put on Hazel in that moment: the blanket, the outfit, the cute socks, the hair bow. She would never wear any of it. Instead, she was wearing this donated “bereavement kit”. After I had dressed her in the white gown, her umbilical cord began to bleed all over and we had to take the bereavement kit off.

The nurse spent quite some time hunting down an outfit that would fit my 8 lb 15 oz., 21.5 inch baby. Apparently the NICU is only used to dressing premies, not large, chubby, full term babies with massive heads of hair.

They stuffed my baby into a too-small, shabby, red and white outfit. I smoothed her hair once more, laid the donated pink, crocheted blanket on her, kissed my last kiss and left my baby behind. That is not the end of Hazel’s story. It really is the beginning. But the rest I cannot tell you until I meet her again in that other world where there are no dead babies or heart-broken mothers.

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Shaine Brock, SBD

Certified Birth & Bereavement Doula® serving in and around Reed City, Michigan

email: ShaineBrock.SBD@stillbirthday.info

homebirth midwifery services

certified in Psychological First Aid

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Alisha Jones, SBD

Certified Birth & Bereavement Doula® serving Massachusetts

SBD Chaplain

email: AlishaJones.SBD@stillbirthday.info

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Serving specifically Wareham and surrounding areas along with Tobey Hospital, Beth Israel Deaconess Hospital – Plymouth and St. Luke’s Hospital

AlishaI am almost 28 years old. I have been married for almost 7 years and we are the best of friends. We have five beautiful children. Three we hold in our arms, one we hold in hearts,  and our second rainbow due this March. On 12/17/09 our sweet Hunter Grace was born at 17 weeks, she was so tiny and perfect. Since Hunter passed it has become my mission to help families going through loss online and in my community. I don’t want families to feel alone.
 As a SBD Doula I can provided love, education, and support for families in birth in any outcome,  fetal diagnoses, NICU care, rainbow births and birth in any trimester has become my passion. I can provide support before, during and after your sweet littles birth. Along with providing local support, I am always open to providing support online, via email to anyone going through loss or a rainbow pregnancy.

 

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My Time in Canada

I am still trying to find words to express how very dearly the professionals in Canada have touched my heart through our time shared together.

Our event was hosted by Pam Soltesz of Heaven’s Heartbeat Childbirth Services and captured in video and photograph by {born} Calla Evans photography, serving the greater Toronto area.

I am so deeply thankful to each person who took on the storm of snow (if y’all haven’t experienced a Canadian winter, you haven’t experienced winter!).  Everything about our time together touched my heart and I am deeply thankful.

If you’re interested in joining or hosting a stillbirthday workshop, you can visit our workshops page.

 

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Jennifer Cantrell, SBD

Birth & Bereavement Doula® serving Muskegon, Michigan

SBD Chaplain

email: JenniferCantrell.SBD@stillbirthday.info

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jpizapWife to an army veteran  and mommy to 4 kids who I hold in my arms and 15 kids I hold in my heart. Originally from Maryland. My passion in life is children. Have been a pre K teacher for many years but since my  high risk pregnancy with my most recent rainbow, I am now a stay at home mommy. I lost my first child at 19.6weeks in 2001, Jennyfur Angel. Shortly after she grew her wings, I became pregnant with my oldest child. Throughout the following years, I became pregnant many times, giving birth to my two daughters and suffering multiple miscarriages. In 2009 I met my now husband. In 2010 we suffered a miscarriage at 8 weeks. followed by two ectopic pregnancies in 2011 and 2012. In Jan 2013 we found out we were yet again, pregnant. After a very strenuous, high risk pregnancy, our rainbow was born Sep 7, 2013 at 38 weeks.  Since than I decided to have a tubal ligation, making my 4 living children, the only children I will hold in my arms.   During my pregnancy, I found support through a fellow SBD Doula, and a local Doula, Thats when I knew… this was the path I was meant to lead! God gave me my trails and tribulations to mold me into a SBD Doula so that I can provide support and compainonship to those who need it the most.

 

jlogoAlong with providing local support, I am always open to providing support online, via email to anyone going through perinatal loss or a rainbow pregnancy.

 

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The SBD® Doula provides support to families experiencing birth in any trimester and in any outcome.

Here at stillbirthday.info, you can learn about the SBD® Doula.