Laura Wilton, SBD

Professionally trained birth & bereavement doula serving in the UK

email: LauraWilton.SBD@stillbirthday.info

 

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Lynda Hay, SBD

Certified Birth & Bereavement Doula® serving in Australia

email: LyndaHay.SBD@stillbirthday.info

 

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Ashley Boren, SBD

Certified Birth & Bereavement Doula® serving Glenwood and Council Bluffs Iowa and Omaha Nebraska

email: AshleyBoren.SBD@stillbirthday.info

 

AshleyWife and mother to four boys. Four angels. Cooking up double rainbows (twins) due this summer. I stumbled upon still birthday when I lost my third angel. My first loss I went about alone. It was a shock I was in that idea that it would “never happen to me”.  It took a long time to come to terms. After months of trying again I had my 4th son and first rainbow. I was scared after a hard pregnancy. We wanted more and so we didn’t prevent anymore. We then found out a little late I was pregnant again when my rainbow was 3 months old. I found out at the worst time. Being rushed to the ER dying in pain. My tube had ruptured due to an ectopic pregnancy. I was actually dying from internal bleeding. I then realized I was not immune and things DO happen. We then suffered a still birth of my first known daugther. Then another ectopic soon after. When we had our still birth is when I finally started looking for support and help. That is when I found still birthday. I found help, support and love. As well as understanding. I was NOT alone. After working as a mentor of miscarriage, still birth and early infant loss I realized I wanted to do more. I signed up, fell in love, dove into everything just wanting to help and let others know you are NOT alone. I want to walk the path side by side with others. The same path I walked alone, until I found still birthday. I have always had a passion for pregnancy and helping others. My goal from as far back as I can remember was that I wanted to be a midwife. I hope to help and be there for others the best I can. You are not alone.

 

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My Sleeping Beauty

Told by: Kelly

I’m 37. I have four living children ages 10, 8, 6, and 3. All of their pregnancies/deliveries were peaceful and uneventful for the most part. We had no reason to believe that our 5th baby would be any different. In fact, my 5th pregnancy was so normal, it drew no special attention at any point along the way.

I was 40 weeks and 6 days pregnant when I finally went into labor. I had been in labor for almost 7 hours when we started losing our baby’s heart beat, for no apparent reason. I was rushed to the OR for an emergency C-section, but was ultimately allowed to delivery her normally under enormous pressure to “get it done now!” I had her out in just minutes. But I wasn’t quick enough.

Our sweet, perfect Hazel was born February 4th 2014 at 3:49 am in the OR room, and handed directly to the neonatology team. I never heard her cry. I never got to look in her eyes. I never cradled her new, naked body next to my chest. I could only watch from my gurney where I was being stitched up as the team pumped her little chest and began to intubate.

My husband followed Hazel up to the NICU where they continued the process of trying to resuscitate her. I was taken to my room to deal with heavy bleeding and intense shaking. At this point I wasn’t terribly worried. I knew the doctors had it under control and it would just be a matter of time before I was nursing my baby and wrapping her in pink. Right? Two hours passed. The nurses finally agreed to let me be wheeled up to NICU to see my Hazel.

I won’t go into all the details of what it was like to see my baby covered in tubes, wires, sensors. Nor will I bore you with all the medical details. But I was told that her brain was already very oxygen starved and she was experiencing brain malfunction. She would need to be transferred to another hospital to receive cold cap therapy. The transfer team took hours to come. She was finally moved about 8 am. I was told I could not go with her because of my heavy bleeding. But the doctor agreed that if my bleeding was under control by lunch time, I could be discharged at go see her then.

In the mean time, I began to pump, hoping that I could at least take a little bottle to my baby and let her drink some of that liquid gold. Around 9:45 I received a visit from the neonatologist, letting me know that Hazel was “not responding well” to treatment.

Apparently that is code for “Your baby is dying and if you want to see her you better get going.” I made them yank the IVs out of my arm. I dressed, grabbed my bag and left the hospital with a trail of nurses waving paperwork at me and telling me to get in a wheel chair. The milk I had pumped was left in the fridge in my room. I waited for what seemed ages out on the curb for my ride to come get me and take me to Hazel.

All the while, I cried to Heaven

“Save my baby! Save my baby. Only you can save my baby. Hear me, God! Save my baby!”

The 25 minute drive to the hospital was eternal. I didn’t move a muscle or say a word. I sat tense, but still believing that my baby would be ok and I’d get to take her home before long. I was still confident that someday I’d look back on this day, with my sweet Hazel in arms, and tell her survival story. Instead, I’m telling her death story. When I got to the hospital, I raced as quickly as my aching stitches would allow down the maze of hallways to the little room where Hazel waited for me behind that tacky blue curtain. She was different. One eye was shut. The other was open just a slit. She was totally motionless except for the gentle rise and fall of her ventilated chest. I saw what I assumed to be the “cold cap” we had sent her here to receive. It sat next to her on the bed, unused.

A doctor came near. I almost screamed, “where’s the cold cap!! Isn’t that why she’s here??”

Very bluntly he laid it all out: it wouldn’t help now. It was too late. She had no more neurological activity. Her eyes were fixed and dilated. “I’m sorry,” he said. “So we’re just going to let her go?!” I demanded. Apparently, we were. I saw it in my husband’s eyes. At that moment I had to accept what was happening, although I’m sure I was not really comprehending the full implications of Hazel’s condition. Her heart was barely beating, but she was still there. Wasn’t there a glimmer of hope? No. Not even a glimmer. I was going to lose her. So I decided that our last minutes together would be as peaceful as I could make them. I asked if I could put my arm under her tiny limp head. The nurses agreed, and actually moved her off the table, tubes and all, into my arms where I sat waiting in a large, stiff rocking chair. I nestled her as best I could around all of the tubes and wires. Soon a monitor started beeping. My husband and I ignored it. We were too locked on Hazel’s sweet face to care. But a nurse came in and noticed that the heart beat monitor had flat lined. She used her stethoscope to find a pulse. “I don’t hear one.” she said too calmly, too flatly, too coldly.

The doctor came in. He didn’t find one either. Time of death: 12:09 pm. My baby died in my arms after just 8 hours and 21 minutes of physical agony in this world. Minutes after her passing, our children arrived. They had just missed seeing their little sister alive. As their mother, I had the duty of delivering the sad news as gently as I could, and with as much dignity as I could muster.

I know that angels bore me up in that moment. I never dreamed I would have to deliver such devastating, soul crushing news to my own children. They each got a turn to hold her, kiss her, and say a good bye. My oldest daughter brought a hat she had just finished knitting for Hazel. We put it on her. Our children left, and we continued to hold Hazel for hours. Funny, I had just delivered a baby, and we had not eaten anything all day long. Yet even as evening came on, I felt no hunger. Only emptiness. Time wore on. If I could have, I would have stopped time so that I could spend endless hours holding my little one. But I knew I had to leave the dead to go care for the living. My children at home were hurting and they needed me. So we began the solemn, heart wrenching process of giving Hazel her first and only bath.

When she was clean, I dressed her in a white gown that a social worker gave to us in a plastic bag marked “Bereavement kit: girl”.

So now I was a case for social workers. I was angry at myself for leaving my hospital bag in my ride’s car. It contained all the things I wanted to put on Hazel in that moment: the blanket, the outfit, the cute socks, the hair bow. She would never wear any of it. Instead, she was wearing this donated “bereavement kit”. After I had dressed her in the white gown, her umbilical cord began to bleed all over and we had to take the bereavement kit off. The nurse spent quite some time hunting down an outfit that would fit my 8 lb 15 oz., 21.5 inch baby. Apparently the NICU is only used to dressing premies, not large, chubby, full term babies with massive heads of hair. They stuffed my baby into a too-small, shabby, red and white outfit. I smoothed her hair once more, laid the donated pink, crocheted blanket on her, kissed my last kiss and left my baby behind.

That is not the end of Hazel’s story. It really is the beginning. But the rest I cannot tell you until I meet her again in that other world where there are no dead babies or heart-broken mothers.

H.J.A. born at 40 weeks 6 days. 8 pounds 15 ounces. 21.5 inches long. Only the angels know why you had to leave us.

H.J.A. born at 40 weeks 6 days. 8 pounds 15 ounces. 21.5 inches long. Only the angels know why you had to leave us.

Annie Willems, SBD

Certified Birth & Bereavement Doula® serving Salem, Oregon

email: AnnieWillems.SBD@stillbirthday.info

 

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Munoz and Benson

With Canada to the north and Texas to the south, I cannot help but see the parallels of recent experiences that two families endured.

Two mothers, both pregnant, both alive physically but neither alive medically.

Both hospitals used medical technology to sustain the physical life of the mother in an effort to continue the pregnancy.

To the south, though, the Munoz family did not desire this.

And to the north, the Benson family, did.

 

The language in the media, though, is very important in both situations.

In the Munoz situation, the baby wasn’t named, at least not publicly.  The stories intended to paint the hospital as a weird science lab spoke of the father’s right to move on.  They never mentioned the older brother and what he might feel like, both now and in the future.  The stories focused on the benefit of the baby physically dying.  Never on the fact that at the time, the baby was in every sense and in every way, very much alive.  Talk of a difficult diagnosis or negative impact of any oxygen deprivation was painted in such a way as to further dehumanize the person of the baby.  Nobody talked about what fears Mr. Munoz may have that his efforts to restore consciousness to his wife may have injured his baby.  Nobody talked about the guilt, dread, or fear Mr. Munoz may have.  The message was clear: this baby is already dead.  Let the situation close.  Let the man move on.  And so, pro-lifers who talked about shaming the dad and pro-choicers who talked about the man moving on all know now that the baby’s days in utero were spent with the world debating over the time of death rather than tangibly validating with word and action that at the time, the baby was in every sense very much alive.  And that this time of hushed whispers of fate ended as the baby suffocated inside his mother.  Because the media addressed the way in which the mother would be in every sense not alive – and didn’t address the way in which this decision would impact the living baby inside.

What about this widow?  To those who thought that he could finally move on now, I strongly tell you that this is not true.  This journey, for him and his surviving son, are only just beginning.

And to the north, the family who faced such a similar situation, and who wanted to sustain the pregnancy and hold a living baby.  What was life like in-utero for baby Benson?  Was it different than life in utero for baby Munoz?  Were either baby sung to?  Did either baby feel the hands of his father atop his mothers growing womb?

While the rest of the world debates over what the right actions are regarding when to end a pregnancy when the mother is not in every way alive, my heart is so full for those moments when the decision hasn’t been made yet.  That is truly my only focus.  I do not at all have a political or even a religious stance regarding the timing of the decision.  In those weeks, days, even fleeting moments when others are arguing over the definition of life, my heart fills to the very brim to honor the life that is there.

If the baby is born alive, or if the baby dies, I yearn earnestly to offer life to the fullest in the moments that are given.   So much is already lost in a situation like this, we don’t have those moments to spare.

  • Support for the family is essential.  Support that isn’t outcome influenced.
  • Support for the care team is essential.  Support that isn’t outcome influenced.
  • Support for the baby is essential.  Support that isn’t outcome influenced.

Honoring each person’s feelings who are involved in the situation.  Capturing moments.  Validating their questions, anxieties, fears.  Listening to their hopes.

Name the baby.   Read to the baby.  Sing to the baby.

Psychobiologists tell us that babies in utero have an amazing sense of smell.  Eat a meal at the bedside of the mother.  Maybe her favorite dish.  Let the aroma travel through the placenta and as the baby receives the smell, speak of the mother’s favorite things.

Grieve for the beloved woman who is not in every way alive.  Touch her.  Rub oils over her belly as a way to grieve her and as a way to connect with the baby, creating a rocking sensation that is otherwise lost to the baby.

Besides the substantially important aspects of the man’s grief, we simply do not know with certainty, this side of media reports, that creating a connection in this way isn’t at all responded to, even by the mother.  Let me say this another way.  Oxytocin is a bonding hormone that travels from the pituitary and serves as a messenger of love directly from the mother to the baby.  It is a hormone released in her bloodstream during pregnancy.  It is released in response to physical as well as emotional and psychospiritual comfort.   And medical research has not disproven the possibility that even in a prolonged coma, a mother may still release oxytocin in her bloodstream.   I’m not involved in the medical research.  I don’t proclaim to know everything about it.  But, here’s what I’m saying.  What if, just, what if, a man stroking his wife’s belly, talking to his baby within, not only creates a communication between father and baby, but what if, even in the middle, the silent mother releases oxytocin, sending her own messages of love to her baby?

We must not get so focused on defining death that we fail to honor all potential for life, however vague, however undefinable, even, however brief.  Because even if the baby dies, we can fill in those fleeting moments with dignity, with honor, with validation, so that the family’s journey afterward is filled with the highest potential for uncomplicated healing.

If nothing else of these thoughts here are considered, in both of these situations and in any others like them, we do such a terribly horrendous disservice to the fathers involved when we focus entirely on how the baby should die or if the baby should die, even when we think we are focused on this to his benefit.  Fathers matter.  Fathers count.  Fathers can bring life.  Fathers need more than the right to define or time death.  They need the right to their fullest dignity, their fullest opportunities, their fullest love, their fullest healing.  No matter what.

 

 

miraclesWhat if the silent mother can still send messages of love to her baby?  What if the dad can create a relationship with his baby?  Regardless of time or definition of death, what if we can bring more life?  More love?  More healing?

 

 

 

 

Bethany Conkel, SBD

Certified Birth & Bereavement Doula® serving Dayton, Ohio

email: BethanyConkel.SBD@stillbirthday.info

 

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Our 8 Together

Shared by: MAnna

Lost Innocents

A photo at the 2 year memorial service for our little Andrew (on left) next to his brother’s grave (Innocent, on right). Our rainbow baby is exactly one month old. All eight of our children together.

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The Not Knowing

Told by: LC

I think I was pregnant once. I felt sick constantly for two weeks and my whole body felt strange. I experienced nausea whenever there was food in my stomach and sometimes even when I hadn’t eaten anything at all. In those two weeks I felt bound by a torment, not only because I was physically sick but I was living with the uncertainty that I was carrying my first child and that I could not keep it. Eventually I bled and knew that I wasn’t pregnant but there’s no other way to explain what I experienced. I thought feeling sick was torment but not knowing what happened to me and possibly my baby is the true hell.

Since I will never know if I lost a baby, I will never be able to mourn.

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El Momento mas Importante

Told by: Maria

” A la noche nos toco contarle a mi familia, todos lloraron de emoción y alegria, mi papa P, mi mama Mm, y mi hermana menor Hm, mi Abuela B, fue un momento de mucha felicidad, era el momento mas importante de mi vida luego del casamiento.”

An excerpt from my journal on the day I discovered I was pregnant:

“That night we planned to tell my family.  They all cried with excitement and joy, my papa P , my mom Mm, and my younger sister Hm, my Grandma B.  It was a moment of great happiness.  It was the most important moment of my life after marriage.”

 

Hi, I am from Latin America.  I am going through trofoblastic disease/molar pregnancy chemotherapy and would like to connect with women who are in the same situation as me. Right now I finished my first week of mtx & levocarin (vitamin). I am feeling quite well, except from some nausea and weakness.

 

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The SBD® Doula provides support to families experiencing birth in any trimester and in any outcome.

Here at stillbirthday.info, you can learn about the SBD® Doula.