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Worth the Sweet Moment

Told by: Sarah

Today, she has been missing for 9 months and 4 days. I know this because I have a little ticker as my email signature that tells me this.  I also know that it’s actually been 9 months, 4 days, 6 hours and 57 minutes since she’s been gone… but who’s keeping count?  My daughter, Beatrix Elizabeth, entered the world quietly on December 13, 2010. She left it just as quietly one hour and forty-seven minutes after. I carried her for Thirty-four weeks. Thirty-four weeks of living. Thirty-four weeks of trying to fit an infinate amount of love into a finite amount of time. We knew by the 9th week of our pregnancy that something was seriously wrong. At an ultrasound, she was diagnosed with hydropsy fetalis. By 12 weeks, Beatrix had a thickened nuchal fold translucency. 16 weeks, a giant omphalocele and a cystic hygroma. When seen together, these to defects usually indicate a genetic disorder incompatible with life. We had the requisite testing done- and no genetic disorders were found. We had made the choice to carry to term before the genetic testing- we were hoping for some answer, or some explanation which could be fixable. We thought that once genetic testing came back as normal, we were out of the woods. We found stories of miracles- babies that had beaten the odds. We wanted to be one of those stories. Going along through our pregnancy, we were told at each appointment that we were most likely going to miscarry before the next appointment. We always showed up, Bea’s heart beating strong, to the next appointment, with a mixture of joy and sadness. We loved being able to watch her moving on the ultrasound screen. Knowing that this could possibly (and would most likely) be the only opportunity that we would have to see her living, we got to know our infant girl this way. Through the grainy images on the screen, we would see that she liked keeping her hands in front of her face- they always had a difficult time getting photos of her face because of this. We know that she made the same face as my older son does when he is woken up unexpectedly.  We went through the pregnancy, collecting prayers and emails. We didn’t know what to expect when she came- because Beatrix was genetically perfect and her disorder was not diagnosed until I was 26 weeks along in my pregnancy. We knew that she would most likely live only a short time, but why?  At 26 weeks, we were sent for a fetal MRI, and she was diagnosed as having Limb Body Wall Complex, an extremely rare, polymalformative birth defect complex. There is no known cause for this. It is generally lethal, with only 4 documented survivors in the entire world.  We prepared, as best we could. We explained to our other children what was going to happen; we tried to explain to ourselves what was going to happen. None of the explaining worked. For us, or the children. We tried to have hope- maybe we would be the fifth family that was able to bring their baby home, with this terrible disorder. We knew that was unlikely, but hope is accepting the possibility of the unexpected. On the evening of Dec. 12, 2010, I began experiencing lower back pain. Within an hour of the onset of the pain, my water broke, and we rushed to the hospital.  Because one of the characteristics of Limb Body Wall Complex is a short umbilical cord, Bea had to be delivered via classical incision C-section. She came into this world quiet. After being assessed by doctors (we had asked for aggressive intervention at birth, just in case the doctors had made mistakes), it was concluded that she was unable to breathe due to insufficient lung function.  She was removed from ventilation, made comfortable, and brought to me. She was so beautiful, my daughter. I fell in love immediately. All of her was perfect- even the parts that doctors thought weren’t so perfect. She lived from 2:03 AM-3:50 AM. It was both not enough time, and all the time in the world. As frightened as I thought I would be, I would do it all over again, knowing what it is like from the other side. It was worth the sorrow to have been able to hold her just for that short sweet moment in time.

 

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I am miscarrying. Now what?

Told by: Heidi Faith

This post was originally written in my doula blog, one month after my loss, as we were only preparing to build stillbirthday.  If you are miscarrying right now and were led to this page, please click this link (stillbirthday) to be taken to the beginning, where you will be led through a path of options, explanations, and support, specific to your situation.

Finding out in the ultrasound room that my baby was dead, I was propelled into a fast-action spinning nightmare filled with insensitivity, and void of information, resources, and hope.  I blogged my experience in real-time.  The title, “It’s STILL Birth” was something that I seemed to literally shout at the top of my lungs.  What options do I have?  What do I do now?  Now?  And…………..now?  The answers I got, “You probably already flushed it” “Don’t worry about it” “It’s not a real baby…..tissue…..debris…..” not only ripped my soul, but I am finding that, even now, I still recoil–I can still feel the vomit rise in my throat as I try to push such horrendous offense away from my broken little heart.  “It’s STILL birth” I protested, I wailed, as I held my little pooch of a tummy, which was once bubbling with life, but, as I knew, had become my baby’s dark, quiet tomb.

I didn’t have any doubt–I saw the ultrasound; saw my beautiful baby, lifeless and still.  I wasn’t in any kind of denial–I just wanted to do what was right.

I knew that a D&C might be needed.  I wasn’t firmly against it, I was just so totally bewildered and overwhelmed, I knew I just needed to slow things down.  I frantically wondered, “What would a D&C mean, as a family experience?”  “How can we transform a ‘remove dead tissue procedure’ into a ‘medically assisted birth of a tiny, beloved, dead baby?'”

I was warned that “expelling everything on its own” came with risks: the process could take several weeks, the baby could come out in broken pieces…so I tried looking for ways to “naturally induce” the miscarriage.  As a doula, I knew about things for full term deliveries, but I wasn’t sure about a miscarriage and so did some researching.  What I found, to my horror, were websites promoting “secret abortions from home”.

As labor progressed rapidly enough on its own, I had to plan for our very first homebirth.  Planning, as with any kind of logic, seemed to allude me completely as I felt wetness I shouldn’t feel while pregnant, saw frightening amounts of bright red blood in the bathroom, and held an impossible amount of sadness and despair as knew there would be no turning back.  Every sensation was tragic, every single moment filled with agony and heartbreak.

After the birth, I marvelled at how beautiful my baby was.  Really.  Perfect and tiny, what a wonder it was to see tiny little perfect toes, the itty-bitty soft, round head.  I reflected on the wonder, how even while we were still happily, naively pregnant, God knew how many hairs would grow on this tiny, little head–none.  I sighed as I imagined the baby’s heart, once beating strongly, slowly, coming to a peaceful stop.  I peered over my baby, and kept telling him that I was sorry.  It was more of a chant: I’m so sorry baby, I’m so sorry baby…

So, if you can imagine with me, a mom and dad, hovering over our sweet, tiny dead baby.  A baby that not only didn’t count for any kind of legal recognition–no birth certificate, nothing, but no medical recognition, either.  It is hard to explain how I felt, but I will try: it wasn’t just that we were so overwhelmed, so distraught, so grief-stricken and helpless that we could have gently placed our baby in the toilet bowl and painfully pushed the lever.  It’s that, I was expected to apathetically allow my baby to just plop into the bowl, and flush without any kind of a care.

It is a God-designed response that takes place in parents, to be willing to selflessly, even eagerly protect our children.  We, my husband and I, were virtually the only ones on the entire planet who had any interest in defending the reality of our baby’s existance.  So now, we had to decide what to do with our baby.

For me, placing our baby in the tiny jewelry box that my husband had bought that morning, specifically for our baby, I knew I was in the very worst moment of my entire life.  Sitting in that moment of darkness, sadness, emptiness, and pain, holding my baby’s tiny coffin in my hands, hot tears frantically spiraled down my face.  I felt so trapped in that moment, so unable to escape it, I remember actually looking forward to the very next moment.  Just one more moment, just usher me into the next second God.  Surely it will be better than this.

We made plans to bury our baby.  I remember feeling startled as the funeral director said that he was sorry for our loss.
He was the first professional to volunteer such an intimate recognition.

Because the cemetary we chose has baby plots, the price wasn’t as much as an adult burial.  But, even at that, it was still very expensive, and I remember wondering coldly, “Why are you charging us so much?
Nobody else even counted our baby as real, so why do you need so much money?”

The pastoral staff at our church have been kind, loving and supportive.  They offered to have someone present at the funeral, and we were very grateful, but declined.  We imagined it’d be hard to speak for somebody who one had never seen smile.  As arrangements for the funeral were made, I knew we’d want pictures.  We intentionally didn’t take pictures of our baby, because we didn’t want our baby to be remembered being so tiny, so seemingly unfinished; but we did want pictures of the funeral, the “celebration” of a very real person’s life, and death.  Only “his” brothers, parents, and grandparents were there.  There was no preacher, no inspiring words, no sermon, no awkward shaking of hands in sympathy.  It was a quiet funeral on a cold, gloomy afternoon.

It was immediately afterward, that I updated my original blogpost to include information about our new project, and to petition to other mothers to share their miscarriage experiences with me.  The original story received 4,000 views in the first 2 weeks, and hundreds of mothers continue to bless me with the responsibility of caring for their tragic, yet inspiring stories.

As I continue to lift my broken heart to our Lord, it being torn with agony, plagued with anger, shame and grief, He’s held onto it so tenderly.  He’s spoken words of love and hope into my crumpled spirit so clearly to be nearly audible.  I hesitate revealing too much, because in doubt and disbelief I wonder why He’d pick me out of the crowd of grieving mothers and only bless me with such revelations of His goodness.  Yet, as I read letter after letter from other mothers who’ve triumphed over this path that I am so newly stumbling upon, I see, sometimes plainly, sometimes hidden within the story, God still holds their hearts carefully too, still reveals His compassion into their spirits–whether they see it yet or not.

Based on my experience, and a culmination of other mothers’ experiences, these are some things I now know:

–Some people will say some very hurtful things in an effort to ease some of your hurt (this might be medical staff, friends, family, or anyone).

–Some people will make terrible decisions in your very best interest.

–Pregnancy loss has unique medical and emotional/spiritual needs that often reflect each other and include one another, and both need to be cared for thoroughly and compassionately.

–Accepting, really accepting, the death of your baby is a process that is insurmountably compounded if the process of accepting the ill-timed birth is interrupted, stifled, silenced or rejected.

–When a mother doesn’t feel the reality of her child’s life being acknowledged at the time of pregnancy loss, she will often retreat to an extended, “silent grief” long after the loss has occured.

–This “silent grief” can have serious health consequences (spiritually/emotionally, socially, sexually, and physically).

–Parents need and want choices (even if they don’t choose them all) during an experience that is so amazingly out of their control.

–The logic to create choices does not function well-at all-in the midst of the shock of pregnancy loss.  When logic returns, it is often accompanied by a powerful amount of regret (over the decisions made without it).

–From the earliest age of pregnancy loss, when “flushing is inevitable and finding the baby is impossible” parents still long to exhibit their love for their child, in some act of kindness or expression.

–There are many names for the experience, and many terms within it, but if a woman sees two pink lines, and then sees blood, the reality of her experiences need to be validated.  It is still birth, and, it is still death, regardless of the order, duration, medical assistance, or timing.

–The reality and importance of these things are relevant regardless of the faith or spiritual strength of the family.  These facts cross all bridges and boundaries, and compassionate care is needed for every single family impacted by pregnancy loss.

–The new website, stillbirthday, will be a help in all of these things.

 

[Later, I wrote pertaining to my subsequent pregnancy: She’s Not My Rainbow, Irish Twins, Not as the World Gives, and Subsequently, among other articles in the emotional health section and the devotionals section of stillbirthday.]

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Birth Encouragement

These quotes and verses serve to bring encouragement to you as you prepare for the birth of your baby.  Because pregnancy loss is still birth, these affirmations and encouragements are borrowed from childbirth websites (sources at end) and in fact are more fitting here than anywhere else.

As for you, be strong and courageous, for your work will be rewarded. ~ 2 Chronicles 15:7

”If I don’t know my options, I don’t have any.” ~ Diana Korte

God arms me with strength, and he makes my way perfect. ~ Psalm 18:32

“There is a secret in our culture, and it’s not that birth is painful. It’s that women are strong.” ~ Laura Stavoe Harm

The Lord will fight for you… ~Exodus 14:14a

“It seems that many health professionals involved in antenatal care have not realized that one of their roles should be to protect the emotional state of pregnant women.” ~Michel Odent, M.D.

God is our refuge and strength, an ever present help in time of trouble.  ~ Psalm 46:1

“The effort to separate the physical experience of childbirth from the mental, emotional and spiritual aspects of this event has served to disempower and violate women.” ~Mary Rucklos Hampton

The Lord your God is with you wherever you go.  ~Joshua 1:9

“Fear can be overcome only by Faith.” ~Grantly Dick-Read, M.D.

Though he brings grief, he will show compassion, so great is his unfailing love.  ~Lamentations 3:44

 

Verses borrowed from: Scriptures for Childbirth

Quotes borrowed from: Birth Without Fear

The SBD® Doula provides support to families experiencing birth in any trimester and in any outcome.

Here at stillbirthday.info, you can learn about the SBD® Doula.