Archives for November 2012

Teeny Tears

Giveaway!

November is National Prematurity Awareness month, and just like families who endure loss and who find significance in October, this month is a tender time for families who’ve experienced the need to utilize the NICU.

November 17 is also World Prematurity Day.

This is a very special giveaway, one that is going to work a little differently than most.

In this giveaway, you will choose a hospital to have beautiful, darling, teeny diapers donated to.

Megan, the founder of Teeny Tears, shares her experience both with needing the care of the NICU, and of loss, here:

As we came closer and closer to Dex and Crew’s third birthday, I began searching for a project that would honor Dex’s memory and give purpose to my grief. I was looking for something economical, meaningful, and within my limited sewing abilities.
When my sister showed me what her friend Arah had started making for the local hospitals in Spokane, I knew immediately that I had found my answer. My heart told me that there was no turning back. I would make tiny little diapers for stillborn micropreemie infants and those that pass away in the NICU. With full support from Arah, we launched Teeny Tears last November…

please click here to read her whole story

All you have to do to enter this giveaway, is comment below, telling us:

What surprise or unexpected support did you receive during your pregnancy loss or NICU experience?

Please be sure to include in your comment, the name and city of the hospital you want the diapers donated to, and who your entry is in honor of – your own baby(ies) and/or others.  A tip: if it is a labor and delivery hospital, it will be more likely to receive the diapers than say, a children’s hospital.  If for any reason your chosen hospital can’t accept the diapers, a hospital within that community may be selected.

Two random names will also be drawn to receive one teeny diaper sent to you.

Winners (all three) will be selected on Monday, December 24 – Christmas Eve.

 

Each family receives two teeny diapers – one to keep as a momento, and one for the baby to wear.  Click the photo to watch Megan’s story.

More Ways to Get Involved

If making tiny diapers for precious babies is something you want to learn more about, please visit the Teeny Tears “How you can help” tab.

You can get involved by sewing, or by donating to Teeny Tears to help support families.

You can even start your own Stillbirthday Love Cupboard, get a group together, and make Teeny Tears diapers!  Your own Love Cupboard could be featured on the Teeny Tears list!  What a fantastic way to approach the holidays and the New Year, by making a commitment to get involved and joining in this way to help other families.

Did you know?  Preemie awareness is a pink and blue ribbon, just like the pregnancy and infant loss ribbon.

This giveaway is now closed.  There were a couple of hospitals nominated that Teeny Tears are already in the process of supporting, and a couple of duplicate comments, so those were taken out for a fair drawing.  The location selected is Akron General Medical Center in Akron, Ohio.

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Infant Shrouds

 

 

 

Kinkara creates custom infant burial shrouds exclusively for our SBD Chaplains to purchase.

 

Bereaved Veteran

My dad served in Vietnam.

Horror stories of this misunderstood war, and of my misunderstood father, are all I have.

My memories of him include violence.

Fear.

Pain.

I was raised in foster care because of the damage he and other members of my family inflicted on me.

Today, he is dead.

Today, I am a woman.  A wife.  A mother.

But when I think of him, I still feel like a little girl,

a little girl who longs for her daddy’s attention, and affection.

As I draw on the few memories I have of him, I wonder if he loved me.

I imagine,

what it must have been like.

To enter a war, so poorly trained as those young men – boys – were.

To enter a war, so poorly prepared

To see devastation, to feel devastation, to see death.

Then, to come home to America, and have such an insensitive homecoming.

To be disregarded, disrespected, discarded, by the very nation, even by the very family, he represented and defended.

I imagine his unsupported overwhelm, his hurt, his rejection, turning to anger and resentment.

His inability to recieve the validation, compassion and respect he deserved and needed, turning, festering, into rage of the deepest scale.

I remember being his little girl, in a small, suffocating world of lonliness and pain.

I remember wishing I could have a daughter someday, to show them – show my family, show my dad – how to do it right.

Show them how to love, how to be a good parent.

Today, as a woman, as a wife, as a mother,

I remember that my parents had three boys, then a stillbirth, then me.

And so here I sit, as a woman, a wife, and as a mother, with the same feelings my dad faced.

Stillbirthday is a headstone.  A place where I can come to remember my child, who died.

But this very thing I have crafted out of my own broken heart, in defense of all broken hearted families, has been attacked, lied about, stolen, and ignored.

My homecoming here is not always a welcoming one.

Misinformation and silence is thrust at grieving mothers and fathers instead of the reality that all mothers deserve respect and validation.

Parents find this place long after the most precious mements they had are already gone.

My own grief experience has been gauged against my involvement with stillbirthday, the memorial I have erected for my child and for all children gone too soon.

I have been left feeling defeated  and abandoned.

And now I have an idea of what my dad was left with.

He saw devastation.  Felt devastation.  Saw death.

Then had three boys, one stillbirth, and then a little girl.

And, so did I.

Now, humbly, mercifully, and heartbreakingly, I cry.  I beg for release from this overwhelming burden of rejection, isolation, and loneliness.

I taste the temptation to retaliate.  To close up.  To hate.

Unlike my dad, I resist.

I know what it’s like, to wonder if he ever loved me.  To have memories of him saturated in fear and confusion instead of forgiveness and endurance.

My miscarried baby would by one, this week.  One year old.

My grief is changing, but it’s not over.  As I feel the pressure mount to move on, in a moment of vulnerability I seek to be transparent as I tell you, I am a bereaved mother.

I am a little girl, without a daddy.  In his stead are haunting memories and a lifetime of yearning.

I am a mother, without one of my children.  In his stead are fleeting memories and, a lifetime of yearning.

I yearn for validation, for love, for peace.

For mothers and fathers all over the world to receive the support they deserve and need, when they deserve and need it, through stillbirthday.

For mothers and fathers who’ve seen devastation, felt devastation, seen death, to have this safe place to come home to.

For the war against healing to be over.

Please, tell people about stillbirthday.  They need resources and knowledge prior to the death and birth of their child, the deepest love and dignifying care during the darkest days of their entire lives, and  a proper, respectful, supporting and validating homecoming as they emerge, somehow, afterward.

You have no idea the impact that can have on their life – and others.

 

 

 

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The Grief Dare

 

Bereavement challenges everything we know about well, everything.

It challenges our faith.  Our trust in birth.  Our understanding of pregnancy.  Our concept of parenthood.  Our marriage.  Our identity.

I have seen mothers blame their care provider, blame God, blame their husband, blame each other, and blame themselves.

Blame has a place in grief – for the short term, there can even be value in blame.

However, if you are a bereaved mother reading this, I want to challenge you to explore even more deeply.

I want to challenge you to see the obstacles that can seem attractive but actually serve to distract and even detract from our healing.

I want us to identify these obstacles, and see that their purpose is to continue to isolate us and frustrate our efforts to obtain the healing that we deserve.

If you are a mother who has experienced pregnancy loss, infant loss or child loss at any time in the past, you are encouraged to take The Grief Dare.

About the Grief Dare

One dare will be published at stillbirthday at the beginning of each week.  You will have only that week to achieve that dare.

There will be 15 dares, one dare per week.

The Grief Dare begins with the first dare published on December 31, 2012; the last week ends the weekend of Saturday, April 13th.

These dares will challenge you to strengthen your marriage, treat yourself with care, and explore areas of emotional difficulty in your grief journey.

You’ll participate in the Grief Dare by sharing what you explored and learned through each dare.  You’ll share your entry by using the Grief Dare forum.

You will be required to read, think, engage and write.

 

The Grief Dare will feature a few dares presented in The Respect Dare, a brand new book not scheduled for public release until mid-December!

At the end of the 15 weeks, a team of stillbirthday members will vote on a first place and second place winner.

 

The first place price is a hand made necklace and earring set from Dr. Laura designs!

Genuine Scrabble® tiles with images of cherubs and letters on the reverse side spelling the word FAITH.  Necklace can be worn both ways with matching earrings included and arrives in a beautiful presentation gift box.  Necklace is Amethyst, fresh water Pearls, Vermiel caps, beads and clasp, tiles sides covered with 18K Gold ink.  Necklace length 16.5 inches.
Click the photo for an even better look at this stunning set!
The Second Place prize is a lovely hand made bracelet from Eden’s Wings.

 

 

Get entered today!

Register in our Grief Dare forum. – then keep an eye out for our dares!

Update: this giveaway closed!  Congratulations to Colleen for winning first place, and for graciously gifting the prize right back to stillbirthday so that one more mother can receive a treasure!  Truly, the generosity of the stillbirthday community moves me to tears.  Thank you, so very much.

Lifetime Achievement Award

The Association for Death Education and Counseling® is an  international, professional organization dedicated to promoting  excellence and recognizing diversity in death education, care of the  dying, grief counseling and research in thanatology. Based on quality  research, theory and practice, the association provides information,  support and resources to its international, multicultural,  multidisciplinary membership and to the public.

The ADEC offers a Lifetime Achievement Award.

This award is designed to honor an outstanding individual in the area  of death, dying, grief and loss who has had a national or international  impact on the field and has dedicated his/her professional life to the  development and improvement of  death education, caring for the  dying person, and grief counseling.
Nominee must have made a significant contribution to the development  and/or understanding of thanatology that historically has and will  continue to distinguish his/her work.

Criteria for Lifetime Achievement Award

1. The award may be presented to a deserving individual each year at  the annual conference. However, the Awards Committee may also decide not  to give out the award in any given year if, in their discretion, there  are no deserving candidates nominated. 2. The award can be presented to either a member or a non-member. 3. The nominee must have at least 25 years of service in the field of  thanatology. 4.  The award may recognize a significant contribution with a  definable body of work through one or more of the following:

  • theory development
  • presentations at professional conferences
  • teaching/training
  • research
  • publications
  • professional practice

5.  The Lifetime Achievement Award is the only award for which a  deceased person may be nominated. 6.  The Awards Committee shall determine who receives the award(s)  and shall inform the board of their decisions. 7.  Candidate must submit the  following 1) CV or resumé; (2) 200 word biography, written to  highlight the specific award for which they are nominated.

Lifetime Achievement Award Nominating Procedures

  1. Self-nominations will not be accepted.
  2. Nominating letters should address the nominee’s qualifications for  this award and contributions to the fields of death education,  counseling, research and/or caring for the dying.
  3. THREE (3) letters of support should be included from individuals who  are knowledgeable about the candidate’s professional  accomplishments. 
  4. The nomination must address the nominee’s qualifications for this  award and contributions to the study and practice of  thanatology. Material supporting the candidate’s  achievements, such as professional articles, publication lists, etc.,  may be submitted.
  5. The candidate’s curriculum vitae should be included in the  nomination packet.
  6. In the event that the nominee is deceased, it is the responsibility  of the person nominating the individual to provide the necessary  information supporting the nomination. In addition, the nominating  individual should have contact with a family member or friend who, if  chosen, will accept the award.
  7. ADEC membership not required.
  8. 200 word biography, written to highlight the  specific award for which they are nominated.

*Selected award recipients are strongly urged to  attend the Annual Conference, at which the award will be presented. In  the event the recipient is not able to attend, he/she is asked to  identify someone who will accept the award on his/her behalf. [Those who  cannot attend the conference may be held over as a nominee until the  following year. Special exceptions for  illness or disabilities will be at the discretion of the Awards  Committee.]*

 

 

Stillbirthday nominates Sherokee Ilse

 

From Heidi Faith: The candidate for the ADEC Lifetime Achievement Award must have been engaged in the field for at least 25 years.  2013 marks 25 years since President Ronald Reagan’s Proclamation 5890, but the reason that, 25 years later, we still see such poor awareness and support for families enduring pregnancy and infant loss, is because of the enormous challenges bereaved parents face, to persevere and continue to exhaust themselves in the effort of making change.  Sherokee Ilse has trailblazed, kept the torch lit, giving us bereaved families after her the light of encouragement and support we have needed, to find our own way, and to help others after us also find theirs.  I am proud to consider myself a colleague of Sherokee’s, to offer similar bereavement training, and I am proud and pleased to nominate her for this prestigious award.  She is the first of our community to make it this far.  I’ve only been a member of the bereaved community for one year, and I know intimately just how intensely challenging the work of raising awareness and changing social response to loss can be.  Sherokee has spent her lifetime validating us.  It is an honor to validate her.

THREE (3) letters of support should be included from individuals who  are knowledgeable about the candidate’s professional  accomplishments.  

Please email your letters of support to Heidi.Faith@stillbirthday.info

From the National Health Federation:

There is an old Somali proverb that says, “You can only quench your thirst by lifting water with your own hands.” When Sherokee Ilse’s son Brennan was stillborn some 26 years ago, she and her husband David found themselves alone and unaware of how to say hello and goodbye at a time of crisis and deep pain. There were no pictures, no crib card, no lock of hair, no family members invited to even see him, and no burial – just a void, though they barely remember the five minutes they held him. To them, and especially to Sherokee who had carried Brennan in her womb for nine months, while the staff was kind-hearted, the decisions she and David unwittingly made quickly became regrets that haunted them. They were stunned to discover that this lack of “wise” guidance was routine in hospitals throughout America.

A “Mission Driven” Woman

The regrets over this occurrence haunted Sherokee to such an extent that she decided to make it her mission to change the climate of care. Describing herself as a “mission driven” woman, Sherokee wrote a book in 1982 – her very first – called Empty Arms: Coping with Miscarriage, Stillbirth and Neonatal Death. Written with the thought that it be given to families while they were still in the hospital so that they could make thoughtful decisions at the critical times confronting them, this book proved so popular that it is still in print in a recently updated edition with over 300,000 copies so far.

Six other books and seven booklets on the subject followed her first one. Among them are Miscarriage: A Shattered Dream (1985, updated 2003), Remembering With Love (1992), and Giving Care, Taking Care: Support for the Helpers (1996), all published by her company Wintergreen Press. (Sherokee’s website, with a listing of her books, can be found at www.wintergreenpress.com.)

Sherokee did not just stop with writing, however; she also took her mission on the road – teaching healthcare providers throughout the world in workshops and face-to-face meetings how to care properly for those families whose babies had died, including from miscarriage. The old way was the “football pass” (remove the baby and never let the mother or father see it). More humane and sensible care, in her view, included the need to acknowledge the parents’ grief, take pictures of their babies, create support systems, and very importantly open up their hearts to recognize that this painful experience can last a lifetime.

To Sherokee, teaching people how to deal with this loss through spending time with the baby is important, so that, as she says, “they can say ‘hello’ before they say ‘goodbye,’ which is key. Creating such memories and rituals allows parents opportunities for later conversations with others about their baby and it provides them comfort over time.” Indeed, since Sherokee began her efforts, the climate has fortunately changed for much the better.

Sherokee is – first and foremost – a speaker, giving powerful and moving speeches. Her very next speech will be at the International Stillbirth Conference in Birmingham, England this September-October 2007. And her speaking schedule over the years has led Sherokee to, among other places, most States in the US, and other countries such as Australia, New Zealand, Canada, and Japan. If anything has made her feel good about her own private loss, it is that through her books, writings, workshops, and speeches, she has helped so many others better handle their own pain and losses.

But, at the same time, Sherokee is quick to modestly point out that she is just one of the handful of pioneers who helped to make this change occur. She and these other pioneers literally changed the scenery – hospitals are very different in this respect now. Her own contribution of 26 years of significant travel, as well as the writing of fourteen books and booklets and many articles, gives her pause to realize that one person can make a difference in this World.

Join With an Aptitude for Creating Value

Another example of Sherokee’s “mission driven” personality can be seen in the way that she launched into improving her son’s education. After Brennan’s stillbirth, Sherokee and David had two more sons, Kellan and Trevor. As a former public-school teacher, Sherokee made education a priority in her family. When it became apparent that her sons’ school had different priorities and did not really respect the parents’ contributions, she swooped down on the scene.

Studying the situation, Sherokee immediately saw that the best solution was to create a new school. She invited others to co-found a small country-style school with multiple-age classrooms, character education, and family-oriented policies – a school that focused on traditional reading, writing, and arithmetic, utilizing “the best curriculum in the country,” reports Sherokee. Hill School began twelve years ago with twelve students in the basement of a church and promptly moved to a 115-year-old school building. Today, Hill School nudges the upper limits of its “small is better” philosophy with some 50 students studying in classrooms. The students easily hold their own in comparison with those of any other school.

Over the years, sometimes as a director, a teacher, board member, and all-around “supporter,” Sherokee has seen many young lives that have been changed for the better because of Hill School. Most of that credit, she demurs, belongs to the excellent teachers who shared and carried out the vision of a traditional, family-oriented school that avoids with a passion the latest educational, un-proven trends. Sherokee now just serves on the School Board but helps out in other ways when and as needed. The bottomline: Hill School is prospering and making a real difference in lives.

The Woman Behind the “Drive”

Although born in Michigan, Sherokee has lived most of her life in Minnesota. After graduation from high school in Minnesota, she attended Hamline University in St. Paul where she met her future husband David. They were married in 1974.

A graduate with a degree in education, Sherokee taught in public school but, searching for more challenge, left after four years. She then worked in various capacities – with runaway youth, teaching assertiveness training, and working towards an MBA among other things. But once Brennan died, all of this changed and Sherokee immersed herself instead in her mission.

Another turning point occurred when Sherokee became gravely ill five years ago. With her strong faith in God to support her and her amazing “health conscious” friends, she profoundly changed her diet and supplement plan. Fortunately, as a result of those changes, she completely regained her health so that she could once again lead the active life that she had.

Health and Health Freedom

Although her illness left her, the desire to spread the word to others did not. So, at this stage of her life, Sherokee began yet another mission – to help educate others about traditional natural healing and wellness, and to work towards ensuring that all alternative health practices remain available to people in America and around the world. During the past four years, she has progressed greatly in learning as much as she can about natural, traditional healing.

This includes spending time at the Minnesota State Capitol fighting for education and health-freedom. Sherokee recounts that “She first got into this whole arena trying to fight for better education only to realize that it is all interconnected, whether it’s education, environmentalism, or health. For us to preserve our education, freedoms, and our health, we have to stay alert and stand up for our rights.”

It was my good fortune in the Fall of 2005 to meet Sherokee standing up for those rights while we were both attending a health-freedom conference in Minneapolis, Minnesota. Being the generous persons that they are, Sherokee and David even let me stay with them at their home outside of the city during this trip. Sherokee joined the National Health Federation at this time.

Then, the following year, at the Fall 2006 health-freedom conference held that year in St. Paul, Minnesota, Sherokee and I worked together to help develop the International Declaration of Health Freedom. It was there that I began to really appreciate the sharpness of the political and organizational skills shown by Sherokee, skills which had obviously been honed to a fine edge over many years. With such talent and passion, she was an obvious choice, then, when it came time to nominate persons for election to the NHF Board of Governors, a position she now holds.

And, to think, this all started when she decided to do something about a private, personal loss – to quench her thirst with her own hands, as the Somalis would say.

 

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From One Coast to Another

Contributed by: Birth Faith, a pregnancy blog

 

In the aftermath of Hurricane Sandy, homes are left without electricity and families are subjected to dangerously cold temperatures.

Babies in particular, are subject to hypothermia.

Please click here to learn more about hypothermia.

AERObridge will be flying donated items from Arizona:

Our mission is to assist in times of catastrophic emergency by coordinating donated aircraft to provide a powerful, immediate response to disaster. By matching aircraft with emergency response teams and critical supplies, we are able to provide a vital window of assistance to save lives and aid those in need.

All items must be to them by Tuesday night, November 6.

ITEMS REQUESTED: Flashlights with batteries Blankets or sleeping bags Warm clothing, jackets, gloves, etc. All items can be new or gently used

Drop Off Location: Cutter Aviation Phoenix Sky Harbor Int’l Airport 2802 E. Old Tower Road Phoenix, AZ 85034-6000

The easiest way to get there is south on 24th St., past Buckeye until you see the signs for Cutter Aviation, which is an eastbound turn off of 24th St. Use the Bay Door on the right, ring buzzer to go through.

The Red Cross is also taking financial donations.

 

 

Fatal Zoo Trip

Contributed by: Jenny

 

A couple took their two year old son, Maddox, to the Pittsburgh Zoo.

The boy wanted a closer look at the African painted dogs.

His mother lifted him to stand on top of the railing.

Under the railing was a fenced screen.

The little boy lost his balance, fell out of his mothers arms, and past the fenced screen – into the pit.

The mother screamed for her boy, but nothing could be done.

Particularly after recently watching “The Grey”, the images of this tragedy are just so very heartbreaking.

Please, all, please, be vigilent in sending positive thoughts and prayers of gentleness and healing into this community, to the zoo keepers, to the other zoo visitors (parents and children) who witnessed this tragedy, to the police officers who tried unsuccessfully to shoot the dogs away from this little guy, and for this family.

The guilt, pounding on top of loss, must be absolutely crushing to this mother.

Please, think of her with compassion.  All she was trying to do was gift her son with a closer look at what looked to him to be harmless puppies.

But he slipped past her fingers, instead.

This outside link has an official news report.

The SBD® Doula provides support to families experiencing birth in any trimester and in any outcome.

Here at stillbirthday.info, you can learn about the SBD® Doula.