Neonatal Death/Fatal Fetal Diagnosis

When a baby dies in the first 28 days of life, it is technically called a neonatal death.

I personally find technical timeframes like this to be arbitrary in our emotional interpretation of our experiences, and I hardly think the term addresses the enormous amount of feeling we may have.  We do at stillbirthday provide support for every technical name, medical label, and timeframe category of parental bereavement, including all of the many names for pregnancy loss, neonatal death, older infancy, and toddlers to teens.  Just visit here to learn more.

Some parents know ahead of time that their preborn baby may have a condition “not compatible with life” after birth.  While these parents may in some ways prepare for the birth of their baby and try to anticipate the very short time they may have with their baby, the experiences are heartwrenching, agonizing and painful.

For these parents, already having a personalized birth plan may help support them through the process.

Still other parents go on to deliver a healthy child, and without any notice or warning whatsoever, the child dies.

In either case, this website offers a number of supportive services:

  • information regarding the process from realization to farewell celebration (including a customized birth plan for no or short expectancy of life,  and another to serve families when given extra time, and additional resources for various diagnoses).  The PROCESS link is extremely valuable.
  •  statistics
  • information for friends and family on how to best support you
  • professionals and volunteers to support you
  • local, national, and international long-term support services and resources including books
  • farewell celebration ideas
  • a place to share your story
  • a place to read a story or two from other parents and see their babies photos
  • please visit our Love Cupboard for newborn clothing support which may prove useful when given extra time

 

Photo 4 Week Gestation Baby

4 weeks

(go back)

4weeks

Before I formed you in the womb I knew you” says the Lord

Jeremiah 1:5 

Chemical Pregnancy

If you have begun to miscarry, and hadn’t yet been able to hear your baby’s heartbeat with a doppler, your doctor might have said that you are having a chemical pregnancy.

This means that it’s a very early miscarriage.

Related: please read our Honoring Uncertainty

This very early miscarriage–or the name of it–doesn’t make your baby any less real.  At 5 weeks gestation, just about the time you may have found out that you were pregnant, your baby was about the size of a sesame seed.  And, at 5 weeks gestation, your tiny baby’s heart has already begun to beat.  It’s just too small to be heard on a Doppler.

While identifying your baby at this stage is probably just not going to happen, because of everything that is delivered during the miscarriage, including uterine lining and lots of blood, your baby is real.  Your feelings about your baby are real.

You will likely have a natural miscarriage, or natural delivery.  Rarely, artificial induction or a D&C may be recommended.  You can learn about these different birth methods here:

You are invited to share your story here as well: please remember that sharing your story at stillbirthday is a way to express your feelings and share your experiences with other mothers – it is not to diagnose, treat or answer any medical questions.

You might visit our farewell celebrations for ideas to celebrate your baby.

Postpartum Health

There are many important aspects of your health that need to be given attention after a miscarriage or stillbirth.

Emotional/Spiritual

Physical

  • It is important for you to take care of your body.  Some mothers, through their grief, seek to lash out their pain or anger toward their bodies.   You need to take care of yourself, including these topics:
  • Rest.  Do not perform heavy lifting or excessive work.  Ask for help and receive it.
  • Stay hydrated.  You need to be drinking plenty of water and other clear fluids.
  • Take a warm bath.  Consider taking a soothing herbal bath, including nettle, sage, yarrow and/or oregano.
  • Understand about postpartum hemorrhage , lochia and blood loss.
  • Many mothers experience postpartum hair loss as pregnancy hormones shift after the birth.  You may experience the same.
  • Know your options regarding post – loss lactation.
  • Continue eating nutritiously and taking your prenatal vitamin to replenish the vitamins lost during the loss.
  • You might utilize things such as healing essential oil to support your physical and emotional strength.
  • Consider postponing any farewell celebrations you select until you are physically able to participate (particularly after a Cesarean birth).
  • Some mothers find comfort in wrapping a rebozo around their belly, to give yourself a hug.  Your belly area may feel “not quite right” as you are not pregnant but not holding your baby.  Laying on your tummy or using a warm pad can help with cramping as well as feel like you are giving yourself a hug.
  • It can be difficult to know what to ask of your friends and family.  We can help.  Just give this link to your friends.
  • Additional postpartum health tips are located within each printable birth plan.
  • Attend your well-check visit with your provider.  Bring a stillbirthday doula with you.
  • Our “subsequent/rainbow” pregnancy resource section has information regarding the many aspects involved in “TTC” or “trying to conceive after loss.”

Postpartum Nutrition

It is important to take care of yourself, both physically and emotionally, following a pregnancy loss.  Regardless of the kind of pregnancy loss or the birth method you’ve used, it is important to replenish lost vitamins from blood loss and the birth.  Here are a few helpful tips:

  • Continue taking your prenatal vitamin.
  • Ask your provider about floradix, hemoplex or chlorophyll, as these are said to have nourishing properties that can aid in replenishing lost iron and providing additional oxygenation to your blood.
  • Stay hydrated.
  • Salty broths can be satisfying and aid in lost iron.
  • Vitamin C can help your body better absorb iron.
  • Getting sunshine (even a one time trip to a tanning spa if it’s winter) can help invigorate you.
  • See the rest of our postpartum health tips.

It can be important to consider that you will need to eat for healthy grieving.  Foods that you eat with mindfulness while pregnant can seem especially painful to you in early postpartum.  Select foods that can bring nourishment to your grieving heart.  Simple snacking on things like cheese cubes, hard boiled eggs, prepared sliced fruit, and water can be easier to eat and helpful.

Postpartum Hemorrhage

If you are giving birth at home, it is important to be aware of the symptoms of a possible hemorrhage.

Hemorrhaging is a serious concern in at-home miscarriage, and may be enough reason for your care provider to discourage you from attempting to complete your miscarriage at home.

Generally, you will probably be cautioned that filling a regular-absorbancy maxi pad sooner than one hour, at any time, is cause of concern; immediately postpartum (that is, right after the baby is born), generally speaking you should not fill a regular-absorbancy maxi pad sooner than a half-hour in the first hour (so, you can go through 2 pads in the first hour postpartum), as it is common to experience some increased bleeding at the actual time of delivery.

An at-home aid in reducing blood loss may be found in a small amount of apple vinegar.  This is something best discussed with your care provider while you are still laboring and before the birth.

If at any time you fill a maxi pad sooner than a half hour, experience dizziness, or a racing heart, you should consult a medical professional immediately.

If you are soaking through a maxi pad sooner than recommended by your medical provider, you need to seek medical attention (if you cannot reach your provider, please go to your nearest emergency room) immediately.

Medications that may be prescribed to help control the postpartum hemorrhage include:

  • Misoprostol
  • Methylergonovine

Misoprostol (a prostaglandin) causes your uterus to contract, so that your baby can be delivered.  In addition, the prostaglandin works to block a hormone (progesterone) from completing its pregnancy function of supporting the uterine lining that the baby has been growing in.  This will stop your body’s efforts of sustaining the pregnancy.  “Cytotec” is one prescription name used, and misoprostol is said to have about an 80-90% effectiveness rate in delivering miscarried babies and completely expelling all of the placenta pieces.  It is considered more effective than methylergonovine, but is not FDA approved for this use.  For this reason, mothers may wish to request “Methergine” if it is considered a safer option by their provider.

Methylergonovine, commonly prescribed as “Methergine” is also a uterotonic; it causes your uterus to contract, which can shorten the duration of the delivery process, thus stopping the homorrhaging.

Your doctor will discuss with you the side effects and warning signs to look out for when taking these medications, and the amount of time it should take to complete the entire process.

Please visit our Levels of Augmentation article on herbal and natural alternatives to medications to help augment/speed up the time of the delivery of your miscarried baby.

(Click here to be taken back to the article on natural miscarriage or to the article on artificial induction.)

Postpartum (all birth methods)

It is important to take care of yourself, both physically and emotionally, following a pregnancy loss.  Regardless of the kind of pregnancy loss or the birth method you’ve used, it is important to replenish lost vitamins from blood loss and the birth.  Here are a few helpful tips:

  • Continue taking your prenatal vitamin.
  • Ask your provider about floradix, hemoplex or chlorophyll, as these are said to have nourishing properties that can aid in replenishing lost iron and providing additional oxygenation to your blood.
  • Stay hydrated.
  • Salty broths can be satisfying and aid in lost iron.
  • Vitamin C can help your body better absorb iron.
  • Getting sunshine (even a one time trip to a tanning spa if it’s winter) can help invigorate you.
  • See the rest of our postpartum health tips.

Children, Teens and Loss

.

.

kiddos5

Helpful Information for Adults

  • Do know that the things you say to children can become a basis of their performance anxiety and their measure of their interpretation of the worth of their own authentic bereavement response.  Do not place platitudes onto children.  Do expect bereavement, and this looks different for each age group.  Healthy bereavement can include otherwise unpleasant behavior, including tantrums.  This is important.
  • Do not tell children that they need to chin up and take care of their parents.  They will not.  They miss their parents as their parents mourn.
  • Do not tell children or parents that at least they have each other.
  • Children grieve the loss of the sibling they may or may not have known or felt connection with.  Children grieve the attention of their parents and grieve the family environment that may never be the same again.  This is not a time for children to rise to the occasion with bravery, but instead to learn more of who their sibling was and is in the family, and learn more of their own, the grieving child’s, inherent worth in the family.  Behavior changes may be one way of wrestling this out.

 

Resources for Adults Supporting Grieving Children

  • Tips for how to tell your other children
  • Know what your other children’s concept of death is, by age
  • Are you rearing children while also mourning children?  You can share about your journey in our Holding Umbrellas collection.
  • When Teachers Face Grief in the Classroom – Dr. Silverman (outside article)
  • The Impact of Miscarriage on Our Daughters is an outside article
  • Our international Long Term Support section has crisis hotlines, books and more (and our local long term support section has resources, including counseling, in your own community)
  • The dynamic of grief in the home between mom, dad and surviving siblings can be a difficult one.  While mom might be nurturing her children’s mourning – that is, their outward expressions of their internal grief – dad may be mourning differently, and if these differences are not validated and honored, it can begin to grow a quiet sense of mom and siblings versus dad.  For this reason, if possible, dads are encouraged to read a grieving book with their children or engage in their journey in some way.  One book I recommend for this is Michael Rosen’s Sad Book.  It is about a bereaved father who lost his teenage son, so a couple of pages might not be the perfect fit, but the images, language and tone can be very valuable in this relationship and journey.

 

Noteworthy Facebook Pages

hk

 One of the reasons I like the pinwheels so much, is that when you give a kiddo a pinwheel, they often like to try to blow it to move.
Most anything that encourages kiddos to blow – pinwheels, bubbles – helps deepen their breathing, and as such, can help regulate their heart rate, and help to offer a calm. Pinwheels also are fun, and even texturally and visually inviting, so they can be a pleasant offering
to mothers and siblings alike, both trying to find stability through devastation.
Pinwheels are joyful. And joyful, is good. ~Heidi Faith

Resources for Children

By Country

 

Resources for Grieving Teens

Resources for Adults Supporting Grieving Teens

 

 Children & Teens Can Encourage One Another

Stillbirthday holds the stories and experiences of children and teens.  If you have a special drawing or other artwork, or you have a poem or would like to journal your experience and feelings, we’d be honored to hold your feelings and validate you here.  Please speak with an adult about sharing your story, where it will be held at the “Siblings” section of stories.

 

 

Books for Children

gowns1

Birth Plan 31 Weeks or More

This includes the following birth methods: natural delivery – artificial induction (medication) – Cesarean.  We also have an at-home birth plan.

 

Printable Birth Plan Documents:

 

Printable Plan Specific to Adverse / Fatal Diagnosis:

 

Things to Know:

  • Because the first plan covers 2 different birth methods, specifics to each particular birth method will be noted.
  • Cesarean has its own birth plan because it is so in-depth.  You might consider printing both plans, in case your birth turns into an emergency Cesarean.
  • This plan is appropriate for pregnancies about 31 weeks to 40 weeks or more.
  • These plans do not include specific options you may wish to include if your baby may survive past birth, including possible resuscitation, ventilator use, medications and additional testing.  You should consider including these things if there is a chance of your baby surviving for any additional time past delivery.
  • If your baby is expected to receive care in the NICU, here is a listing of NICU specific resources and information.
  • Some providers discourage parents from touching preemie babies receiving NICU care.  This article can give more information on why that is, and what you may be able to do.  The NICU experience alone can promote parents grief.  Please see our article on Identifying Grief to find information and support regarding grief but also the correlation between the NICU experience and grief/depression/PTSD.
  • Within the first 24 hours after your baby has died, there may be an opportunity for you to decide on organ or tissue donation.  Please discuss this in advance with your spouse and with your medical professional.  Purposeful Gift is an organization founded by an SBD trained doula.  You can also learn more by Googling “donor network (your state)” , finding your local OPO, or contacting your local organ donation center.   Cord blood information can help you determine the likelihood of your donating your baby’s cord blood.  Here is information specifically for organ donation from an anencephalic baby.  Any of these things will depend on a number of factors unique to your situation.
  • Get more birth education and learn what to expect during labor, here.
  • Please visit our link on general postpartum health (your emotional and physical health after delivery).

Helpful Tips:

  • Check out our listing of local professionals and volunteers willing to support you through the process
  • Learn about the special way to give a stillborn baby a bath.
  • consider hand or feet molds of your baby
  • consider inkless prints: fingerprints/handprints/footprints of your baby
  • Your body is likely to produce breastmilk after the birth of your baby.  Please learn about post loss lactation . This link discusses breastmilk donation in particular.
  • If your state doesn’t offer a birth certificate for stillbirth, consider printing off our unofficial birth certificate (found at the Farewell Celebrations link).
  • Consider special farewell words or music.
  • Also include a personalized farewell celebration.
  • Ask for your ultrasound photos, or visit a local Crisis Pregnancy Center that performs ultrasounds, and ask if you can have one last photo of your baby.
  • Prior to birth, if your baby still has a heartbeat, consider using your cell phone or other recordable device, and record the doppler’s sounds of your baby’s heartbeat.  You can then add this to a Build-A-Bear as a momento.  Alternatively, you can purchase a beautiful Angel Heartbeat Bear, which has everything included.
  • Using a heartrate monitoring (fetal heartrate) “strip” – a section of the paper that prints the baby’s heartrate, you can then turn this pattern into an engraving for a necklace or other keepsake.  These are called “soundwave necklaces” and you can do a little google search to learn more about them.
  • Prior to birth, consider having a belly cast done as a momento.
  • Prior to birth, consult with your doctor and with the funeral home that you select, to see if special considerations can be made, such as, you leaving the hospital with your baby, to take to the funeral home.
  • More momento and special ideas are listed in the birth plan.

Have an idea of what your baby may look like:

Resources Specific to Various Diagnoses:

Birth Plan for 20-30 Week Gestational Baby

This includes the following birth methods: artificial induction (medication) and natural delivery.   (D&C – D&E are covered in the early pregnancy hospital birth plan)

 

Printable Birth Plan Document:

20-30 Weeks Birth Plan  (click to view, edit and print)

 

Things to Know:

  • Because this plan covers different medically assisted birth methods, specifics to particular birth methods will be noted.
  • This plan is appropriate for pregnancies about 20 weeks to about 30 weeks.
  • Learn more birth education, and what to expect during labor, here.
  • Please visit our link on general postpartum health (your emotional and physical health after delivery).

Helpful Tips:

How far along are you?  Click to see the last developments of your baby:

Early Pregnancy Home Birth Plan

This includes the following birth methods:natural home delivery- artificial induction (medication) –  methotrexate (for ectopic/tubal pregnancies)

Printable Birth Plan Document:

Early Pregnancy Home Birth Plan  (click to view, edit and print)

Things to know:

  • You should not miscarry your baby at home alone.

Helpful tips:

  • Check out our listing of local professionals and volunteers willing to support you through the process
  • Consider special farewell words or music.
  • Also include a personalized farewell celebration.
  • Ask for your ultrasound photos, if any, or visit a local Crisis Pregnancy Center that performs ultrasounds, and ask if you can have one last photo of your baby.
  • If your baby still has a heartbeat, consider using your cell phone or other recordable device, and record the doppler’s sounds of your baby’s heartbeat.  You can then add this to a Build-A-Bear as a momento.
  • More momento and special ideas are listed in the birth plan.
  • If after the birth, you experience pain, fever, bleeding that fills a pad sooner than an hour, clotting, or a foul odor, please see your care provider immediately.  Please view the article on postpartum hemorrhage.
  • Our birth education section has additional information that may prove useful to you, including our Levels of Augmentation article that provides ways of naturally augmenting/speeding up the labor process.
  • Please visit our link on general postpartum health (your emotional and physical health after delivery).

How far along are you? Do you know what to expect to possibly see?

Early Pregnancy Hospital Birth Plan

This includes the following birth methods: artificial induction (medication) –  methotrexate (for ectopic/tubal pregnancies) – laparoscopy (for ectopic/tubal pregnancies) –  D&CD&E

 

Printable Birth Plan Document:

Early Pregnancy Hospital Birth Plan (click to view, edit and print)

 

Things To Know:

  • Because this plan covers different medically assisted birth methods, specifics to particular birth methods will be noted.
  • This plan is appropriate for pregnancies about 19 weeks and under.  We also have a birth plan for weeks 20 to 30.

Helpful Tips:

  • Check out our listing of local professionals and volunteers willing to support you through the process
  • Consider special farewell words or music.
  • Also include a personalized farewell celebration.
  • Ask for your ultrasound photos, or visit a local Crisis Pregnancy Center that performs ultrasounds, and ask if you can have one last photo of your baby.
  • If your baby still has a heartbeat, consider using your cell phone or other recordable device, and record the doppler’s sounds of your baby’s heartbeat.  You can then add this to a Build-A-Bear as a momento.
  • More momento and special ideas are listed in the birth plan.
  • During this stage of pregnancy, you will likely be unable or discouraged from seeing your baby.  The baby may not be delivered completely intact.  If you ask your doctor during the time of the birth, you may be allowed to have your baby returned to you after their analysis/autopsy of the baby is complete.  If you are permitted to have your baby returned to you, a representative of the hospital will likely call you within two weeks of the birth for you to come and receive your baby.  He or she will likely be placed in a small container.  Please know that your baby is not going to be intact, and the physical form of your baby may be extremely upsetting for you to see.  Please consider not opening the container.
  • Your doctor may also offer suggestions for physical pain relief, including medicinal options.  You might also inquire of prescription of estrogen and progesterone treatments, as this has been theorized to reduce the incidence of intrauterine adhesions, therefore possibly preventing future additional fertility challenges as a result of the birth method needed for this pregnancy.
  • If after the birth, you experience pain, fever, bleeding that fills a pad sooner than an hour, clotting, or a foul odor, please see your care provider immediately.
  • Our birth education section has additional information that may prove useful to you.
  • Please visit our link on general postpartum health (your emotional and physical health after delivery).

How far along are you?  Do you want to know the last developments of your baby?

The SBD® Doula provides support to families experiencing birth in any trimester and in any outcome.

Here at stillbirthday.info, you can learn about the SBD® Doula.