I Waited, I Died, I am Healing

Told by: Judy

I tried to get pregnant for several years.

I carried twins for 4 1/2 months by in vitro fertilization and lost them.

I carried their lifeless bodies inside me for 2 weeks after knowing they were gone since my doctor was traveling overseas. I did not feel comfortable to have any other doctor take them from me so I waited. A few local hospitals kept calling me constantly for a full year asking if I was interested in their baby wellness program. I lived the horror of their deaths every time I received those calls. I kept telling the hospitals what happened but they continued to call…I felt dead inside for years.

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Zayra’s the Eldest

Told by: Sabrina

My daughter was born sleeping at 32 weeks on October 6, 2012,we named her Zayra Rayne she weighed 4lbs 4 oz and was 18 1/2 inches long. I posted my story about my daughter under the 32 weeks page. Sadly this was not the end of our disastrous 2 years. 6 months after we lost out daughter, we decided to try again.

The doctor gave us the go ahead but warned this pregnancy would have more tests so we could try to prevent another sleeping baby. I got pregnant that month, we were so happy this was going to be our rainbow baby. I had blood work down 4 times a week to check my HCG levels to ensure they were rising like they should.

At 8 weeks I began to bleed, we called the doctor and we were told to come right now. We had an ultrasound done and to our horror our child had passed away at 6 weeks. I decided that I would let my body do the natural thing and have my child at home. I was in pain,it felt as though I was having contractions that night at 9 p.m.

I gave birth to our daughter whom we named Deona Marie.

The next day the doctors confirmed my baby was no longer there. My doctor would later inform me that he knew I would miscarry because my HCG levels stopped rising at 6 weeks. 2 months later I became pregnant once again, it was our little surprise but we were ecstatic and scared. I had blood work done 3 times a week my HCG was rising great. I had every symptom in the book. I went to the doctors for my 8 week check up, I had to go alone because my husband had to work. During the ultrasound I saw my babies little legs and arms sadly I also saw that my baby did not have a heartbeat.

He had passed away the day before. We named him Ace Hope. The doctor told us we should do an emergency D&C because he wanted to know why this happened. I reluctantly agreed.

The tests showed nothing, we still do not know why this has happened 3 times in a row. I am unable to comprehend why this is occurring to us. All I wanted was a baby to hold and love to be ours; and it can not happen. I have no hope left.

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Miscarriage: Blessing in Disguise?

Told by: Amanda

Since the birth of my son, I have yet to have a successful pregnancy. I felt it appropriate to share some of my thoughts on my three early-term miscarriages. I want to put this experience out there for anyone who might be going through the same thing.

In October, 2008, I conceived the most perfect and amazing little boy possible.  His name is Allen.  I loved and continue to love him with all of my heart.  My husband and I wanted him and were actively trying to have a child.  That was my first pregnancy and it was textbook perfect.  We knew within days of conception that I was pregnant and saw his beautiful beating heart at only four and a half weeks. We never returned to any form of contraceptive because we knew that we wanted to continue growing our family to include at least one, but maybe two more children.
In August, 2010, I conceived for the second time. We were elated!  I carried this fetus for nine and a half weeks. Unfortunately, the baby stopped growing at around four.  Because my pregnancy with Allen was so perfect and easy, miscarriage did not occur to me. Then the bleeding began…  When I went to the doctor, they told me that miscarriage was imminent and that the child was no longer growing and had no heartbeat. I was sad, but what upset me the most was how quickly they offered to “fix” it by doing a D&C or giving me induction medicine.  My thoughts were this- even if this child is passing away, it is my job to mother it by letting it die gently and not having them scrape it out.  It was a horrible thought to me! The baby was made in love and I was determined to let my body naturally do what it was made to do.  The response that I got from hospital staff was annoyance and repeated questioning as of whether I understood what was happening or not.  I maintained my answer- yes I understand and obviously my body understands how to handle it! The entire “labor” included real contractions and took around five hard hours.  The rest was a week of normal menstruation.  An artistic rendition of this child can be seen on my portfolios:
sleep well little one

photo source

The following year I had two other pregnancies which resulted in miscarriage at four weeks.  The hardest one of the three occurred right before my husband’s deployment.  We spent a lot of time together in the month prior in preparation for his departure.  We were elated to learn the day of the deployment that I had conceived. Within two weeks the child was lost. The hardest part was the realization that my husband was in a war-zone and that he could die and I would never again carry a child of his.  I was devastated and fell into a crying mess.  I can say that I was depressed for a while over this one.  That was the last time I have conceived to date, and was over two years ago.  At that time I was tested in every way possible and found that I am perfectly normal and that the fetus, along with the other two, likely was simply not viable.

            Shortly after this miscarriage I completely stopped menstruating. When my husband came home, I finally cried to him and as un-feminist as this is I broke down to him about how I felt I was not able to bear his children the way I wanted to.  I told him that I felt like this was the biological function of a wife and I was sorry for letting him down.  He told me that Allen was a handful and he could be perfectly happy if we never had another child. He assured me that Allen is enough and I am enough. I realized he was right.  Saying that we have “only Allen” would be understating the incredible joy that we get from his smile each day.  There is no saying that we only have Allen, but that we are lucky to have him.  As we talked about it we decided that he can be and is more than enough.  We are lucky to somehow deserve such a perfectly healthy little guy. My husband does not wish to adopt nor have any type of fertility treatment.  I obviously respect his wishes.
            Walking away from the experience I realize that I am blessed to be able to devote my time and attention to one incredible little boy.  Seeing friends and colleagues who have never birthed a child makes me realize that I am blessed to have the one that I do.  Knowing some of my family history makes me realize that I am blessed to have one healthy child rather than a herd of children with disabilities. Obviously I would love any child of mine with all of their accompanying needs, but I have a husband with PTSD who needs the quieter home with which we have been blessed. His PTSD comes with special needs and demands which make our smaller family a blessing so that I can manage all of the needs of my husband and my son.
I have also had the privilege of knowing strong, amazing women who have had to put their child up for adoption, raise a child who resulted from rape or to endure the incredible pain of a stillbirth.  Having been through three miscarriages I can say that nothing that I went through has been that painful.  I am blessed.  I am blessed with the most incredible little boy I could have ever dreamed of. I am blessed with devout appreciation of him and never taking him for granted. I am blessed to not be diagnosed with PCOS, cancer or infertility.  I am blessed to have hope that one day we could conceive again. I am blessed to have what my family needs at the moment, rather than what we want down the road.  I am blessed with my upcoming graduate degree and bright career path at a younger age.  I am blessed to live in a country where I could one day adopt a daughter if none is born to me.  I am blessed to have never had to bury a child. I am blessed to never have labored a child who was not alive. I can say in so many ways that miscarriage is a blessing.  There might be a plan from a higher power, and people say what is meant to be is meant to be.  For me, in this life, miscarriage has happened and it would seem that it was meant to happen for the better of my family.
            Blessed be all.  I am sorry again to write on such a darker topic, but not enough people share these kinds of stories so I wanted to be sure to share mine with anyone who might need to read it.  Shared with permission.

Rainbow Fatigue

There’s a point I hope to share with you,  but there’s a tiny bit of a backstory to get to where I’m wanting to take you.

Shortly after giving birth to my third child, another handsome son, his beloved great grandfather died.  When I say shortly, I mean, literally that same week.

Our entire family was devastated.  Not because we didn’t necessarily see it coming, but because we truly loved him dearly.

And in the midst of preparing for all of the things that come with a traditional farewell, all of the attention from everyone I loved turned to their feelings of their loss at our beloved strong man.

Standing in the funeral parlor, holding my newborn close, people who I’d never met touching my son for their own comfort.  Pulling back the blanket his mother had strategically placed to allow him to be visible but covered.  Grabbing his tiny newborn fingers, tugging them away from his face and pressing them around their fingers for a moment of their own comfort.  I stood, feeling defenseless, exposed, and ignored, in the procession of people slowly shuffling forward to have our turn to see the chilled physical form of a man who founded two generations of strong, leading men and respectful, hardworking women.

I stood, silently.  Like an empty platitude, only being offered out of social requirement.

I stood, holding my breath, waiting desperately for my turn with the man I loved, so that I could escape the rest of it.

Finally, my emotional strength collapsed, but it did before I got my turn.

I left that parlor, newborn in tow, and found the nearest little office where I could sit, collapse, and just, be.  I don’t regret standing as long as I could.  But I know I would have regretted it tremendously if I had stood a moment longer, being disobedient to the authentic love I knew I had to give.  The authentic love, I know I am to be.

Be the strong, protecting mother I know that renewed man above – not the old man behind me there in the overcrowded conference room – fought his whole life for the generations after him to be.  I was weary with being submissive to a ritual that my entire essence was rejecting.  I wanted to love, but love was being stifled by politeness and expectation.

Scooping my newborn son to my breast, I heaved a sigh of relief to have before me the very task that interrupted my sleep, my own meals, in fact my every single moment for the 10,080 consecutive minutes from his birth until that very moment.  I studied his sweet face as he drank, traced the seam of his pants with my finger, and fell entirely in love with this precious, vulnerable person for the 1 millionth time since I knew he was.   I was so captivated that I stayed squarely in that seat until I heard the last hushed stranger’s awkward goodbye in the entryway behind the thick door behind me.  Then, just me and my full bellied son quietly went to the place where one of our heroes lay.  I whispered secrets to them both, telling him, both, how much I love him, and the other.

Do you know what I’m saying?

I needed that.

And I have observed something in the bereaved community, something I haven’t really seen officially mentioned but something that so many mothers have tried to articulate, a similarity in many of our stories, in our feelings, in our concerns.  After much reflection, I hope to present to you what I think this is, and if it resonates with you, I hope you know you aren’t alone.

I write this as Christmas is just a few days away, knowing our culture can build such an anticipation of what we hope – nay, what we expect – from others.  We shop for gifts for others with a nagging voice in our minds – “I hope he noticed I could really use ___.  I hope she noticed that I would really like ___.”  And for bereaved parents, our concerns run deeper than physical packages.  “I secretly dread seeing ___.  I just really do not want to hear from ___.  I do not want to face this day and I want it to move quietly behind me. ”

And then, we have the next year upon us.  A whole new number thrust upon us in such a way that it becomes a habit, even if one we despise.  “I am not ready to leave this year behind.  I do not want to whisk my feelings aside with it.”  Or, “Let’s just usher in this new year.  Maybe I can get over this year.  Maybe then I can just move on.”

Whatever struggles you are facing in this season, this is a season that can seem to automatically propel us into a place of expectation, of moving on.  It can seem the sense of discontent, of wistfulness, of longing, of anticipation can be so strong it permeates everything – the way we drive, the way we eat, how we feel about commercials, how we feel about our relationships, how we feel about ourselves.

I draw these things to your attention because there is a different kind of baby blues I see, too.  I’ll call it “rainbow fatigue”.

It’s something caught by loved ones and by bereaved parents alike.

Trying to conceive is such a commonplace expression that we usually chop it down to just three letters.  TTC.

It becomes more than learning about your body in an intimate way, or falling in love with your spouse all over again.

It, the trying, can become so consuming, that even while finally pregnant, mothers can still be so entirely distracted with the aching desire for even the very next day.  “It ain’t over (the fear) until I hear that baby cryin.”

We are pregnant and a nervous wreck and we are terrified to tell someone.

And then our “rainbow” babies are born.  Our living babies are placed in our arms.

And we spent so much time in our pregnancy following the expectation we set by our own fear that we cannot enjoy the moment, that suddenly we are presented with a person, a vulnerable person who needs us entirely, someone who has not just been hidden from our sight for nearly a year by the place of gestation, but hidden from our heart by the place of fear.

So now, once and for all, you are charged with intentionally nurturing this person you spent approximately 280 days of pregnancy hoping for, possibly physically preparing for, but not emotionally or spiritually realizing was already here, was indeed already yours.

It is a difficult, confusing place, to be thrust into the hours, days, months ahead, soothing the needs of this child you longed so desperately for, his or her cries interrupting abruptly your own thoughts as you wonder how you got so suddenly from a place of desperately aching for a child, to be granted the role of serving the endless demands of a person who depends wildly upon you.  The months of pregnancy didn’t prepare you for this.  The months of pregnancy.  Still TTC.  Still trying to conceive the notion that you are loved, that you have love to give, that you are given ordinary moments to discover your own little greatness.

I want to challenge you today, wherever you are at in your motherhood – if you are rearing, mourning, or both – that faith isn’t about obeying social expectations or how well you think you hope or even what it is you hope for in the future.

Faith is about finding value in you, in this place, in this moment, unconditionally.

May you find that faith, in this season of your life, in this year, in this very minute.

Be, present.  Discover that you can receive love, offer love, be love, unconditional.

I believe in this so entirely that I will soon be having a giveaway that will include an opportunity to invite you into practicing this in a tangible way, so stay near to stillbirthday to check it out.

rainbow fatigue

{original photo source}

 

 

I am a Mother

Told by: Jess

I never thought I would be where I am in my life. I have a beautiful 11 1/2 year old daughter who I delivered at 32 weeks. She came after going into labor at 4 months from an incompetent cervix. I was 24 years old and had been married to her father for 3 years. They did not think I would make it to deliver her and offered an abortion. I knew she was mine and meant to be. So I fought.  She is perfect. When I was 17 I lost a little girl at 6 months 2 weeks.  Also before my daughter came I had had several miscarriages. I was overwhelmed with joy with the delivery of my beautiful daughter.
When I was 28 I became pregnant with my daughter Genevieve. I had a cerclage at 12 weeks.  I was in a horrible roll over car accident when I was 4 months pregnant. I walked away without a scratch but when I delivered her still born at 38 1/2 weeks I knew the umbilical cord injury was most likely caused from the accident. I was devastated.
My marriage fell apart. He thought I should snap out of it after 5 days. It’s a pain that never goes away. We divorced.
Four years ago I met the man of my dreams. He healed me and gave me permission to grieve and subsequently heal. Two years into our relationship I found out he had AIDS.  I almost lost him.  That’s an entire story in itself. He is now doing well and as healthy as can be expected after almost dying.
Our dreams were crushed. We were in love and knew children were most likely never in our cards. Well God had different plans. I thought I was depressed or maybe had mono – we always use protection. But nothing is for sure. I became pregnant last September. I was overwhelmed with emotions. I was scared, thrilled, sad, and many other things.   I had the most high risk pregnancy ever. Got my cerclage,  went on massive preventative anti viral medications and found out my daughter most likely had vacterl association as she has a heart defect and a spinal defect.
To make a very long and scary story short, she has no HIV, no vacterl and her heart defect closed up.
I felt like a failure when I delivered her with a emergency c-cection after 48 hours of hard natural labor.
But I am not a failure. She is my beautiful Snow.   Born at 37 weeks she is perfect in every way. Sent from our higher power for us to raise and love.
I see my daughter Genevieve in her. She is ours. Proof that you can have life after loss. I’ve lost so much in my life. But I have been truly blessed with just as much. Nothing is impossible.  The pain from losing a child never ever goes away. But time does blunt the blow a bit. At 35 years old I never thought I would be holding a beautiful 5 week old daughter. But I am. This is just part of my story. I am strong. I am a mother.

Our Watchful Flicker

Told by: Courtney

In April of 2012, my husband and I decided to start trying to conceive. In May my period never came. My doctor said this is normal and sometimes women go months without having a cycle but I knew something was wrong.

After 2 months of no period and countless negative pregnancy tests, we found out my body had quit ovulating altogether and that I had mild PCOS. Progesterone was used to get my cycle going again and we were given Clomid to assist/start ovulation.

On Tuesday, November 6, I found out I was pregnant and surprised my husband with balloons, posters around our house, and an outfit with his favorite basketball team emblem on it! We were thrilled!

I know a lot of people wait to tell family and friends until after 12 weeks but we told everyone! We could not wait! This is what everyone was praying for and it was happening! A couple weeks later we had our 8 week checkup and we saw our baby and heard that precious heartbeat.

One week to the day later I was at work and felt like my period had started. I ran to the restroom to see that I was bleeding very heavy and having extreme cramps. I knew I was miscarrying. I called my doctor who said to come straight in for an ultrasound. I got to the office and tried to control my emotion while waiting to be called back. My husband was out of town on a business trip so with my Mama and my best friend by my side we were taken in for an ultrasound.

The nurse showed us the baby on the monitor while she took measurements. I thought Baby looked bigger than last week and that gave me a moment of hope. The nurse pointed to the screen and said “this is where a flicker should be. I’m so sorry but there is no heartbeat”. The room went blurry with tears. My Mama began to weep for her daughter’s broken heart and the loss of her daughters first child. My best friend began to cry for the loss of a baby who we had already jumped up and down and hugged til it hurt over. In that short moment I had a million thoughts. I wanted my husband who was driving home from Alabama (still 4 hours away), I wanted my baby, I wanted to understand why, I wanted them to be wrong, I needed them to be wrong. I’m crying hard now. I want to sink deep into the hole, I could feel depression and wanted it. I want to lose it, go crazy, and scream.

But in the midst of every thought and emotion this still small voice pushes through and gives me a peace that I cannot describe. God was speaking into my heart who He is even in that heart breaking moment. I began speaking it out loud- “He is good, He is just, He is kind, He is right!”  Over and over the words came out.

I knew that this had not caught Him off guard and that was enough to give praise for. We are placed in an exam room and the doctor finally enters. She starts with an “I’m sorry” and then proceeds into everything that will happen next. I remember seeing her mouth moving but I cannot tell you all the options she gave me nor the words she was saying. I managed to say “whatever you think is best” in regards to her speech. She said a D&C would be the best due to my history of issue this would be best preparation for another pregnancy.

The next day I delivered our baby via D&C. I was 9 weeks and 2 days. Casey Harper was born on December 12th 2012. I know that I will see my precious first born one day and until that day I know the Father is loving on my sweet one.

We have been trying to conceive since we lost Casey but have not been successful. I am worn out with trying and go in and out of anger at everyone including God at why this happened and why I cannot get pregnant again. July 7 2013 is rapidly approaching, the day I was due to deliver. My heart is broken but I believe God has a plan for our family.

 

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