SBD Speaks

These are little photos that we share at our stillbirthday Facebook page, as a way to invite others to finding us here, directly at stillbirthday.  If you like any of these, you can find them – and more – at our Facebook page for sharing.

 

Protected: Enduring the Unthinkable

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Alive in Heaven

Sunday, September 23 is International Bereaved Fathers Day.

From now until September 15, you can download a free eBook version of Mark Canfora’s book:

Alive in Heaven:

A Child Died

A Father Cried

And God Answered

Just visit this link, and in the left sidebar you’ll see “Download eBook”.

Enter in your name, email, and this code:

markjr1985

This is a story of a boy, eighteen years old, who committed suicide.  It’s a story of a family, coming together to find their way, to find God’s way, in their healing.

Seeing his son in the morgue, the rope marks around his neck, brings back memories of the day Marky was born, with his umbilical cord wrapped around his neck. Looking back on that day, Mark remembers how fervently he prayed for his child’s survival.  This book brings you through the intimate, devastating experiences of a father begging for his son’s life to be preserved, to losing his son eighteen years later, and of that broken, devastated father turning to his own Father for answers, mentorship, guidance, restoration and hope.

September 15 is the anniversary of Marky’s arrival in Heaven.  Thank you Mark for this generous offer.  May bereaved fathers find comfort in your message, in the legacy of your son, and may you find comfort in these days ahead.

Protected: The Meaning of Baby Kisses

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Some Dads Don’t

Some dads make sure their employer knows well in advance that they want to be off work the weekend of the third Sunday of June.

If they can’t get it off, they’ll plan on calling in sick.

They pack in the charcoal, the hot dogs, and all of the kiddos into their four door SUVs.  They grab the fishing poles and fruit snacks.

They smear sunscreen on their nose and ketchup on their shirt.

Some dads play football with their boys out in the backyard.

They catch the sounds of their favorite music on the radio and the sounds of their sons laughing, as they carry the youngest child through the end zone.

Some dads fill sand in tiny sand buckets, some dads run to get kites started, some dads demonstrate how to dive, some dads teach how to use a saw or how to drive a car or how to mow the lawn.

Some dads laugh and romp and play.

Some dads get adoring gazes from their wife and silly gifts from their children.

They feel important and that their feelings of fatherhood are honored.

Some dads have all of their children with them.

But some dads don’t.
[youtube http://www.youtube.com/watch?v=lqCmuQD7hDg]

International Bereaved Fathers Day – the fourth Sunday of September – for those dads who find something missing on Father’s day.

September 23, 2012

In My Weakness, He Is Strong

Told by: Phillip

My daughter Zoe Elizabeth was born still–you can read more about her story from my wife’s perspective here.

There are just so many different dimensions to the pain and grief I felt when she died.

First of all, just that she died. My daughter.

Secondly, that I never got to see her alive before she left.

Hope, my wife, had to begin to deal with the idea that somehow she was defective as a mother; that her body could not do what it was intended to do, namely bring a new life safely into this world. A dispassionate, objective third party would point out that bad things happen and it’s not always our fault. But tell that to a mother who has just lost her baby. The sadness and pain and guilt from the loss of your own baby goes so much deeper than any reason or logic can ever touch. Because it’s an instinct, isn’t it? Women know, deep inside their guts and hearts, that their job is to nurture this little life to fruition, to protect this little person with their own bodies. Not to do so is a failure of the deepest and largest kind.

Men have a similar instinct. There is something so primal about conceiving, bearing, and raising a child. We just know, in our innermost being, that we have a sacred responsibility to protect our wives and our children, to keep them from harm, to keep evil and darkness and death away from our homes. And so when my daughter Zoe died, I got hit with a double whammy of instinctive failure and weakness. I was powerless to protect and defend my tiny little girl, and I was equally powerless to protect my wife from the pain and grief of losing our child. All the logic, reason, and fact in the world cannot take away those feelings of weakness and inadequacy. Feelings that directly attack the very core of how we identify ourselves as men.

The logically reasoned facts state that neither I nor Hope could have changed Zoe’s fate. And even if we had known about Hope’s blood clotting disorders, and she had been taking the right medications, any number of things could have happened. We were truly powerless and without guilt in the face of our daughter’s death. But facts don’t work against instinct and primal emotion. Not for a long time, at least.

Walter Bradford Cannon spoke of the “fight or flight” response to threats. As a man, husband, and father, I felt powerless, inadequate, unable to fight. So it’s not surprising to note that I chose flight as my response in the aftermath of Zoe’s death.

We men choose to flee so much more often than we choose to fight for the right things, don’t we? I chose flight; I fled to the realm of denial and fantasy. There are so many different places we can flee to these days, some harmless in and of themselves, and some less harmless. Anything that offers the illusion of control and power is an option, from books and video games to alcohol, drugs, pornography, et cetera. I fled because I felt powerless to save my wife from the grief, because I was a bad father to my daughter Zoe. Because I felt like I had to, somehow, maintain some illusion of normalcy and strength for my family, when inside myself there was anything but strength and normalcy.

It has taken me a long time to stop fleeing. In some ways, I am still tempted to flee from what I feel inadequate to fix, solve, or control. But I am finally learning that I can face the senseless chaos of a fallen world, and fight, even though I am truly weak and without power to make things right. Now that is truly an illogical response: to fight even though I have no power. But “the wisdom of this world is foolishness in God’s sight.” (1 Corinthians 3:19)

I can stand and fight because, in the wisdom of God, which makes no sense by the standards of a godless world, when I am weak, Christ’s strength is made to shine; it becomes larger than life!

The apostle Paul: [The Lord] said to me, “My grace is sufficient for you, for my power is made perfect in weakness.” Therefore I will boast all the more gladly about my weaknesses, so that Christ’s power may rest on me. That is why, for Christ’s sake, I delight in weaknesses, in insults, in hardships, in persecutions, in difficulties. For when I am weak, then I am strong.(2 Corinthians 12:9-10)

The weakness that is part of our fallen human condition becomes the path God bids us follow; it leads straight to Him. When I acknowledge my weakness, and I humbly ask my God to help me act like He is God, He pours His strength all over my and my situation, and I finally understand what true strength is. I was never meant to be an island. I was never made to have strength and power on my own. Instead, I was made to serve as a way and a means for God to pour His strength, power, love, wisdom, and every other quality, into this world. That is true reality. As I learn to let God use me in the way I was made to serve, He is showing me that I am not broken anymore. He has fixed me, and is fixing me. In my weakness, He is strong, and His strength makes me strong in the way I was meant to be. That’s what it means to be a man.

[You can click here to view a photo of Zoe Elizabeth]

Filing Taxes after Pregnancy & Infant Loss

As if grief isn’t hard enough, the logistical and practical factors intrude into our safe space, demanding that our most vulnerable experience be gazed at through the lens of something other than what we see.

Simply put, if we have endured pregnancy and infant loss, we may, humbly, with trepidation and curiosity, wonder how our child not alive might be included in our family as we turn to filing our taxes.

 

The answer is not very affirming.  While there may be absolutely rational legal explanations to the way in which this is formulated, it is a formula nonetheless.

 

Directly from the IRS.GOV website is , with this bracket:

 

Child born alive.    You may be able to claim an exemption for a child born alive during the year, even if the child lived only for a moment. State or local law must treat the child as having been born alive. There must be proof of a live birth shown by an official document, such as a birth certificate. The child must be your qualifying child or qualifying relative, and all the other tests to claim an exemption for a dependent must be met.
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Stillborn child.    You cannot claim an exemption for a stillborn child.

 

In regard to claiming Head of Household:

Death or birth. You may be eligible to file as head of household even if the qualifying person who qualifies you for this filing status is born or dies during the year. To qualify you for head of household filing status, the qualifying person (as defined in Table 4) must be one of the following.

  • Your qualifying child or qualifying relative who lived with you for more than half the part of the year he or she was alive.
  • Your parent for whom you paid, for the entire part of the year he or she was alive, more than half the cost of keeping up the home he or she lived in.

 

In this line, it may be helpful to visit your state listing regarding Certificate of Birth.

Stillbirthday dads and moms would like to make mention to you:

01} The birth certificate you obtain is likely to say “deceased” or similar directly on it. This is troubling to some parents but is important to prevent fraud and someone illegally using your child’s identity.


02} In place of the social security number (assuming your child did not live long enough to be assigned one), you type in “dead”.


03} You cannot file electronically. The return has to be printed and mailed in order to include the birth certificate, since there is no social security number.

04} It is possible that you could deduct some or all of the medical expenses related to the care, delivery, and even autopsy or testing of your stillborn baby. There are a lot of “if/then” questions regarding all medical deductions, and these are no different in regards to the law. If you can itemize. If you didn’t make “too much”. If. But please don’t assume that you can or cannot without speaking to a professional. Many will answer these questions at no charge.

 

One dad says, “I hate filing taxes every year because we will never be able to count Bentley as our child in maryland. But he still is and was born perfect but the state doesn’t recognize it. Very stressful every year. It is a punch in the gut every year.”

 

It is my hope only to share factual information in a compassionate way.  Please, be sure to visit the IRS.GOV site or your personal tax preparer for the most up-to-date information regarding filing taxes, as they may have revised and updated information for you.

 

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Thank you for your help in keeping this page updated:

Sarah Russell

Blake Nalley

Katie Short

Before Blue (Jay-Z and Beyonce)

Shawn Corey Carter, a US rapper better known by his stage name, Jay-Z, and his wife, Beyonce, a singer, songwriter and actress, gave birth to baby Blue Ivy, a little girl, earlier this month.

While the news continues to circulate over what hospital they went to, the method of childbirth and delivery experienced, and any photos that can leak from them leaving the hospital and of course of baby Blue, her father, Jay-Z, just shared another personal family experience with the world:

Before baby Blue, Jay-Z and Beyonce experienced a miscarriage.

In his newest song, “Glory”, Jay-Z shares some important insight into the experiences of childbirth and of miscarriage.  Perhaps one of the most important, and most obvious to bereaved parents, is that a pregnancy loss, and a subsequent pregnancy and birth, have aspects that are interrelated and very much connected.

Jay-Z shows through the lyrics of “Glory” that their miscarriage experience was not forgotten simply because Beyonce experienced a full-term pregnancy or a live childbirth, and that no amount of media attention, controversy, or public eye on the birth of Blue Ivy could make them forget the anguish and heartbreak over the miscarriage prior to her birth.

The song “Glory” also gives some insight into what this couple may have been struggling with during the course of this pregnancy: the quiet fear of losing another child.  This fear is not uncommon, and many parents experience some level of anxiety or concern during various aspects of subsequent pregnancies after loss, particularly the first subsequent pregnancy, and particularly during the first trimester.

Additionally, Jay-Z incorporated the actual sounds of Blue Ivy, her whimpering and crying, into “Glory”.  Altogether, this song serves as a blend of identifying both his and Beyonce’s feelings regarding their miscarriage experience, and their joy and sense of victory at the birth of their daughter.

While “hip-hop” or “rap” music may typically protray tough, stoic men with rigid messages, Jay-Z uses this medium to creatively express the deep, complex emotions of grief, fear, and finally, thrill and awe.

I am thankful for one more opportunity that a celebrity has used their experience to help educate the world of important aspects of pregnancy loss.

Jay-Z and Beyonce, I am very sorry for the struggles you’ve endured during and after your miscarriage.  I am thankful that you experienced the joyful birth of your daughter, Blue Ivy, and I thank you for sharing these experiences with the world.  It is my hope that you feel shielded from any controvery or criticism regarding your choice to share, but that you feel totally convinced that it was the right thing to do, both for your own healing, but also to help provide comfort to other loss families who possibly wouldn’t have felt as comforted without your sharing through your song, “Glory.”

Some of the lyrics to “Glory”:

Last time the miscarriage was so tragic

We was afraid you disappeared

But nah, baby you magic (voilà)

So there you have it, [profanity edited out] happens

Make sure the plane you on is bigger than your carry-on baggage

Everybody goes through stuff

Life is a gift love, open it up”

Click here to listen to “Glory“, featuring B-I-C (Blue Ivy Carter)

 

A Father’s Perspective

[Site Creator’s Note: this story was borrowed in its entirety from this online location (Addie’s Gift Foundation), where Dr. Gatto owns and operates his own online bereavement support, including support for fathers, where you are invited to visit for additional support]

Told by: Dr. Robert J. Gatto, Jr.

On April 8, 2008 my wife, kids and I lost a full term baby girl named “Adalyn Kathryn”.  I have
lost loved ones before.  Some were lost tragically and some were not.  With the older ones I always said, “well, he lived a good life” or “boy, we’ll miss her…but at least she isn’t suffering any more.”
With the younger ones I often said, “how tragic” or “that’s too bad”. 

As is customary with human nature, I often thought I hope my own children, relatives or friends take care of
themselves and make good decisions.

 

Losing a child is a completely unique experience, which is so abstract that most can’t comprehend the gravity of it.  To those without children, it may be even harder to grasp.  It is easy to think that a baby who never blinks their eyes would be easier to grieve, or even forget, than one which reciprocates with human movement or emotion.  I say that is simply not the case.

 

You prepare for months for the coming arrival.  You spend a few nights swearing over the Chinese-made crib assembly.  You fold the towels and onesies.  You pick up newborn diapers every time you go for groceries thinking that you are being fiscally shrewd.  Then the news comes and the bottom falls out from the comfy-cozy nest you have constructed.

 

Feelings of stupidity abound.  Why in the heck did I buy those diapers?  I wonder who could use them? 

 

My wife was sent home to regroup after the news of the baby’s death. I came home from work and we made some quick arrangements.  Then we were off to the hospital for the induction.  We never thought about the decisions to come.  Would we hold the baby?  Should we use the name we picked out or save it?  What about baptism?  Then you start to make yourself feel guilty.  What kind of selfish jerk am I actually considering the use of the name for another baby?

 

There was an air of denial in the birthing chamber.  At times we had discussions about things unrelated to the issue at hand.  My wife prayed that the tests were wrong.  I suppose that must be a defense mechanism of some kind.  Selye’s stress adaptation response was in full effect.  Fight or flight carried us through the birth.  When the baby came there was a surge of emotion both because of tiredness and the sadness associated with seeing a dead baby.

 

I cried and did not want to let go of Addie.  I continued to tell her I loved her as if some invisible part of her soul was lingering around the room to hear me.  She was warm and soft at first because moments before she was snuggled in my wife’s womb.  It was almost as if she would wake up.  Her chin and jaw were supple and when you moved her it looked like she was suckling.
She looked like my other kids when they were born. 

 

Within the hour she was changing.  Still beautiful, but the rosy glow of her flesh had disappeared.  We had her
baptized by our priest who made a special trip from the next town prior to his 9:00 AM mass.

 

Men and women grieve differently.  My wife kept asking “Why did this happen?”  I was sad and then I got
mad.  I cursed God, asking what our family did to deserve such a crap storm.
I would rant and rave and then feel guilty.  What did I do?  I had better apologize and ask for forgiveness or I might spend eternity in damnation!  This went on for several weeks.  After a while, I realized that my beef with
God was some kind of transference of anger, which really had no other target. 

Turning to God became helpful.  At first, however, asking God for help felt like giving into the enemy!
Like he had stolen something from me.

 

Now we visit the cemetery every few days.  We water the flowers there.  Our four and two year old children actually
run around and play.  My wife cries in public, I do so in private.  Speaking of the events to literally thousands of patients over the last few months has helped me come to terms with my feelings.

 

As a father, the loss of a baby can bring on feelings of efficacy.  You are supposed to protect your children, but in this case I was stripped of that God given duty.  You are truly humbled by the way that life can turn on a dime.

 

I believe that I will always mourn our loss.  I will wonder what Addie would have been like.  At times I can still get a little angry but I still have faith.  I have to remember not to take it out on my family, as I do sometimes when I have been thinking.  I realize how precious each life actually is and hope that such a thing never has to happen to anyone I know again.

 

Long Term Healing/Perspectives

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SBD: Supporting Bereavement Diversity

 

 

 

This enormous section of stillbirthday provides bereavement support specific to:

gender, age, religion/faith, culture,  family lifestyle &  other diverse groups.

To add a resource, simply leave a comment below.

1dad

 Stillbirthday Fathers deserve support as the supporters.

Photo belongs to the amazing Canary Lane Photography Studio and
SBD doula student.

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~Fathers~

Fertility Challenges

Bereavement

Other Bereavement Support for DADs

 

 

 

Media which reference Men and Fathers Grief

sayinggoodbye

{click photo for video}

 

 

 

Couples

Mentorship Program for Fathers

Keepsakes for Fathers

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You have permission to use this photo.  Just visit stillbirthday on Facebook to find and share it.

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Healing Resources Specific to Children:

Children, Teens and Grief

kiddos5

{General} Healing Resources:

 

“Niche” Support

  • While many aspects of bereavement and healing are universal, we have support resources listed especially for the type of experience you’ve had.  Just use our “types of loss” section to gather those resources.  We here at stillbirthday say that grief is a language, that each of us speak a particular dialect of it.  In the language of bereavement, we can learn to celebrate our similarities while honoring our differences.

 

Groups, Counselors and Programs for Bereavement (by location)

 

Timetables” for Grief

 

Grief and Social Networking

 

Identifying & Understanding aspects of Bereavement

 

Similar and/or Compounding Issues to Grief

 

Creativity through Bereavement

 

Finding Intentional Joy

It is important to know that you can laugh again, and that it’s not a dishonor to your lost child.  Plan intentional activities that you have always found to be enjoyable – watching your favorite movie, eating at your favorite restaurant, shopping at your favorite store.  Be safe, and let yourself hear your laughter or feel yourself really smile.

 

Holidays

 

Books, Crisis Hotlines and other Long Term Resources

 

Sexual and Intimate Relationship After Loss

 

Military Family Resources:

Military: blogs and other links:

 

Single Parenthood:

 

Special Needs / Differently Abled Parents:

In whatever way or ways an individual may be considered to have special needs, there are resources and support specific to those circumstances and what you may be facing.  It is virtually impossible to maintain a list of every diagnosis, definition or challenge that a person may be a survivor of and then place that list alongside birth and bereavement support, but what we have begun to do is collect the resources that do speak to the combination of both sexuality and disability, to provide avenues for you that ought to branch out into extensive resources.  Growing this list is important, and if you have an idea to add, please email Heidi.Faith@stillbirthday.info to send it in.

 

LGBTQ+:

rainbow

  • QTPOC (queer/transgender people of color)
  • Mommy, Mama and Me (a children’s storybook)
  • LGBTQ+ Storieslove
  • LGBTQ+ Fertility Resources & Support
  • LGBTQ+ Family Planning
  • LGBTQ+ Books
  • Loss after ART
  • Lesbian Miscarriage
  • Lesbian Miscarriage Support Group
  • Dr. Deb Rich, specializing in lesbian perinatal psychology
  • Keenan’s mothers share their beautiful, tragic story, with a powerful message:

    “We feel strongly that privatizing such events serves only to isolate people, we believe that it doesn’t allow other families openly grieve a stillborn, nor easily access support they may need or want in doing so. In acknowledging life we need to also acknowledge death, make it safe to grieve and encourage people to be present with their emotions/feelings/thoughts.”

    From their photographer, Jozi Grant:

    “Friends and family of Keenan’s mothers recently congregated at the Squamish Nation Shaker Church to celebrate Keenan with a ceremonial food offering to set his spirit free. It was held on a beautiful day with the North Shore mountains watching over us. The Squamish Minister offered an uplifting perspective on the passing of this precious boy. He explained that though Keenan’s parents may sometimes wonder if they are being punished in some way, they should know that they were, in fact, especially chosen to bring a lost soul back and facilitate his freedom. It resonated with me – such a beautiful way to look at such a painful loss.”

 

Cultural & Spiritual Resources:

jaisie

Jalisa and her daughter Jaisie at 36 weeks, just one week before baby Jaisie died.

For Cultural and Spiritual Farewell Custom Resources – please visit our Farewell Celebrations section

Fertility & Bereavement Support for Families of Color

 

Alternative Therapies:

“EFT (Emotional Freedom Techniques) is a simple tapping technique that allows you to relieve distress by gently tapping on certain acupressure points on your body while focusing on the particular issue.

With pregnancy loss, we may also be feeling trauma, anger, guilt, and fear in addition to normal grief.  EFT will not get rid of normal grief, but it can help release unnecessary distress, so that you aren’t so weighed down and are able to move through the stages of grief more easily. 

A few sessions with an experienced EFT practitioner can be helpful & give you the tools you need to help yourself when the waves of grief feel overwhelming.  EFT can also be helpful for your partner and any family members who need support with their feelings.” – Sondra Rose

Agnostic/Atheist Resources:

Shop:

We have a listing of special momentos, charms, books and other merchandise especially created in honor of various cultures, religions and beliefs, including alternative healing stones and more in our momentos section.

 

 

 

Share Your Story!

If you have utilized any of these diversity resources, perspectives and activities and would like to let other families know about them, please consider joining the SBD news team or sharing your story here at stillbirthday.

 

 

Healing Resources Specific to Mothers:

Menstruation after Pregnancy Loss

Trying to Conceive (TTC) after Loss

Returning to Other Responsibilities After Loss

Mentorship Program for Mothers

The SBD® Doula provides support to families experiencing birth in any trimester and in any outcome.

Here at stillbirthday.info, you can learn about the SBD® Doula.